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best meds for nerve pain

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Old 10-02-2003, 06:47 PM   #1
Join Date: Sep 2003
Location: Pi
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momofsix HB User
Post best meds for nerve pain

I would like to have opinions about what meds have worked best for nerve pain with the fewest side effects. I'm just starting out, and there are so many to choose from. Where do I begin?


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Old 10-02-2003, 07:58 PM   #2
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Location: Burbank, CA USA
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cbjordan HB User

I've been taking neurontin since April when I was first diagnosed. Many say that it makes you gain weight, but I haven't yet and it really does help with the horrible pain in the feet, I couldn't get along without it. I take 1800 mgs. per day.


Old 10-02-2003, 08:18 PM   #3
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Location: Oh
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dwpavlik HB User

There are a lot of signal blockers to use for pain control of nerve related discomfort. Please be aware that all signal blockers are potentially dangerous to the body. To make sure you can handle a particular medication, read the insert and check out the side affects of every one you are given. I gained 100 pounds on these meds. I am not on any of these poisons any, more I am on real pain meds. There was a commercial on TV this week announcing that Neurontin could possibly cause suicide in users.
Any of the meds could work well for you, just make sure it is safe for your body and the side affects are safe for you, as well. Please be cautious. They can be safe. But we need to look out for ourselves with meds.

Old 10-03-2003, 04:02 PM   #4
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Iam2boysMom HB User

Hi Linda,

When I first started my whole process back in Sept I started out with Nuerontin that has helped me with the burning pain and the nerve jerking pain but I am now on 1200mg 3 times a day, Nortriptyline 75mg has helped with the sensitivity and the problems I had with sleeping at night, and now I have just started on Topamax 25mg I am up to 4 a night and I will eventually make my way up to 8 pills a day. I am down to pain levels of only 2-3 for the most part with the occassional high of 6-7 where I was at 1 time at leves of 9-10 and beyond all day long.

I have been Diagnosed with Peripheral Neroapathy and also have RSD in both feet.

It has taked over a year to decide what works for me. Good Luck.


Old 10-25-2003, 03:38 PM   #5
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Join Date: Oct 2003
Location: vine grove ky united states
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rita52 HB User

Patty, My dr is working with me on this escalating dose of topomax but its the same dr that a few months ago put me on an escalating dose of a med called cogentin and I had such a severe side effect that I went physotic and this dr that prescribes this is out of this area and the local hospital was to stupid to call and ask what to do so i almost died from the reaction, so of course i am scared to death, did you have any problem with the topomax? Any help would be greatly appreciated Thanks Rita

Old 10-26-2003, 07:58 AM   #6
Join Date: Aug 2003
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dwpavlik HB User

Here is a write up on topamax. It does not mention pain relief as a description for the drug. Also read the interaction and side affects section. [url="Http://"]Http://[/url]
Hope this helps. I have never gained from taking seizure drugs for pain. Could be just me. Please stay informed.

Old 10-27-2003, 08:56 AM   #7
Join Date: Sep 2003
Location: Hesperia, Ca USA
Posts: 53
toody64 HB User

We are within 2o miles of the fires of the San Bernardino County fires in California. Devastating conditiond here. Now for your concerns. From what I am seeing on this site it seems Neurontin is the one prescribed the most and with success. My Doctor gave it to me but within days It made me so sick I had to discontinue its use, but then 4 others reacted the same way. I am now taking Lamictal and Zonegran these seem to be the only ones that I do not have a reaction to. On the other hand I still experience so much pain I have thoughts of suicide. I am confident it is not due to the medication as I also suffer from deep depression anxiety and Panic attacts and tried suicide once before. I really do not want to die but at this point I can not take this continual pain!!!!!!It's a relief to be able to vent our feelings here as disturbing as they may be.
I hope the best for you.

Hazel M Serrano

Old 10-27-2003, 04:54 PM   #8
Join Date: Aug 2003
Location: Oh
Posts: 307
dwpavlik HB User

I hope your home and family and friends are far enough from the fires that you all will be safe from the devastation. I used to live out there. It can be dangerous. I lived in Altadena, 1 mile from the Marx Brothers House. The fires from Mt Wilson got pretty bad one summer.
As I have mentioned with the Signal blockers. Some can work well with some people. But they have very differing side affects that we need to read each one and be cautious with taking them. Some may work very well for us, but others can be very bad with making us feel ill and panicky. Please check the interactions with the other meds you are taking and also each medications side affects list. I went through this for many years and was put on every one that existed for a period of 6 years. My neurologist took good care of me but many had violent reactions on me. Take care, Stay informed. We are here behind you. Hope you do not have to move away form the fires.

Old 11-16-2003, 05:02 PM   #9
Join Date: Apr 2001
Location: Perry, OK, USA
Posts: 4
blueangl HB User
Medications that work for me

In August 2002, I was at the National Institute of Health (NIH) in Bethesda, Maryland for some tests on an adrenal tumor. While there, my physician saw how bad things were with my arm, shoulder, hand, fingers, hip, leg and foot, and he agreed to let me be seen by several Pain Specialists and also the Rehab Services. With my hip leg and foot issues they were concerned that I might also have RSD or CIDP. They attempted a "Brachial Plexus Block", but it did not work. They tried me on several medications, and finally, the doctor there set me up on the following: 900 mg tid Neurontin, Xanax, Alora 0.1 mg/24h patch, Sennoside, Valium, Trillisate 500 mg, MS Contin, and Oramorph for any break-through pain.

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