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  • Neuropathy help?

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    Old 07-30-2018, 12:34 PM   #1
    gabbygal
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    Neuropathy help?

    Anything that might help with neuropathy? Legs and feet are giving me a bad time here. I am older and this is due to chemo. from many years ago.Would like to discuss with anyone else dealing with this. thanks a bunch.
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    Old 11-15-2018, 08:42 PM   #2
    retired70
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    Re: Neuropathy help?

    I have had severe neuropathy that started in 1984 with a very severe ruptured disc. Either the rupture or the fallowing surgery damaged a nerve. Later I fell and damaged a vertebra in my lower neck. Doing a lot of research I learned that anybody with neuropathy needs a lot of vit B 1. Trouble is that b 1 is water soluble and most of it passes out of your body without being used. I found that there is now on the market a lipid soluble b 1 that is quickly utilized by the body. It is called Benfotiamine. I would suggest that you check into it. It keeps the pain away in my arms, but my legs were too far gone when I found out about it. I have hears that LDN has helped some but I can't find any information about it on the internet. Hop this helps.

     
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    Old 11-17-2018, 11:24 AM   #3
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    Re: Neuropathy help?

    Dear gabby,

    I'm moving up on 70 and have neuropathy in a wrist that had been broken and in one of my feet, due to the ankle having been badly broken. It's tough to deal with. Regular stretches seem to help the most, that and OTC pain medication and just walking. But that stresses all the other joints. For me it's always pain somewhere!
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    Old 11-17-2018, 01:37 PM   #4
    retired70
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    Re: Neuropathy help?

    When nothing else seems to deaden some of the pain in my feet, I use Aspercreme. It lasts for quite a while and can be reapplied. For me it does a remarkable job. I put it on my toes and ball of my feet before going to bed. That way I can at least get to sleep. The other thing that has helped me, as I posted before, Is Benfotiamine. It is a lipid soluble vitamin B 1. From what I have read people with nephropathy need a lot more of B 1. But regular B 1 is only water soluble and most of it just passes though the body and out. Benfotiamine is quickly absorbed by the body. It keeps the neuropathy in my arms under control. My legs were, evidently, too far gone for it to do much good, so right now I am taking LDN hoping that it will help.

     
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    Old 02-04-2019, 01:47 PM   #5
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    Re: Neuropathy help?

    Quote:
    Originally Posted by retired70 View Post
    When nothing else seems to deaden some of the pain in my feet, I use Aspercreme. It lasts for quite a while and can be reapplied. For me it does a remarkable job. I put it on my toes and ball of my feet before going to bed. That way I can at least get to sleep. The other thing that has helped me, as I posted before, Is Benfotiamine. It is a lipid soluble vitamin B 1. From what I have read people with nephropathy need a lot more of B 1. But regular B 1 is only water soluble and most of it just passes though the body and out. Benfotiamine is quickly absorbed by the body. It keeps the neuropathy in my arms under control. My legs were, evidently, too far gone for it to do much good, so right now I am taking LDN hoping that it will help.

    what is LDN
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    Old 02-04-2019, 03:35 PM   #6
    retired70
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    Re: Neuropathy help?

    Quote:
    Originally Posted by cocoa100 View Post
    what is LDN

    LDN is Low Dose Naltrexone 4.5 MG
    Just type in LDN on browser and you will find several pages about it. It helps on a lot of things but I can't find any information about helping trauma cause neuropathy
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    Old 02-04-2019, 06:08 PM   #7
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    Re: Neuropathy help?

    I have neuropathy from having Multiple Sclerosis and I take LDN. Low Dose Naltrexone is a drug which needs to be compounded at a pharmacy and prescribed by your neurologist or physician.
    It helps allot with neuropathic pain and with helping me relax. It has no side effects and is taken at night; it works with your REM sleep...Ive been on it for 10 years now and its one of the only things which helps.

    Talk to your doctor about it. It is gaining allot of press recently and more and more doctors are willing to try it! Its very inexpensive as well. I pay about 90$ for a 3 month supply! (Without insurance)

    Good luck!
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    Old 02-05-2019, 12:52 PM   #8
    cocoa100
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    Re: Neuropathy help?

    thanks for the information I was diagnose with Peripheral neuropathy about 5 or 6 yrs and this is the first I heard of this. will see what I can find out from doctor
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