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  • Neurologists refuses to give me nerve blocks!

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    Old 08-22-2003, 09:05 PM   #1
    babydolltahiti
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    Unhappy Neurologists refuses to give me nerve blocks!

    Hi,

    I have seen several neurologists about my RSD. The first one I saw diagnosed my RSD. The other neurologists do not believe I have RSD because my RSD symptoms are masked by Duragesic.

    As a result, they all refuse to give me nerve blocks. How can I convince them to give me nerve blocks? They also claim nerve blocks are ineffective for RSD pain control.

    Anesthesiologists also give nerve blocks, right? There are no anesthesia services provided in the hospitals where I go, except for surgery patients.

    Thanks.

     
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    Old 08-22-2003, 09:22 PM   #2
    philly girl
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    Have you tried getting them from the Dr. who diagnosed your RSD? Otherwise I would suggest trying a pain management specialist if you can find one in your area.(same as an anesthesiologist, but if they use this title, they'll more likely have non-surgical patients as well). Also, if your pain is in your foot, you might be able to get them from a podiatrist(DPM).
    From what I've read, though, blocks are only effective in the early stages of RSD.

    (Sorry I can't be more helpful.. just learning the ropes myself. )

    ~Amber
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    Old 08-22-2003, 10:10 PM   #3
    babydolltahiti
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    Hi, Amber

    The neurologist who first diagnosed my RSD refuses to deal with its treatment so she will not give me any nerve blocks.

    I have a pain management doctor but he only gives pain medications, not nerve blocks or other kinds of treatment.

    My RSD pain is in my left knee/leg. However, the orthopedists I saw do not give nerve blocks.

    Thanks for the information.

     
    Old 08-22-2003, 10:38 PM   #4
    philly girl
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    oops.. almost posted a link to a business. ..I'll email you a directory from a search I did for rsd nerve blocks near where you live.

    ~Amber



    [This message has been edited by philly girl (edited 08-23-2003).]
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    Old 08-22-2003, 11:15 PM   #5
    babydolltahiti
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    Thanks Amber.

     
    Old 08-23-2003, 06:50 AM   #6
    RSD_Angel
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    Are you sure that the anesthes. guys at your hosp dont take non surg. patients?? Thats what i thougt with mine but I called there office and they took non surg. patients and did blocks. Most hosp have anesth. that are in a private group and they hire them to work for there hosp when they really work all the hosp in the area, but they get more money if they dont work for the hosp and are in a priv. group! I would call your hosp and find out or look in the yellow pages for anesth. or pain mang. docs!!

    Good luck!


    Bryn

     
    Old 08-23-2003, 07:52 AM   #7
    dayton
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    My orthro referred me to dr. enty, a pain management doc who is also an anesthe. H does the procedure of the block but cannot do both the anesthesai and procedure at the same time. There is a clinic called metroplex something or other. I can't believe they won't give you blocks. Please keep looking, it's the only way from what everyone says. I do have a friend who swears by acupuncture but I'm skeptical of tat.

     
    Old 08-23-2003, 08:13 PM   #8
    riceneuroni
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    Hi,

    Really do your research about which kind you NEED, exactly where it will be started, EXACTLY which nerve or nerve groups it will be treating...etc.

    If you do all this research and then determine that a block will in fact be the best course of treatment, then just pick up the phone and call PMs asking for referrals to docs who do them.

    If you really want blocks, you will find someone to take your $$$ and do them. If you want the best course of treatment, you'll become an expert first, then go looking for a suitable practitioner.

    Just my 2-cents. Good luck with this, and I hope you have a pain-tolerable night.

    [This message has been edited by riceneuroni (edited 09-05-2003).]

     
    Old 08-24-2003, 06:09 AM   #9
    mimi7
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    rice,
    If you don't do blocks then WHAT helps you???? I am VERY interested!!!!!!
    hugs,
    mimi

     
    Old 08-24-2003, 07:48 PM   #10
    riceneuroni
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    I'll be glad to give you my list, for what it's worth. I say that because with over 100 different causes of RSD, everyone's relief will be as different as their cause is.

    I put this list together by either trial and error or by doing hours of research and then trying the things that lots of people mentioned worked for them. And thanks for asking. I hope you find something here that helps.

    As far as what works for me:

    1. not use the effected regions as much as possible. I use a wheelchair everywhere and have an electric (cheap from the paper) for in the house. Consequently, this allows me to stand and walk when I most need to at work. I walk every day now BECAUSE I'm not all inflamed.

    2. I take Methylcobalamin B12. This has been like an instant pain-killer for me. Won't help everyone, but is definitely worth a try. It's over-the-counter. For more info on this see Dayton's thread "question to Rice on B12" and "Hi Riceneuroni" by Freddd)

    3. started a gluten-free diet 4 weeks ago. The swelling in my feet went down immediately and has stayed down. The shooting pains in my legs and arms has gone away. The burning pain has now been reduced and my recovery time from the burning pain after walking has markedly improved.

    4. keep my feet elevated and not being touched even at work: no shoes, no socks.

    5. I avoid temperature extremes hot and cold. 75 to 82 are my limitations for not being affected. (After 4 weeks now on the gluten-free diet, this is improving also.)

    6. Watch sugar intake, both natural and refined. Sugar is an instant burn whether the sugar is from fruit or candy.

     
    Old 08-25-2003, 10:10 PM   #11
    SFangel
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    Hi, everybody

    I had to change my screen name from babydolltahiti to SFangel because I do not remember my healthboards.com password as well as the password to my e-mail address.

