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craniotomy versus jaw issues

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Old 10-02-2012, 07:43 AM   #1
Join Date: Oct 2012
Location: Philadelphia, Pa
Posts: 1
lusima HB User
craniotomy versus jaw issues

Hello everyone! To first start, I had a left anterior Temporal Lobectomy in 1995 for epilepsy. I still have seizures. There's 12 titanium screws on left side skull that were always sensitive to the touch. It was ruled out no infections; and not removed. Now for past 2 years, I have been experiencing inflammation of the left temporal area/ jaw with closing of the left ear canal and tenderness to the touch of anything in that area, esp. my ear and earlobe. My neurologost thought it might be a Neuroma from the surgery and sent me to Neurosurgery. They got and MRI of my jaw, instead of my brain (as neuro wanted), and diagnosed me with a severe dislocated jaw. Also, I saw Oral surgery who stated it was neither and I have trauma migraines. I was told to take Nortriptylline 40 mg/ night! I cant even reach to 40 mg, along with my seizure meds, 10 mg knocks me out w/in 30 mins. These episodes come and go a few times/month and they can last 3-4 days each time with feeling exhausted. Last week, I began having pain and sensitivty to the left lower teeth and cannot chew on that side. Also sensitive to cold and hot water. Just because of my history I want to rule out anything Neurological. TMJ was never mentioned to me. What do I do? Pleas help!!! Thanks you!

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Old 12-26-2012, 01:29 PM   #2
Join Date: Dec 2012
Posts: 1
THOMAS 990 HB User
Re: craniotomy versus jaw issues

Go and see a maxillary facial surgeon I had problems with tmj related pain after my surgery and then see if they can refer you to a physio. The jaw joint itself in my case is ok but the muscle balance is effected and it really hurts kind of like this?


Strong persistent tingling in the right hand side of my face.
Spontaneous electric shocks in the right hand side of my face also present at times are a spontaneous piercing and boring pain. This pain can also be of a burning type. Constant piercing and boring pain that varies in its intensity and can be at the same time accompanied by electric shocks. Piercing and boring can be spontaneous.


Hope all goes well.

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