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    Old 10-09-2009, 05:29 PM   #1
    minayun
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    help for my neuropathy

    i have diabetes and have been having horrible nerve pain in my feet. Burning and cramping, tingling...i've tried so many different meds and they do not work. I've now been on lyrica and cymbalta for months now. I just had problems with kidney stones and was prescribed vicodin and was taking them for about a month off and on. When I took the vicodin my nerve pain totally went away. I mentioned this to my neurologist when i was just there a few days ago but she said nothing. If i found something that actually works and takes the pain away why didn't she just give me the vicodin? Can someone please tell me how i can get my doctor or another doctor to give me this pain medicine or something like it? I've tried everything and nothing works. This pain is killing me and is making me very depressed. I can't get any sleep and am in pain all the time, especially at night. Please someone give me some adivce.

     
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    Old 10-09-2009, 05:40 PM   #2
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    Re: help for my neuropathy

    You should try going to a pain specialist.

     
    Old 10-09-2009, 07:07 PM   #3
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    Re: help for my neuropathy

    The other post is right on the money. You absolutely need to go to pain management. Its about the only Doctors nowadays that will prescribe the meds you are referring too. Its all about law suits and dealing with the DEA and other issues. Prescribing heavy pain meds bring with it many potential problems for doctors and that is why when you look in the phone book of a large town under physicians you wont see many pain specialist. Its not because its harder to achieve than other specialties, its because there are many headaches and more risks for the doctor. Most pain specialists in my area are anesthesiologists with a little extra training. All that stuff aside, the pain specialist is who you need to see if that's type of meds which helps you. You do need to know that most of these med are highly addictive but if that's what helps take your pain level down and helps make your life a little more normal then its a no brain er for me. Good luck finding the right doctor because that's what you need is the RIGHT DOCTOR.

     
    Old 10-10-2009, 11:34 AM   #4
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    Re: help for my neuropathy

    Hi, two supplements that have been helpfull for diabetic neuropathy patients are Alpha lipoic acid or the newer stronger version R lipoic acid & [GLA] Gamma-linolenic acid at 480 mg daily, if interested just be carefull with lipoic acid as it can lower blood sugars, of course if you can get your blood sugars down to as close as normal ranges this will will help the most.
    If you are diabetic 2 and take metformin, I would also really consider taken B12 methylcobalamin [ 1 -5 mg daily] as well, as the metformin depletes b12 levels which is critical for nerve health.
    I agree with the previous posters that you certainly do need the proper pain medication to give you back some quality of life, I have been there myself and know how awfull nerve pain can be.

    best of luck to you
    Aussie

     
    Old 10-11-2009, 06:36 AM   #5
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    Re: help for my neuropathy

    Quote:
    Originally Posted by captinsane1 View Post
    The other post is right on the money. You absolutely need to go to pain management. Its about the only Doctors nowadays that will prescribe the meds you are referring too. Its all about law suits and dealing with the DEA and other issues. Prescribing heavy pain meds bring with it many potential problems for doctors and that is why when you look in the phone book of a large town under physicians you wont see many pain specialist. Its not because its harder to achieve than other specialties, its because there are many headaches and more risks for the doctor. Most pain specialists in my area are anesthesiologists with a little extra training. All that stuff aside, the pain specialist is who you need to see if that's type of meds which helps you. You do need to know that most of these med are highly addictive but if that's what helps take your pain level down and helps make your life a little more normal then its a no brain er for me. Good luck finding the right doctor because that's what you need is the RIGHT DOCTOR.
    Well unfortunately it's the only thing thats helped me so far. It doesn't bother me a whole lot during the day because i'm busy and it kind of takes my mind off the pain. I would only need to take like one pill a night, when it really is bothering me. So...if they don't have them in the phone book, how do I find a pain specialist? I guess I will try to google it online and see what comes up but if you have any info you can give me on how to find one please let me know.
    Thank you so much!
    Rhonda

     
    Old 10-11-2009, 06:42 AM   #6
    minayun
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    Re: help for my neuropathy

    Quote:
    Originally Posted by Aussie100 View Post
    Hi, two supplements that have been helpfull for diabetic neuropathy patients are Alpha lipoic acid or the newer stronger version R lipoic acid & [GLA] Gamma-linolenic acid at 480 mg daily, if interested just be carefull with lipoic acid as it can lower blood sugars, of course if you can get your blood sugars down to as close as normal ranges this will will help the most.
    If you are diabetic 2 and take metformin, I would also really consider taken B12 methylcobalamin [ 1 -5 mg daily] as well, as the metformin depletes b12 levels which is critical for nerve health.
    I agree with the previous posters that you certainly do need the proper pain medication to give you back some quality of life, I have been there myself and know how awfull nerve pain can be.

