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  • EMG diagnosis - insights?

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    Old 10-13-2011, 01:17 PM   #1
    Danno39
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    EMG diagnosis - insights?

    Hi folks! I had an EMG last week, have a detailed report, but won't get to follow up with my neurologist for a 1.5 weeks. So, I am wondering if anyone has insight into, and/or experience working through, a diagnosis similar to mine:

    "IMPRESSION: The present findings are diagnostic of a mild to moderate, relatively symmetrical, chronic, axonal and demyelinating, sensorimotor polyneuropathy."

    From what I've gleaned online, this involves systemic nerve damage, both sensory and motor, to nerve cells, nerve fibers (axons), and nerve coverings (myelin sheath). I'd be interested to know what/any follow-up tests are likely to ensue, likely treatment, etc, from anyone's experience. I found some info on Chronic inflammatory demyelinating polyneuropathy (CIDP), and am wondering if that's at all likely.

    A rheumatologist recently tested for possible autoimmune issues (ANA, ANCA, ACE, RF, CCP, ESR, CRP, SPEP, HLA-B27, Hep C, and celiac serologies) and only the ESR was somewhat but not greatly out of range. An EEG and brain MRI were normal.

    A little background: for about 6 months, I've been experiencing very disconcerting and often debilitating fatigue, dizziness, imablance, shakiness, disorientation, weakness (rubbery and buckling knees), poor memory, focus, and concentration, with some difficulty walking. Over this time, I've seen lots of specialists: ENT, sleep, endocrine, infectious diseases, neuro, rheum. Discovered a sleep apnea issue which is being controlled well for some time (according to tests, though no help at all with symptoms) with CPAP, and have some slight unilateral weakness in one ear. If you can think of a test, I've probably had it (and if I can ever find the energy to sort through the numerous bills, I'll pay them). Pending the neuro's tests, the rheumy was preparing to diagnose with chronic fatigue and/or fibromyalgia (don't know how the EMG result will affect this), though says the treatment of such diagnoses, at least in men, is virtually always sleep-related (and my sleep dr. says I'm doing well there).

    Anyhow, can't get an earlier neuro follow-up appt, and he hasn't called me. Just really interested in where the EMG follow-up might lead, and -- crazy as it sounds -- almost hope that its findings are serious enough to explain a very very difficult past year. Thanks for reading this, and I'd really appreciate anyone's insights.

    Thanks! D

     
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    Old 10-13-2011, 03:02 PM   #2
    sleepytee
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    Re: EMG diagnosis - insights?

    Quote:
    Originally Posted by Danno39 View Post
    Hi folks! I had an EMG last week, have a detailed report, but won't get to follow up with my neurologist for a 1.5 weeks. So, I am wondering if anyone has insight into, and/or experience working through, a diagnosis similar to mine:

    "IMPRESSION: The present findings are diagnostic of a mild to moderate, relatively symmetrical, chronic, axonal and demyelinating, sensorimotor polyneuropathy."

    From what I've gleaned online, this involves systemic nerve damage, both sensory and motor, to nerve cells, nerve fibers (axons), and nerve coverings (myelin sheath). I'd be interested to know what/any follow-up tests are likely to ensue, likely treatment, etc, from anyone's experience. I found some info on Chronic inflammatory demyelinating polyneuropathy (CIDP), and am wondering if that's at all likely.

    A rheumatologist recently tested for possible autoimmune issues (ANA, ANCA, ACE, RF, CCP, ESR, CRP, SPEP, HLA-B27, Hep C, and celiac serologies) and only the ESR was somewhat but not greatly out of range. An EEG and brain MRI were normal.

    A little background: for about 6 months, I've been experiencing very disconcerting and often debilitating fatigue, dizziness, imablance, shakiness, disorientation, weakness (rubbery and buckling knees), poor memory, focus, and concentration, with some difficulty walking. Over this time, I've seen lots of specialists: ENT, sleep, endocrine, infectious diseases, neuro, rheum. Discovered a sleep apnea issue which is being controlled well for some time (according to tests, though no help at all with symptoms) with CPAP, and have some slight unilateral weakness in one ear. If you can think of a test, I've probably had it (and if I can ever find the energy to sort through the numerous bills, I'll pay them). Pending the neuro's tests, the rheumy was preparing to diagnose with chronic fatigue and/or fibromyalgia (don't know how the EMG result will affect this), though says the treatment of such diagnoses, at least in men, is virtually always sleep-related (and my sleep dr. says I'm doing well there).

    Anyhow, can't get an earlier neuro follow-up appt, and he hasn't called me. Just really interested in where the EMG follow-up might lead, and -- crazy as it sounds -- almost hope that its findings are serious enough to explain a very very difficult past year. Thanks for reading this, and I'd really appreciate anyone's insights.

    Thanks! D
    Hi D,
    I have very similar situation as yours and have been trying to find clues on and off for years. As you will see on these boards, there are many of us looking for clues; and no matter the topic MANY similarities. I noticed last night the CDC had a link to "unanswered health problems", but they were "full" and were no longer accepting any info. I bet 90% of them were for answers to: Chronic Fatigue & Fibromyalgia which often results in Deblilitaing Fatigue and Major Depression. So, I say to you....GOOD JOB...you are out there trying and keep up. Some of our differences is I have tested possitive for Lyme Disease, but have not gone to an ENT. I didn't remember the CIDP you mentioned, got excited to learn another clue and I looked it up. I had forgotten I had had a nerve conduction test that came out "normal" years ago, maybe there's been changes for me and another will have diff results. In reading this CIDP info online, there seems to be a link to what I am beginning to be the TRUE link to it all, for me at least. Because some people that are as sick as I am, don't have it. It is Low Blood Pressure and Low Blood Volume. When your doctors say you are "normal", get those reports in your hand. I recently left a hospital (for depression over not functioning) in which all my labs were "normal." However, my Creatin Level was low and my Bun-Creatin Level was extremely HIGH. Not enough blood is going to my Kidneys, which contain the "energy" producing stuff I have none of. They say, oh, your BP is 80/60 - that's normal for you....To me it makes sense....I'm exhausted, my brain won't think, I'm dizzy; my brain isn't getting enough blood (oxygen) to it. Every muscle in my body hurts, most like a charlie-horse; not enough oxygen to them? Maybe that's the answer. I have heart paliptations, I had a heart procedure called an ablation. They touched 5 spots of my heart and it began beating normally. This lasted for about 6 or so months and I never felt better, but it all slowly came back around. I've had every test under the sun: Tilt Table Test, MRI. I've had chealation, twice I even had Hyrdogen peroxide IV, then my blood taken out and ran under an ultra-violet light and put back in. But, I digress...
    in reading info on CIDP, there is a link to Blood Pressure. I can relate to your last line of hoping its something with an ANSWER. It's easy on a House episode when people's toes fall off, or their eyelids catch on fire. Don't let anyone tell you, it's in your head...keep the faith.. there are a lot of us. We are GOING TO FIGURE IT OUT.
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    Last edited by sleepytee; 10-13-2011 at 03:31 PM. Reason: didn't typ anything yet...my finger slipped

     
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    cidp, demyelinating neuropathy, emg, neuropathy, polyneuropathy



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