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Mysterious illness

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Old 12-16-2012, 10:08 PM   #1
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babojunny HB User
Unhappy Mysterious illness

My husband recently suffered from arteriovenous fistula, viral meningitis, and encephalitis (at least, that's what the doctors said). He had stiff neck, shoulder pain, and migraine in the past 6 months, shortly after suffering from bell's palsy. He had episodes of slurred speech, numbness in his right arm, and memory loss in the past 2 weeks. When he was rushed to the hospital, he had taken MRI, MRA, CT scan, angiogram, and ultra sound on carotid arteries. He even had spinal taps done (3 times!). He was given anti-viral and antibiotics for days. His blood work was done. Nothing came out positive, except for proteins present in CSF and swelling of left side of his brain. He was discharged from the hospital and is still suffering from migraines and blackouts. The other day, I had a huge fight with him screaming and yelling but he does not remember what he said that day. He has trouble piecing together things that happened. Bits and pieces of memories are gone. The neurologists did not give him any other medication except Keppra for the seizures (spacing out). I am baffled at the doctor's diagnose. He was discharged but still suffering from the same symptoms that put him at the hospital in the first place. I need an opinion of someone who is familiar with this kind of symptoms. Please help!!!!

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Old 12-17-2012, 12:59 AM   #2
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Re: Mysterious illness

I would be interested in knowing if any of his viral studies were positive. If not, I would ask, more like insist, on him being checked for neurological lupus. It causes inflammation of nerve tissue, a type of meningitis indistinguishable from the viral meningitis, can cause encephalitis, Bell's palsy, migraines and seizures. He has numerous symptoms that could fit with CNS lupus, which is treated with steroids to reduce the inflammation. Blood tests are all that is needed to check for this, an ANA, sed rate, CRP and if ANA positive, a few other things plus a rheumatology referral.

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