    best of luck to you
    Aussie
    Thank you so much for the information. My neurologist just tested me last week to check my B12 levels, so I will find out during this next week what they are. She said if it was low then I would be taking B12 injections for a bit. If that's the problem, I do hope it helps!
    Rhonda

     
    Old 10-11-2009, 12:04 PM   #7
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    Re: help for my neuropathy

    Please keep in mind that a serum b12 test only shows what is floating around in the blood at the time of testing, not what is in the cells were it counts, a score of below 500 is suspect to deficiency according by the japanese neuropathy experts, our values for normal are extreemly low which many believe that it should be updated, I personally like my b12 levels around 1500 - 2000, there are no toxic levels even in mega doses of B12 methylcobalamin, which is the active form of b12 that goes to work straight away unlike b12 cynocobalamin it has to be converted by our livers to get the active form, then only getting very small amounts of the active stuff, it still works but takes ages to build up a good supply.
    Both high and low blood sugars damage the nerves, so it is very important to have normal blood sugars to give the nerves a chance to heal, it is a very slow process though.

     
    Old 10-11-2009, 06:39 PM   #8
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    Re: help for my neuropathy

    Look under the general heading of PHYSICIANS and they should break it down by specialists. Look for the heading of Pain Management. If your town is not fairly larger there is a good chance you may not have one. I would suggest looking too the largest town near you and check their listings. If you could post on here the name of a large city near you someone on here might suggest a good one. You not only need to find one but you also need to find a good one.

     
    Old 10-27-2009, 08:28 AM   #9
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    Re: help for my neuropathy

    Alpha Lipoic acid really works, 300MG a day to heal nerve damage . I got rid of my feet lightening strikes ouch

     
    Old 10-28-2009, 12:41 AM   #10
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    Re: help for my neuropathy

    okay well i was just waiting to get the results back for my B12 test and she said it was normal...so i will definitly try the alpha lipoic acid. Hmm i wonder if you can just buy it at walmart?? i really hope it helps me! oh and to the other reply i did find a pain managment place here but you have to have a referral from a specialist. I wonder if my neurologist would refer me...she's not really doing too much to help me right now. she did do a nerve conductor test and it did show i have permanent nerve damage. She only upped my dose of lyrica and it's not helping me, in face the pain has gotten worse in my legs now, still in my feet, of course and my hands are starting to tingle and hurt. My next appt with her isn't until feb. but i'm positive i wont be able to wait till then. Oh and is there a certain brand of the Alpha Lipoic acid that you get?
    thanks so much.

     
    Old 10-28-2009, 06:48 AM   #11
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    Re: help for my neuropathy

    Rob

    How long did you take the Alpha Lipoic Acid 300 mg before it started helping with your nerve damage? I have nerve damage from a morton's neuroma foot surgery and am wondering if this would help me? Actually I have scar tissue rubbing against nerve that is causing me problems.

    Last edited by Dancinboots; 10-28-2009 at 06:49 AM.

     
    Old 11-04-2009, 10:17 PM   #12
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    Re: help for my neuropathy

    I have terrible pain also. from spinal stenosis and also terrible pain in my feet. So bad I dread walking. Long strory short I went to pain management doc for the back pain and asked for pain pills. First one worked bit not that well, he then gave me vicodens not only does it help with back pain guess what relief from my foot pain. He just gave me Lyrica for foot pain, it works somewhat but along with the vicoden its wonderful GO TO A PAIN CLINIC> It s what they do,

     
    Old 11-15-2009, 05:07 AM   #13
    Rob Norman
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    Re: help for my neuropathy

    :wav e:

    As AUSSIE and I said , buy and take Alpha Lapoic-Acid (Swanson's on line prices are great) , The study folks took 300 MG a day for months and their damaged nerves actually healed ! Neuropathy in the extremities went away too. Nothing to lose by trying.

     
    Old 11-15-2009, 07:01 AM   #14
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    Re: help for my neuropathy

    ROB

    How much Alpha Lipoic Acid do you take and how long before you started noticing an improvement?? What kind of nerve problem are you treating? Mine is from a foot surgery in 2008. What I have is scar tissue rubbing against a nerve. Very very annoying to say the least.

    Sharon

     
    Old 11-16-2009, 04:11 AM   #15
    Rob Norman
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    Smile Re: help for my neuropathy

    [QUOTE=Dancinboots;4123941]ROB

    How much Alpha Lipoic Acid do you take and how long before you started noticing an improvement?? What kind of nerve problem are you treating? Mine is from a foot surgery in 2008. What I have is scar tissue rubbing against a nerve. Very very annoying to say the least.

    Sharon

    Take 300 MG a day and just keep taking it and don't stop ever

    I had similar scar nerve problems after foot surgery , only Pro-Lo injections to the injury site worked for me. This procedure re-heals all the tissues in the correct directions; I got complete relief (three injections over 3 mo.s)

     
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