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Please help me find the answers

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Old 05-23-2012, 09:53 PM   #1
Junior Member
Join Date: Nov 2010
Location: Nova Scotia, Canada
Posts: 16
pollie67 HB User
Please help me find the answers

Hi Everyone,

It has been almost 2 years and I am still without a diagnosis. My problem started when I started losing my balance and falling. This was followed shortly by severe muscle spasms (myoclonus) which left me unable to walk. The Dr. who saw me in the ER that night automatically summed up that it was either MS or ALS. He did send me for a CT scan to rule out a possible bleed.

Since then, my problems have escalated. I have seen a couple of Neurologists who basically told me that it was "all in my head" I have had an MRI done but because no lesions showed, they would not diagnose MS.

List of Symptoms:
Loss of Balance
Muscle spasms/twitching
pins and needles in hands and feet and face
zero tolerance for heat
pain (primarly in legs and feet)
difficulty swallowing
lost of strength in hands
Bladder problems plus bowel
Low Vitamin D
Low IGG and IGA
Extreme burning sensation in hands and feet
High body temperature but no fever
Forgetfullness/Brain Fog
Bright flashes in eyes

I was sent to a massage therapist and a physiotherapist but it always made my muscles go into major spasms. Both therapies had to be stopped. When this happens, I have to use a walker for stability.

I was see by a psychiatrist/psychologist who both confirmed that the problems were definitely NOT psychological.

I am a single Mom of three teenagers and every day they see me choke on my food, or if I am having a bad day, pick me up after yet another fall.

I am scared but I seem to have gotten lost in the system and unfortunately the wait time to see specialists is outrageous.

My physical state continues to deteriorate..any help would be greatly appreciated.

Thank you.

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