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  • Chronic progressive external ophthalmoplegia (CPEO)

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    Old 06-07-2014, 12:28 PM   #1
    Boggles Donegal
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    Join Date: Jul 2010
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    Boggles Donegal HB User
    Wink Chronic progressive external ophthalmoplegia (CPEO)

    I am a 44 year old male from Ireland. My eye lids started drooping in 1992 and in 1996 I was checked out by an eye specialist in Dublin but at that time the muscle biopsy was inconclusive. After the symptoms worsened I went back for a second investigation and I was diagnosed with CPEO in 2005.
    My left eyelid is now closed all the time and my right eyelid is 50% closed.

    Four years ago I developed an irregular heartbeat. I am taking beta blockers and they have stopped the palpitations and breathlessness.

    Tiredness has become a major issue for me and I am not sure if this is caused by the CPEO or a side effect of the Beta blockers or a combination of both.

    I am interested in learning if anyone else with CPEO has developed an irregular heart beat? and if so what treatment they are receiving?.

    Also I would love to hear from any other Irish person who has been diagnosed with CPEO

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    cpeo, droopy eyes, irregular heartbeat, ptosis

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