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Random Nerve Pain

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Old 06-18-2009, 07:35 AM   #1
Join Date: Jun 2009
Location: Massachusetts
Posts: 3
CMT44 HB User
Random Nerve Pain


I'm hoping someone can help me with the symptoms I'm experiencing. I've been having random shooting nerve pain for almost 2 years now. It has gotten much worse over the last 6-8 months. The pain is not constantly there, but comes randomly, anywhere on my body and last just a few seconds. But, when it comes, it is sometimes very intense and sends a wave through my entire body. Overall, I have some days where I experience over 30 zaps in a day, maybe more. They almost feel electrical in nature. Also, when I'm active and/or busy, they are much less frequent. A couple more things...i get them while sleeping (but more so upon first waking up) and they are much more frequent after lunch. My job involves sitting at the desk for extended periods, which is the time when I seem to notice them more.

I have talked with doctor about it who eventually referred me to a neurologist. The neuro really didn't know what it was. They decided to do a brain MRI and other tests, which all came back normal.

Overall, i'm a very healthy guy, 30 years old, 6'3, 210 lbs. I played collegiate basketball and played professionally in Europe. I continue exercising to this day. My body feels okay, otherwise. I don't have any muscle weakness or anything like that.

Other medical issues: I have sufferered from anxiety in the past and high stress over the years. I have never taken any medication for this, though my brother and cousins do take anti-anxiety medications. I also have had twitching in eyelids and other places in body. My only other condition that may have a relation is that I suffer from acid-reflux. I do take prilosec semi-regularly which helps.

I look forward to hearing from people.

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Old 06-19-2009, 07:46 AM   #2
Join Date: Feb 2008
Location: Massachusetts,USA
Posts: 72
steve63 HB Usersteve63 HB User
Re: Random Nerve Pain

Hi there,

I'm a 46 yr old male. I've had the same exact thing going on with me for over seven years. I've been to numerous docs. My symptoms started right after a bad flu which came on the heels of a very stressful period in my life. Same exact symtoms as you... random nerve firings everywhere...pain is like that of when a dentist hits the nerve of a tooth that hasn't been numbed. I also get the electric shocks and the muscle twitching too. At first my neurologist said I had some type of post viral syndrome. Then he referred me to another doc who diagnosed me with fibromyalgia. I'm still skeptical of that diagnosis since I don't fit the classic definition of fibro. But my rheumatologist says that men with fibro typically present with atypical symptoms. Bottom docs don't really know for sure what's going on. My neuro says that basically my nervous system has become hypersensitized (possibly permanently) thanks to that combination of post viral infection and stress.

Basically I deal with the symptoms with meds. First I was on Klonopin but that created more problems than in solved so I eventually got off it. I've tried various other drugs but have had lots of problems with side effects. Right now I'm relying on Neurontin and Tramadol to keep the pain under control. I doubt I could even function now without them. (My condition is now complicated by disc problems in my lower back).

The only other thing I would suggest to you is to get tested for Lyme's disease. Although I was tested and it came back negative, the symptoms we both have are very typical of Lyme's disease.

Please let me know if you have any success obtaining a diagnosis since I've pretty much given up on that.

Old 06-23-2009, 04:13 PM   #3
Join Date: Jun 2009
Location: Massachusetts
Posts: 3
CMT44 HB User
Re: Random Nerve Pain

It's funny you say that about Lyme disease, because other people have also recommended that I get tested - people I trust who work in healthcare settings.

You say that your Lyme test came back negative, but i've heard that MOST lyme test do come back negative and the negative test means nothing at all. Did you see a lyme specialist?

I'm going to try and find a specialist for an appointment.

I really don't think it's stress related. Whether i'm stressed or not the symptoms continue on. I also don't want to try other meds like you've tried, because of the side-effects.

* link to commercial website, and website information, removed by hb-mod, moderator *

Hope we can figure this out!

Last edited by hb-mod; 06-23-2009 at 04:32 PM. Reason: Please don't post links and/or information regarding commercial websites as per Posting Policy. Thanks.

Old 01-18-2011, 02:25 AM   #4
Join Date: Jan 2011
Location: Australia
Posts: 1
ASS123 HB User
Re: Random Nerve Pain

I have exactly the same symptom as you guys describe. I have had this for about 2 months, it got intense since about 2 weeks ago. I saw the neruologist today and he basically said he has seen patients with my symptoms before. it is not neuropath, not MS. This is undiagnosed and there is nothing he can do.

