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  • Idiopathic Neuropathy, Searching for Cause

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    Old 11-25-2013, 12:24 PM   #1
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    Puella HB User
    Idiopathic Neuropathy, Searching for Cause


    I have been experiencing stinging and burning sensations everywhere in my body since July 2013. I get these pains at night or day, while resting or working, in my arms and legs, feet and hands, back, behind my ears, in my groin area, and around my rib cage.

    In March 2013 I had a viral illness for a few days and extreme upper back aches. Since then, I have had pain on my lower cervical spine/upper thoracic spine. It feels like there is a heavy object pushing on my spine. The muscles around it ache and it feels worse as the day goes on or with increased activity. There are days when all I do is nap because it's the only way to escape the back pain. On a couple occasions, I have had swelling on my spine. My neck ROM is significantly decreased.

    I went to an orthopedic physician in July originally with the intention of figuring out the cause of the upper back pain, but the neuropathic pain started just a couple weeks beforehand, so I explained both to him.

    List of things I've done so far:
    CBC, CMP, TSH (thyroid), B12, Vitamin D bloodwork
    nerve conduction study upper extremity
    cervical and thoracic x rays
    cervical MRI
    heavy metal screening
    Igs and Lymes bloodwork

    No answers yet; doctor wants to try NCS lower extremity, bone scan for my back, and possibly MRI of my head to rule out MS, cancers, lymphoma or lesions

    Has anyone else had experience similar to this or have advice? The pain is getting unbearable and I have school and work to get through.

    Much obliged.

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    Old 12-18-2013, 07:15 AM   #2
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    Lena-marie HB User
    Re: Idiopathic Neuropathy, Searching for Cause

    HI Yes I have had ALL that you mentioned, and Mine started in 2005 and had the complete work up you just mentioned they found nothing, and it eventually got better little by little and came and went for a few yrs then I didn't have it at all in 2011 and 2012 I felt great till a month ago and it is back and I am NOT wanting to go through all that work up again to be told nothing is wrong i'm kinda waiting it out..:/

    Old 12-18-2013, 07:00 PM   #3
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    Re: Idiopathic Neuropathy, Searching for Cause

    Welcome to the board.

    What did the cervical MRI indicate?

    If you are not doing so, I would encourage you to get copies of all testing and of MRIs, x-rays, etc. Begin a personal file so you will have all these records at hand.

    Is there one particular specialist who is directing your care, ordering tests, etc?

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    idiopathic, neuropathy, stinging pain, upper back pain

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