Pn pain driving me crazy !!!!

lvp714

I was diagnosed with severe sensori-motor peripheral Neuropathy in August 2010. I had started complaining about leg and foot pain since 2006 and to make my nightmare short, I had a total knee replacement in November 2008 on my right knee. Then after that didn't help with my pain in I had a total knee replacement done for my left knee in January 2010. After having all that done along with Physical Therapy I was told by my Orthopedic Surgeon that I shouldn't be in pain and that I need to go and just take my time, live my life and I'll be fine. Well the pain I was experiencing in my legs and numbing in my feet caused me to seek a second opinion, at the New England Baptist Hospital in Boston. The doctor I saw gave me an examination and performed a EMG which confirmed that I had severe PN for the last several years and that the damage that had been done can not be repaired and that it it's unfortunate that my Doctors had missed this disease. He also told me to see a Neurologist as soon as possible and was put on Gabapentin.
So as of August 2010 I have been taking 600 mgs of Gabapenten, that helped for a few months for my feet numbing, but the pain increased. I am now taking 800 mgs 3 times a day of Gabapenten that helps somewhat but can't walk without pain. I also have pins and tingling in both arms and hands and shooting pain in thighs. My Doctor just added Zonegran I have to take 25 mgs 2 times a day then after 5 days increase 50 mgs a day every 5 days until I reach 200 mgs a day. I'm on day 10 and having very bad side effects but can't stop until I see doctor and I'm really tired of trying these stupid meds that cause more problems and don't help the pain, why don't the Doctors prescribe pain meds that I have been reading about that really help people with pain. My quality of life SUCKS I can't bend down with my knees or walk my dog. The state has listed and sends me a monthly SSDI check for being disabled. I'm only 54 years old and would like to get out of my recliner and play with with my grand kids and also I would like to be somewhat pain free in August to celebrate my 30 year marriage.
Please if anyone has any suggestions on what combination of meds that could help,please post. I'm really starting to lose it.