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Neuromuscular Diseases Message Board

Mono Neuritus/ Long thorasic palsy, aghhhhhhhhhhhhhhhh

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Old 12-09-2005, 05:48 AM   #1
Join Date: Dec 2005
Posts: 4
julie13 HB User
Exclamation Mono Neuritus/ Long thorasic palsy, aghhhhhhhhhhhhhhhh

Hello everyone,I am Julie Im 32, on 19th Dec, I was diagnosed (after 2 years of agonising back and forth to the dr's) with Mono neuritus / long thorasic palsy, it has left me in such a state, Spasms in neck and back, chronic pain numbness headaches backache depression.
Some days it's not too bad just the normal chronic pain down my neck and shoulders, but over the last few months, the pain is in my bones in my back(lower),I don't bother going to the dr anymore as im sure because i look fit and healthy and i am young i am not a high priority and he just gives me drugs, which do help but then were into another problem of addiction to the pills! so i cant win, I am seeing a neurologist and they dont know how or why it started, i was so fit before, anyway I was so relieved to find this site as i dint think anyone would know what im talking about as i feel i am all alone in my pain, but i can see from your messages that i am not alone and i am better than some of you but worse than others, we can only deal with our own pain am i right! If anyone has any advice or would like to chat feel free to contact me, i am new to this so be gentle
love to you all out there in pain or distress youre not alone im there with you believe me!!!!
julie collins

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