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-   -   Chronic progressive external ophthalmoplegia (CPEO) (https://www.healthboards.com/boards/neuromuscular-diseases/982930-chronic-progressive-external-ophthalmoplegia-cpeo.html)

Boggles Donegal 06-07-2014 12:28 PM

Chronic progressive external ophthalmoplegia (CPEO)
 
I am a 44 year old male from Ireland. My eye lids started drooping in 1992 and in 1996 I was checked out by an eye specialist in Dublin but at that time the muscle biopsy was inconclusive. After the symptoms worsened I went back for a second investigation and I was diagnosed with CPEO in 2005.
My left eyelid is now closed all the time and my right eyelid is 50% closed.

Four years ago I developed an irregular heartbeat. I am taking beta blockers and they have stopped the palpitations and breathlessness.

Tiredness has become a major issue for me and I am not sure if this is caused by the CPEO or a side effect of the Beta blockers or a combination of both.

I am interested in learning if anyone else with CPEO has developed an irregular heart beat? and if so what treatment they are receiving?.

Also I would love to hear from any other Irish person who has been diagnosed with CPEO


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