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  • Has anyone thought of going to a neurologist?

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    Old 01-06-2003, 09:46 AM   #1
    kim32
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    Question Has anyone thought of going to a neurologist?

    I'm thinking about seeing if my doctor can refer me to one, this burning pain is driving me crazy and the doctor's can't seem to find out what's causing it. my husband told me that his boss had his gallbladder taken out 3 yrs. ago and to this day he has that burning pain also (he has it 2 times a week, where i have it 24/7) I would want the neurosurgeon to just cut a nerve or something so then i won't feel this pain anymore, I know that it would be a risky procedure, but if i have to live like this for the rest of my life NO WAY! I have read on the internet that it can be done for people who have intracktable pain and that pain med's don't help them any (that's me) The only thing that did help was when i went to the ER and they gave me a shot of demerol (well I don't want to go to the ER every night) Has anyone thought of seeing a neurologist or neurosurgeon before?? Kim

     
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    Old 01-07-2003, 01:34 PM   #2
    jane2
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    Have you tried Neurontin? That really helps for nerve pain. Where is it?

    There is a way to burn the nerve. It is temporary. Nerve Ablation (sp?) There is something called a nerve block too. I think that pain clinics do this more than neuros, but you should see neruo surgeon first and get all the test. Maybe there is something pressing on the nerve they can fix.
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    MS Contin, Valium, Neurontin and Soma

     
    Old 01-13-2003, 05:24 AM   #3
    mel333
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    Hi Kim,
    A neurologist is a good idea for probobly lots of us here who are stuck in a pain cycle or have severe pain like yourself. Have you had internal tests?
    Jane, I am having a nerve block c2 in a few weeks and my doc recommended this before trying neurontin. I have had facet blocks c5/6 and was either going to do 3/4 or a nerve block.
    Is this the right dr for this? I thought a neurologist was more for headaches? not sure.
    Mel
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    23rd July 03, ADR c5/6
    Also disc bulges c3/4 and 6/7. Numerous facet and nerve blocks along with extensive conservative treatment prior to surgery.

     
    Old 01-13-2003, 02:44 PM   #4
    kim32
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    Hi mel,
    what kind of pain do you have? mine is in my upper stomach and sometimes goes towards my back, it sometimes is a constant burning pain or just a pain, but it's 24/7, and i have been having this constant pain for 8 weeks now ever since my gallbladder was taken out :-(
    I just can't take anymore of this constant pain, i have had so many tests done that the doctors just can't find out why i'm in constant pain.
    They are referring me to a "physcial medicine and rehabilitation" place but the earliest that i can get in is Feb. 5th! :-( I definetly want to get some nerves cut or blocked or an epidural so i won't feel anymore of this pain, I have read on the internet that it is possible. I'll do whatever i can just to stop the pain! So can you give me information about the facet blocks, nerve bloc c2, etc.. that you have had or going to have? do they put a needle in your back? i don't want to live off of pain med's the rest of my life or have a pain pump implanted in me.
    But i guess i would have to do whatever just to stop the pain right? I'm looking forward to your reply! Kim


     
    Old 01-13-2003, 07:17 PM   #5
    jane2
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    A neurologist is for nerve pain. Burning is often a sign of a nerve problem. Not always, if it is gastro-intenstinal. The you see a different doctor.


    Many see neuros for headaches. I don't think they do a great job. Very important for nerve problem though. Something could be pressing a nerve and irritating it and causing your pain. Like a bad disc. They often send you to a physical medicine person for that. If that doesn't work a surgeon.

    However, cause your stuff is in the stomach. I would see a gastroenterologist too. Cover all grounds. Unless that has been ruled out. Sorry, others now your story better.

    You will probably work with the rehab people for a while trying different things - shots, blocks. Also see specialists for test and diagnositic purposes at the same time. Tests are important. Trying things is important. Takes time to figure out what is wrong and the best approach for you.

    Everything they are doing seems normal and fairly typical. Do you feel they are listening to you and really looking for answers?

    I have seen all kinds of specialists. I worked for two years with a physical rehab specialist. I am trying a new one. I have seen a rheumatologist, a neruologist, a neruo surgeon and on and on. We keep trying. I have PT, accupuncture, trigger shots, Botox and other things. Tried many drugs. Some times you feel like a lab rat, but keep at it. Pace yourself though. Sometimes I get doctor burnout.LOL>
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    Bone spurs and degeration c1-6; radiculopahy; Pain in shoulders, neck and arms

    Leg pain (l5, L4) - probably spine related

    Migraines


    MS Contin, Valium, Neurontin and Soma

     
    Old 01-13-2003, 08:04 PM   #6
    kim32
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    Hi jane,
    yeah i have seen a gastro doctor and he ordered all of these tests right after my gallbladder surgery:
    "EKG,scope,CT scan, HIda scan, MRI, numerous blood and urine tests" and everything was normal. so that's why there sending me (the gastro doctor plus my primary doctor) to a physical medicine and rehabilatation. oh if they could do a nerve block and that would take the burning pain away that would be great!! I asked the gastro doctor if it could be caused by nerve damage and he said that it's a possibility, he said that they couldn't tell if it was because the tests that i of had couldn't show that. I'm just praying that i won't have to live in this pain everyday for the rest of my life :-( I hope that they can figure something out. Kim

     
    Old 01-14-2003, 07:41 AM   #7
    mel333
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    Hi Kim,
    Your pain sounds frustrating and difficult to locate. Did CT show anything? If it was a spinal nerve problem you could have a myleogram to check the nerves. I guess slowly with tests you will find out. You need to know more before trying nerve blocks etc.
    I have a neck problem with discs 3/4 and 5/6 and am getting a block at c2 for headaches/neck pain in a couple of days so will let you know if it helps.

    Mel
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    23rd July 03, ADR c5/6
    Also disc bulges c3/4 and 6/7. Numerous facet and nerve blocks along with extensive conservative treatment prior to surgery.

     
    Old 01-14-2003, 08:54 AM   #8
    franjo
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    Hi...I was on neurontin for a short time. It's one of those drugs that takes time for your system to adjust to and should be increased in increments under a doctor's supervision. I stopped taking it because it just made me feel too drugged out and weird. I probably didn't give my body enough time to adjust...but I have a three year old, and felt that the side effects just weren't worth it. I have to be on my toes at all time. For now, I'm trying a more natural approach to pain mgt. Can anyone comment on how long it takes, with neurontin, until your system finds a balance that you can live with?.....franjo
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    Fusion with instrumentation with lots and lots of screws-2003

     
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