    Bryn, the two hospitals where I go are public hospitals. They have a very limited Anesthesia Clinic, which I was told only provides anesthesia services to surgery patients.

    I will look in the Yellow Pages and elsewhere to find a doctor willing to give me nerve blocks.

    Dayton, I wish I could find a doctor like yours to give me nerve blocks! Dr. Enty seems knowledgeable and thorough in his work; he always tries to make sure that the procedures he does on you do not cause a flare-up or spread of your RSD.

    Another excuse my present neurologist gives for not doing nerve blocks on me is that nerve blocks do not work! I do not believe him! I am aware that nerve blocks are not 100% effective but he can only find out if they will work on me or not by trying them.

    Riceneuroni, I was not aware there are different kinds of nerve blocks. I will do a search on the Internet to find out more about this.

    It is interesting that one of the things that help you is NOT to use the affected region as much as possible. This contradicts many doctors’ view about using the body part affected with RSD as much as possible, that is, “Use it or lose it.” I heard that so much.

    You say that one thing that helps you is: “not being touched...” How do you prevent this from happening when you go to a medical examination, during which doctors often have to touch the body part affected by RSD. Does touching by a doctor cause you pain? How do you control this pain?

    Thanks.

     
    Old 08-26-2003, 05:30 AM   #12
    dayton
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    What is a gluten free diet? Is that like bread and all. What types of sugar? I think there's sugar inn everything, right. Where can I get a copy of one? You know there is a book called Foods that Control Pain or something like it from the web. Think I'll look into that. Rice, have you lost anyweight?? Doc also told me blocks were the only way to go. I've had 7 total, 5 on leg and 2 on arm. at $1,000 a piece, and now insurance is saying that won't pay for the anesthesiasat (sorry for spelling). I'm going broke real fast. Is b12 that little pink pill?

     
    Old 08-27-2003, 01:57 AM   #13
    riceneuroni
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    SF,

    I was told use it or lose it too. Unfortunately using it meant absolutely intolerable, excruciating pain. Not using it as much as possible meant I could walk a few steps when necessary.

    Now had I not gone into remission and been able to rebuild the leg muscles somewhat, then long-term non use would have meant loss of the use of my legs. My theory was that my RSD wasn't going to slip into remission from an excited level only from a calm one. This worked for me. Everyone has to look at their own situation.

    "Not being touched" means as much as reasonably possible, i.e. no walking, no socks, nylons, sheets, etc. Docs were not included. I always walked when they asked. I've always maintained walking a few steps throughout every day since the feet first calmed down enough to allow it. I'm sure this approach (getting them calmed down first then walking) was the right way to go for me.

    Dayton,
    Gluten is found in grains (wheat, rye, barley, etc.) I simply stopped eating grains. My neuropathy is slowly going away. Not sure yet if they are connected, but the evidence is mounting.

    I chose to try this because gluten intolerance is a leading cause of B12 malabsorption.

    What types of sugar? Natural and refined. Both shoot my pain to the roof. No citrus, no candy--although chocolate doesn't bother me (Whew!)

    The book is Foods That Fight Pain. Enlightening reading for anyone with chronic pain and especially with cancer.

    I've lost close to 15 lbs. and have had NO cravings. Thought I couldn't live without pizza. Caved last Friday and had ONE small slice. My foot was swollen all day Saturday and I hurt.

    Sorry to hear about your mounting bills. I hope at least the blocks helped.

    Methyl B12 is a pink tablet.

    Sorry to be so abrupt all, eyes are really strained. Hope you get to feeling better.

     
    Old 08-27-2003, 01:08 PM   #14
    Iam2boysMom
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    I am getting ready to be in the same situation as the original post except I have had 13 blocks over 5 months and now the Pain Dr says thats it.

    I go tomorrow to see what he has in stop next, last time I asked that questions he just did not answer me and said I will do 2 more blocks but then that is it. So I had the 2 more, I am in the same pain now as I was then (except for 5-6 days after the block then I am down to a pain level of 0-1). So Will be interesting to see what he has to say.

    My suggestion is to see a Pain Dr that says he deals with RSD patients.

    Good Luck,

    Patty

     
    Old 08-27-2003, 11:35 PM   #15
    SFangel
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    Hi, everybody

    Riceneuroni, how long do you think a person has to stop
    using his/her leg before losing the ability to use it permanently?

    It is certainly true that using a limb with RSD causes severe to excruciating pain. I wish doctors would understand this when they send a patient off to physical therapy without good pain management.

    My orthopedists and neurologists actually expected me to be able to do physical therapy (exercise) to control my RSD pain and regain the use of my left knee/leg. Yes, I believe that physical therapy can help a person with RSD regain the use of a limb BUT ONLY IF RSD pain is well controlled. Otherwise, the pain will cancel any good efeects the physical therapy might have given (I read this somewhere).

    Your theory about RSD not going into remission from an excited level but only from a calm one is interesting. I think it applies to many RSD patients, including me.

    So you let doctors touch your body parts affected with RSD? Did that cause you pain and what did you do to control it? What precautions, if any, did your doctors take to avoid causing you pain when they touched you? I
    am worried about doctors causing me pain (often severe)
    when they touch my left knee/leg affected with RSD.

    When you stopped eating foods containing gluten, did it
    not cause you health problems, considering that grains contain essential nutrients? Do you take vitamins and minerals and what kind do you take?

    Patty, we should not have to beg for nerve blocks if we
    need and want them.

    It is hard nowadays finding doctors willing to deal with RSD because many doctors do not believe in it existing or in us having it and because this disease is
    so hard to diagnose and treat.

     
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