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    Old 01-24-2016, 08:08 AM   #1
    colleen123456's Avatar
    Join Date: Jan 2016
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    colleen123456 HB User
    So confused

    Hi Everyone,
    I have been having paresthesia/ neuropathy symptoms since August. I had some odd swelling in Aug which started all this as I wanted to be sure I wasn't having a blood clot so I went to ER. Since then, I haven't been right. My docs tested me for Lymes back then and told me I was negative. I have since had MRI of brain and spine to rule out MS.
    I've been to rheumo b/c I tested with High ANA (I already have Hashimotos) and then saw that labs were indicative of MTCD (mixed tissue connective disease) although i don't have major symptoms for that.

    I generally don't pay that much attention to my body but trying to now. I have had headaches a lot since August and feel I am taking Excedrin or Advil regularly. I am now on Neurotin/Gabapentin 4/day but feel it is just hiding something more going on. I've been told, these things happen as we age and they just come on. I recently got on Plaquenil for the MCTD (connective tissue disorder) but is this a result of Lyme? Is there a correlation?

    Prior to this, I was so super strong and healthy running 5 miles 3-4 days a week. I feel like I got hit hard and just getting by with minimum.

    Now, I'm wondering if I have chronic lymes. Looking back at my test results, all the Lyme was negative per docs but now I'm looking at things more. One week the IGM p41 was present and then I was re-tested a few weeks later and just the IGM p39 was present not the p41. I know they say that I need to have 2 present at the same time for a blood work diagnosis but does having these 2 present within 2 weeks mean anything?

    I know I have something and I want to figure it out. I went to another neuro and asked about Lyme and she quickly said no, the tests were negative. She thought my peripheral neuropathy could be pre-diabetic but I eat pretty well and labs were good on that.
    Any thoughts on blood tests above or anything? I've reviewed some doc reports and one thing another neuro wrote was I have some DJD showing in MRI of cervical spine but not symptomatic. (Aside--I have a special needs daughter and I do a lot of lifting so I often attribute/dismiss my achiness to caring and carrying her).
    I'm going back to my PCP since I haven't seen her in 6 months since this all started as I've been with specialists.
    Generally feeling fatigued, headaches, joint pain comes and goes, shoulder pain on and off (I thought for a while I had rotator cuff injury but then it went away but now it is back), fingers swell on and off and some joint pain.
    Thank you so much!!!!! I will take any thoughts or ideas.

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    lyme bloodwork, lyme diagnosis, lyme disease symptoms

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