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  • Prediabetes & Neuropathy

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    Old 09-27-2012, 09:48 AM   #1
    sconzette
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    Angry Prediabetes & Neuropathy

    Hi I am new to this site. I was recently (3/2011) dx with pred. I Have been suffern for over 1 yr with neuropathic pain. It started with pins and needles in my feet and legs and burning sensations under my feet. It has spread to my lower arms and fingers, this is very painful and worse at night.. I have been to the Neurologist several times. Had all the tests and blwrk done to rule out any autoimmune diseases, MRIS of spine, Brian MRI, 2 EMG & NCS , first one in Nov 2011, 2nd one 2 weeks ago. The tests did not show any damage to the large nerves. My understanding is when the test is "normal" there is still some nerve damage to the small nerves. Doc says I have small nerve sensory polyneuropathy. I have a skin Biopsy scheduled for 2 weeks. (not sure what this test will tell) I tried Neurotin/Gabapentin, I could not take the side effects at only 100 mgs a day. They kept me up all night and made me feel uneasy and anxious. Im willing to try Lyrica, but Doc says they are in the same family , so it may not agree with me.. Did anyone try Lyrica and did it work for you? Still can not find a cause, ( it scares me that the neuropathy will continue to get worse without a diagnosis)!! I BELIEVE the damage was caused from my Prediabetes, My very first A1C was 5.7 (Pred range). Doctors wont agree that I obviously had high post meal spikes that I beleive damaged my nerves. My Fastings are still with- in "normal range" 85-94, so my Doctors, incld Endo dont think this caused my Neuropathy. Its so logical that it did!!!..I have since changed my diet to low carbing, high fats/proteins maintaining good BG Control, still no change in my symptoms. I was hoping the tight sugar control would help heal my symptoms (nerves) or at least stabilize them. My B12 levels were low at first, I took B12 supplements (Vits) for 3 months and my level went high above Lab range, no pain relief ,so doc said stop taking it! Should I just keep taking B12? Does ALA work?. Does anyone know if Gamma linolenic Acid works? I am desperate and need some relief. Doctors dont seem to take me seriously, they are Specialist and seem useless. Sorry for long post, any suggestions or commenst would be greatly appreciated,, Marie

    Last edited by sconzette; 09-27-2012 at 10:04 AM.

     
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    Old 09-28-2012, 12:21 AM   #2
    Aussie100
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    Re: Prediabetes & Neuropathy

    Hi, prediabetes can certainly cause nerve damage, my nerve damage was caused by prediabetes and low B12, a 3 hour glucose tolerance test showed that i was prediabetic.

    I highly recommend Alpha lipoic acid 600 mg or up to 1800 mg per day, or the newer R - lipoic acid 100 mg or up to 300 mg a day, just watch out for lows as it can drive your sugars down and also lows can damage the nerves as well as elavated sugars do, most doc's don't tell you this.

    GLA is also very good.

    I would keep taking the B12, B12 methylcobalamin is the best type, as it is the active form and can go to work straight away, but take on an empty stomach for max asborbtion.
    There is no upper range level of B12 levels that is unsafe, i say the more the better for nerve problems, 1 mg a day is plenty.
    It takes a long time for nerves to heal, mine took a total of 5 years to heal completely.

    best of luck to you.
    Aussie.

     
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    Old 09-28-2012, 01:09 AM   #3
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    Re: Prediabetes & Neuropathy

    I agree with taking the B12. Sublingual may be better absorbed than oral that you swallow. How were your folic acid levels? That is a good supplement for neuropathy too.
    Both of those also help lower homocysteine levels, a risk factor for heart disease (along with diabetes), so helpful in two ways. Were your thyroid levels ok? Low thyroid can cause neuropathy, as well as excess alcohol intake. It's a good idea to control all known factors that may predispose, to keep it from getting worse. Calcium and magnesium tend to "calm" nerves and might be worth a try too. Hope you find some things that help. I have neuropathy and restless leg syndrome at night. I think they are related.

     
    Old 09-28-2012, 07:10 PM   #4
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    Re: Prediabetes & Neuropathy

    Marie,

    I have idopathic neuropahty and Lyrica works very well for me. Can't say if it will have the same side effects as the others as Lyrica is the only one I have taken. Cymbalta also works, it is an antidepressent.

    I had a lot of trouble with the nerve tests too. I now have large fiber involvement but for a while I only had SFN and it does not show on the NCS/EMS as you have found. The skin test is specific to SFN. I had a sural nerve biopsy that noted my SFN but they are trying to get away from them. They have to remove an entire nerve for the sural nerve biopsy.

    Wish you luck in finding the solution for your issues.

     
    Old 09-28-2012, 08:33 PM   #5
    June89
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    Re: Prediabetes & Neuropathy

    Hi Marie
    I have SFN & NSVN as a result of a sural nerve biopsy. (as Tingles said, they remove the entire sural nerve and my ankle & side of my foot is numb, no feeling, I also have a scar thats not too pretty) My B12 & B6 were low so I now take B50 and a B12 supplement. I take lyrica & cymbalta. I am trying a pain patch called BuTrans and it is working well in the day, night time I need to take a oxicodent as well.
    I have very tight, burning feet & hands. My toes do not move, they are looking weird. I find it difficult to walk.
    I just had a lip biopsy as well as a sialography to rule in or out Sjogren's Disease. Continue to get your answers, do not give up. We know serious pain, most of the Dr's don't understand....Take care, June

     
    Old 10-14-2012, 06:22 PM   #6
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    Re: Prediabetes & Neuropathy

    The largest percentage of people who get neuropathy from diabetes have had the disease for 25 years or more. So while I'm sure anything is possible, I think it is VERY unlikely you got this from prediabetes. If you are older and suspect you may have been dealing with blood sugar issues for a long time, then it might be a bit more possible. Your doctors are probably correct, though. Either way, good luck!

     
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