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cream9518 04-09-2008 02:02 PM

I have been diagnosed with PN a year ago and have been taking lyrica. Started with burning feet. That has gone away and have been having burning and numbness of ankles and going up my legs. Neurologist has recommended 100mgs morning and night which is an eight hour interval. Higher doses of lyrica were not doing the trick. My next appointment is in four months and wondering what else will I have to endure.

Aussie100 04-10-2008 12:20 PM

Re: neuropathy
Hi, i had very similar symptoms to yours, but i am wondering if the reason has been discovered yet by your neuro, have you had many tests to try to find the cause of the nerve damage ?

cream9518 04-11-2008 07:41 AM

Re: neuropathy
Dear Aussie, Thank you for your interest and have sympathy for you. No rason for PN was given by my neuro. Asked him if it could be from a degenarated cervical disc that was diagnosed three years ago and the no answer was given.

Aussie100 04-12-2008 05:02 PM

Re: neuropathy
Hi Cream9518, unfortunately there is a lot of neurologist out there that are very slack in trying to find the actual cause of nerve damage, they do the very basic tests and then if nothing is found they will only treat the pain and let the condition worsen, THEY SHOULD refer to neuro's that specialize in Neuropathy as it is a specialized field, they will give the patient the best chance of finding the cause.

Thanks, but i am nearly cured of my PN, thank god, but before finding a proper PN specialist, i was mucked around by so many neuro's that didn't know much at all about PN & one neuro didn't even know what tests revealed what nerves were involved, it was unreal and very disappointing in the beginning, don't get me wrong though, there are some very good neuro's out there but they seem to be few and far between in my experience.

I am not a doctor but have done a lot of research into PN, in what i have read usually any cervical pressure on the spinal cord will affect the upper extremities and lower back will affect the legs, but it is not entirely impossible for cervical problems to affect the lower extremities, but there is so many reasons its mind boggling, many tests can be done by blood and urine tests. best of luck anyway,
Ausssie :)

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