Obviously I am devastated by the visit. Reading you guys have been suffering these symptoms for years put me in tears again. My face got numb this morning after throbbing pains, Although the numbness has subsided a bit..I am very concerned and upset. As I don't know what the future holds for me..

Old 04-27-2011, 04:39 PM   #5
Join Date: Apr 2011
Location: Boise, ID, U.S.
Posts: 1
Jurmed HB User
Re: Random Nerve Pain

My symptoms are similar: itching, nerve pain, sometimes like a niacin flush, all over my body. I've had them for about 2 weeks. However, it is hasn't reached an intolerable level yet. It's mostly just a nuisance. If it gets worse, I will probably resort to homeopathy, since traditional medicine doesn't seem to have helped those that have posted to this forum. I have had success with homeopathy in treating athsma and warts. It's a good option when the cause seems to be undiscoverable, because it matches remedies to symptoms, and does not require the cause to be known.

Old 05-01-2011, 09:57 AM   #6
Senior Member
Join Date: May 2005
Location: Florida
Posts: 161
suncat HB User
Re: Random Nerve Pain

I have the same symptoms though mine originally started in the pelvic and bladder area. I've been suffering since 2003. Tried all kind of treatments, meds, etc. The nerves are hypersensitized and it becomes a disease in itself. I have chronic pain. Was told it was fibromyalgia and interstitial cystitis though not completely convinced. I was bit by a tick in 2002 when living in Missouri but didn't have any symptoms until 2003.
I agree with the others, having a lymes test would be beneficial to rule out all possible causes. The only true gold standard lab for undergoing testing is IgeneX. Look them up on their website. I'm going to have my physician order the testing to get some peace of mind. Best of luck to you. Continue to ask questions, research and never give up.

Old 05-01-2011, 05:25 PM   #7
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Location: Morongo Valley, CA
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Ruby8 HB UserRuby8 HB UserRuby8 HB UserRuby8 HB UserRuby8 HB UserRuby8 HB UserRuby8 HB User
Re: Random Nerve Pain

Those who are experiencing muscle twitching and random electric-type pain may want to investigate small fiber neuropathy (SFN). I had the muscle twitching when I was in my 30s and was told it was benign. Then in my 40s and 50s I commonly experienced electric shocks like a nerve was being tweaked. Usually these would come frequently for a few days in the same spot and then disappear. Never saw a doctor about that. Then at age 65 I started having numbness in toes and fingers. The neurologist thought I was nuts initially because SFN does not show up on the nerve conduction and muscle tests they use to diagnose most neuropathies, and neurologists don't often run across this uncommon neuropathy. It was the posts on this board that finally enabled me to figure out my condition and convince my neurologist that I did have a real condition. In retrospect, I look back on the twitching and electric pains and feel they were early signs. Good luck to all. - Ruby

Old 07-19-2011, 02:40 AM   #8
Join Date: Jul 2011
Location: GB
Posts: 1
InversionDude HB User
Re: Random Nerve Pain

I too have these random electric shocks in all areas of my body. I recently started getting them in my eyes. It was the most severe and shocking pain for a split second and felt like I had stuck a needle in my eye ball. Fleeting but so painful. I get these pains all over my body, big toe to top of my head. Doctors have no clue, it's like trying to find a needle in a haystack. My 24 year old daughter has just told me that she is also suffering on occasions with the same problem. Does anyone get two 'shocks' at the same time in different places of the body?

Old 07-19-2011, 08:11 AM   #9
Join Date: Apr 2011
Location: Phoenix, AZ
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RisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB User
Re: Random Nerve Pain

I got diagnosed w/PN in 07...started w/sore feet..then numb feet w/twitching in my thighs..then the pains and zaps in my feet and was starting to go up my calfs...after a while affected my pain is from mid calf to toes and from fingertips to wrists.

I've seen 4 Neurologists and had too many zap tests...many many blood tests...spinal tap and they removed some of my left ankle nerve..and still have no idea why I have this condition.

My suggestion is to see a good Neurologist, get some tests and hope they can find out what you have/why so they can treat you.

Hope you all have a great day.

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