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Neuromuscular Diseases Message Board


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Old 05-12-2013, 06:26 PM   #1
Join Date: May 2013
Location: comstock park
Posts: 6
amc2861 HB User


Join Date: May 2013
Location: comstock park
Posts: 1

Hi I am new here. I have gone through all kinds of testing for the last 2 years. My first symmptom was and is eye weakness in my right eye. It will not move to the left, and I have double vision and my eye is blurry. I am seeing a nuero opthamologist after first seeing a nuerologist. I was also having numbness in arms and legs at first. Now I just seem to have weakness in my legs and tired all the time.

They have tested me for ms, lupus, nerve palsies, and now cpeo. I have had several mris, lumbar puncture and lots of blood work. Now my doc wants me to have blood test for genetic testing. My insurance has not approved this test and a appeal was sent. My vitamin d and b is low. My calcium and creatine is high. My blood pressure is high and was recently put on meds. I have had headaches and neck pain for over a year too. The neck pain I am sure is from turning and lifting my head to see better.

That is about it I guess. Oh yes and I am 51 years old. I hope I get diagnosed soon or find out if it is cpeo or not.

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