Looking for any insight
I just registered today because I just don't know what to do.
My husband, 33, smoker, weighs about 145 but in otherwise good health has developed neuropathy of sorts. Last May he woke up one day and his legs were BURNING ( bilateral pain, from the KNEES to TOES only) , we played volleyball the day before and thought maybe it was that. So as the days went on the burning got worse and he started getting tingling, tightness, numbness. Again, this is only from the knees to toes. This continued for months. In which time he had a ct of his brain and spine, MRI of the brain and spine , blood work, EMG, circulation studies. Everything came back normal. EKG normal. Lyme disease, MS, Gullian Barre, Lou Gerigs.. all ruled out. He went to a chiropractor who said he needed adjustments, this seemed to help for a week or two at a time. The doctor also prescribed gabapentin, 300 mg, then 900.
He seemed to go into remission and had minimal issues for 8 months! Then slowly it came back, with a vengeance. He woke up a week ago unable to move below the knee. It didn't last long and we went to the ER, once again no answers. I cannot stand to see him this way.
At this point he just wants to know what is going on. His scans showed no tumors. I am second guessing MS, as I know it can come and go. We just want answers and help for him. He's hardly able to work, even though he manages. We are awaiting a referral to a neurologist in a bigger city because the ones here kinda stink, so I am hoping that will result in something.
I am just looking for any information anyone may have. Searching has literally resulted in nothing except diabetic neuropathy which isn't the case!
Are there any other specialists you would recommend?
|