It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Neuropathy Message Board

  • Sensory Neuropathy

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 01-25-2005, 03:17 PM   #1
    campus kat
    Newbie
    (female)
     
    campus kat's Avatar
     
    Join Date: Jan 2005
    Posts: 3
    campus kat HB User
    Question Sensory Neuropathy

    Today I was diagnosed with sensory neuropathy.
    I am searching for information on this condition.
    I am a new member here. Everyone here seems
    to be so supportive of one another. I would
    appreciate any input anyone has. I am a little
    frightened as the doctor said it was progressive.

     
    Sponsors Lightbulb
       
    Old 01-26-2005, 08:27 AM   #2
    cdh6663
    Junior Member
     
    cdh6663's Avatar
     
    Join Date: Mar 2004
    Location: Pittsburgh
    Posts: 41
    cdh6663 HB User
    Smile Re: Sensory Neuropathy

    Hi! What kind of doc told you you have this? In my opinion, you need to find a Neurologist that specializes in Neuropathy. That's first. Second, depending on what's causing the neuropathy determines the treatment. I had an MRI, EMG, X-Ray's, ton's of blood work, urine tests and genetic blood work. Unfortunatley with me they don't know what's causing it so my doc just treats the symptoms. I have sensory too. I've had it for about 4 years. I was a lot worse in the beginning. My Neurologist has me on 1800MG of Neurontin. I have some unpleasant side effects but nothing that would stop me from taking it. It helps alot. I go to Physical Therapy to keep my legs from getting stiff and to strengthen them. I also see a Chiropractor and an Acupuncturist. They are helping me slowly feel better and to walk ALOT better. So don't think their is nothing you can do for your discomfort. Please let me know more details about your condition. Charlene

     
    Old 01-29-2005, 08:21 PM   #3
    snowmelts
    Senior Veteran
    (female)
     
    snowmelts's Avatar
     
    Join Date: Nov 2003
    Location: Indiana, USA
    Posts: 691
    snowmelts HB User
    Re: Sensory Neuropathy

    Quote:
    Originally Posted by campus kat
    Today I was diagnosed with sensory neuropathy.
    I am searching for information on this condition.
    I am a new member here. Everyone here seems
    to be so supportive of one another. I would
    appreciate any input anyone has. I am a little
    frightened as the doctor said it was progressive.
    There are actually a lot of diff kinds of Neuropathy affecting diff body parts for diff reasons. you have to understand that "Neuropathy" is a word loosly used in describing symptoms of something wrong with the nerve. It's a symptom, not a disease! You must have your Dr find the CAUSE. You cannot cure the symptom untill you know what is causeing the symptom. Sadly there are hundreds of causes. They have never figured out what caused mine.

    What area of your body is affected? What sensations do you have?

    Here is some general Neuropathy info..you can copy paste the link.

    http://search.nlm.nih.gov/medlineplus/query?DISAMBIGUATION=true&FUNCTION=searc h&SERVER2=server2&SERVER1=server1&PARAME TER=Sensory+Neuropathy&x=34&y=3

    I have Sensory Axonial Pherphial Neruropathy. In laymen's terms this means it effects my limbs and I get the sensations cuz the axonal portion of the nerves is damaged. Noone has discovered the reason for my damage nerves. Had it since..umm 1992 or there abouts. I take Neurontin for it.

     
    Old 02-15-2005, 05:45 PM   #4
    campus kat
    Newbie
    (female)
     
    campus kat's Avatar
     
    Join Date: Jan 2005
    Posts: 3
    campus kat HB User
    Talking Re: Sensory Neuropathy

    Today my internal medicine doctor told me
    it is called polyneuropathy. I have burning
    and numbness and tingling in all limbs.
    Tommorrow I go back to the neurologist
    to see what the cause might be. I already had
    the nerve conduction study. Can you tell me
    what to expect as in how they determine what
    causes a particular neuropathy? Thanks Kat

    Last edited by campus kat; 02-15-2005 at 05:47 PM.

     
    Old 02-16-2005, 06:44 PM   #5
    CittyCat
    Inactive
    (female)
     
    Join Date: Nov 2004
    Location: So. California
    Posts: 119
    CittyCat HB User
    Re: Sensory Neuropathy

    Hi Kat,

    Some of the causes are: Lupas & Diabetas, go to the web sites Snowmelts suggested. All you have to do is type in Neuropathy in the search button and tons of info will come up. I to have Cryptogenic Neuropathy (no known cause). Stress is a major factor in the progression of the condition. I've been out of work since Oct due to the stress factor and the Neuropathy. I have several different areas of pain. Today it's my feet, and my scalp tingles. My Dr. tells me it isn't serious, I believe in him.

    I do yoga to stay limber and play golf to stay sane. I also take Neurontine pluse some anti depressants.

    Your not alone, we're here for your in any way we can!

    Sincerely,
    Cathy

     
    Old 02-16-2005, 09:20 PM   #6
    campus kat
    Newbie
    (female)
     
    campus kat's Avatar
     
    Join Date: Jan 2005
    Posts: 3
    campus kat HB User
    Cool Re: Sensory Neuropathy

    You are all too kind! It is 11:00 p.m. and
    still cannot sleep. This completely over-
    whelmes me at times. In 2000, I had
    brain surgery due to a burst aneurysm.
    I still have a tiny berry aneurysm, that
    I will have to deal with in the future.

    Today at the neurologist, I had bloodwork
    done and also an EEG. Monday, I have to
    have a carotid doppler. They have started
    me on Paxil. I try to walk on pretty days.
    I am on Disability due to the brain surgery.
    I still miss my work in healthcare. I am so
    grateful for having a place to go and just
    talk to people who REALLY UNDERSTAND!!!
    I am usually an upbeat person, but tonight
    I long to talk to someone. Thank you for
    listening! Katrina

    Last edited by campus kat; 02-16-2005 at 09:21 PM.

     
    Old 02-17-2005, 09:40 AM   #7
    snowmelts
    Senior Veteran
    (female)
     
    snowmelts's Avatar
     
    Join Date: Nov 2003
    Location: Indiana, USA
    Posts: 691
    snowmelts HB User
    Re: Sensory Neuropathy

    Yep.. listening is part of what we are all here for.
    We need each other.
    The rest of the world simply does not understand the neuropathy problem..and we NEED to talk to others that do.
    I too am grateful for the boards and the ability to "get it off my chest" some days.

     
    Old 02-17-2005, 04:14 PM   #8
    CittyCat
    Inactive
    (female)
     
    Join Date: Nov 2004
    Location: So. California
    Posts: 119
    CittyCat HB User
    Re: Sensory Neuropathy

    Katrina,
    You sure do have a lot on your plate. It's hard to tell people to keep up their spirts at times I know. Just put it on the board and we'll read it even if we don't give a quick responce.
    Truly,
    Cathy

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Best doctor for small fiber sensory neuropathy at Johns Hopkins Dreana123 Neuropathy 1 05-25-2011 04:53 AM
    Motor vs sensory stargrave Neuropathy 7 03-15-2010 10:34 AM
    Shock feeling throughout most of my body adarnell Brain & Nervous System Disorders 6 04-11-2008 02:24 AM
    Substantial sensory neuropathy ToniaP Cancer: Colon 30 03-07-2006 05:23 PM
    A simple at home test for sensory neuropathy,that you can do, OTabby Neuropathy 23 09-22-2005 10:30 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 03:20 AM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!