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SFN Progression is frustrating

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Old 09-10-2008, 08:51 AM   #1
Join Date: Aug 2008
Location: arizona
Posts: 3
jsrail HB User
SFN Progression is frustrating

In the past 3 weeks, the SFN in my hands has seemed to progress from just the hands, to above the elbows. though the buring and tingling is minor compared to my hands, I assume this is because your hands are more active. I now wear a soft, lined pair of gloves to helps a small bit. The tips of my fingers seemed to hurt worse than before, and I work on a computer all day. At night, sometimes it begins to be uncomfortable to have the sheets laying across my lower legs, but not all the time. But the tingling is creeping up my shins and calves.

Now the neuro wanted to change my prescription to Lyrica (2700mg) and Oxycontin (40-60mg), but the insurance company says they won't pay for those and wants me to use Nuerontin, which I am on now and is not working enough (hence, why he wants to change it); and replace the Oxycontin, but don't say with what! The nurse at my neuro is going to call them and see what she can do, but man, it is friggin' a drag to deal with these people. I don't know if it helps for me to call them, I've always let the doc's folks do it in the past.

I am so ticked right now, it is difficult to work (even typing this message), stand , sit or anything. Laying in bed on my side is the only position that lessens the pain. I am not one to stay in bed all day, geez, I'm only 46! I don't want to stop working and can't afford to. I would lose my house if that happens.

Just had to rant a bit........


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Old 09-30-2008, 11:46 PM   #2
Join Date: Sep 2008
Location: Sierra Madre, CA, USA
Posts: 3
pricklybarb HB User
Re: SFN Progression is frustrating

Preaching to the choir! I've been off work since my coworkers kicked me out....doped up on lyrica and klonopin....Now disability cut me off...can't live on mac n cheese 'cause i'm recently diagnosed diabetic (3 months) but neuropathy started 2 and a half years ago! Neuropathy pricklies have invaded my entire body, with large electric worms burrowing through my back instead of the 400mg lyrica, I'm on 2400mg neurontin, which isn't quite doing the trick.
i read that if this is diabetic neuropathy, it will get worse for 6-9 months before getting better....if it is going to heal. Oh well, I hated working for my supervisor and blamed job stress for much of my physical issues. I'm much happier not working for her....but it really sucks to be poor and isolated at home.
ok, so the last 900mg of neurontin is kicking in and i'm getting dopey and whining.
parts of my life are great. parts of my life really suck. I need to balance the parts.

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