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  • Can MS come on so suddenly??

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    Old 02-25-2017, 12:27 PM   #1
    Nevi2017
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    Can MS come on so suddenly??

    So I was in the hospital last night for an 'odd' episode. I'm female in early 30s. Good health.

    I was standing in a shop, standing squarely, facing forward. Feet firmly planted. I had not just gotten up or anything. I had been looking at an object for a few minutes.

    Suddenly (and it all happened in about 15-30 seconds) my left leg started side stepping repeatedly, making my stance wider and wider. In those few seconds my brain literally thought "why is my left leg stepping out to the side without me telling it to?". Then I realized what was happening. I was sinking down into my left side. A lady was walking past me and I felt embarrassed almost hitting her. I think my leg possibly was trying to support me but it was like it was weak and I slumped over the side and was weak for a moment. Like that side couldn't hold me up. I never fully collapsed but was able to catch myself but it was hard. I didn't feel like I was going to pass out. It was completely different. There was no darkness closing in around me. I've had that feeling once as a child. It was not this. It was like I didn't have command over my body for a moment and it was weak.

    Afterwards I was very tired and light headed. I walked back to my car. Drove home (3 minutes away) and when I was about to get out, I reached for the handle of my car and missed it. I went inside. Sat down. When I got up my legs felt heavier a little for the next 20 minutes or so.

    Later I decided to go into the hospital and get checked. When he gave me normal routine exam, touch his fingers my nose etc I passed perfectly. They ruled out a stroke and the doctor was very adamant that it could be MS and said I would need to get a follow up with a neurologist.

    My question: does this sound like something people get with MS? Can it come on so suddenly and go away so suddenly?

    Since yesterday no symptoms but tiredness and occasional lightheadedness.
    Thanks so much

    Nevi

    Last edited by Nevi2017; 02-25-2017 at 12:33 PM.

     
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    Old 02-25-2017, 02:03 PM   #2
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    Re: Can MS come on so suddenly??

    Hi Nevi,
    MS does not come on suddenly...in fact, most people have it for many years before "something" happens which takes them to the doctor or the emergency room and a diagnosis is either given or tests to find out what is happening begin.

    What you describe could be anything- with MS your legs do not suddenly move to one side as you describe...but weakness on one side is very possible. Of course that can also be caused by a number of other things; everything from vitamin deficiencies to strokes to infection can cause one sided weakness.

    Seeing a neuro is a good idea because something obviously happened to you and I am sure you are afraid, but dont be...even if it is MS, MS is a very livable disease because it is a chronic condition, not a death sentence! The doctor will probably order a MRI for you to see if there are any abnormalities on it and from there the testing will begin.
    If you have the choice, try to find a MS specialist and not a regular neuro...regular neuros often work with migranes, strokes, Parkinson's Disease but are usually not that skilled with dx MS...if you see a MS specialist and he rules out MS he will point you towards the right specialist.
    You can find MS specialists by calling your local hospital or large University hospital or by calling the MS chapter in your city and asking for some referrals.

    Best of luck! Let us know what happens!
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    Old 02-25-2017, 07:23 PM   #3
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    Re: Can MS come on so suddenly??

    Nevi2017,

    Welcome.

    Perception can cause one to feel sudden onset. Many MSers ignored the early symptoms until "the big one" got their attention. This was my case.

    Start with an MS Specialist after you have had initial blood tests.

    MS Symptoms are typically those which persist for 24+ hours. Sometimes we can miss these as the severity or the "feeling" may change in intensity. A journal noting the duration of the symptoms can help your doctor.

    Thank you for sharing.
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    Old 02-25-2017, 10:31 PM   #4
    Nevi2017
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    Re: Can MS come on so suddenly??

    Thank you both for your replies.

    What blood tests are best to have ordered?

    Also, is the episode I had out of character of MS then since it came and went? If an MS symptom, should it have stayed around the rest of the day to some degree?

    Also when my leg moved out to the side it was my body I think involuntarily doing it because I was collapsing. Usually when one is falling over they think 'oops I'm falling' and you may do something to stop yourself. You are aware of what is happening and you make the physical correction. In this case my leg was moving but I had no idea why. As I was collapsing the leg was trying to support me and hold me up but it was failing like there was a weakness. It was so bizarre. Hope this makes sense.

    Thanks so much.

     
    Old 02-26-2017, 04:38 AM   #5
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    Re: Can MS come on so suddenly??

    Nevi,
    Your doctor will know what blood tests to order; but you would want to mention to them that you would like to get your vitamins checked as well; as this is not part of the CBC (complete blood panel). You are looking at things like vitamin D, iron, etc. You also might want to have your thyroid checked closely.

    What you described does not sound like MS; however, that doesnt rule it out.
    MS is a disease of the central nervous system (brain, eyes and spine) and when things short out (The nerves are what are affected) anything can happen. MS is a very individualized disease, no two cases are exactly alike; however, the typical symptoms for MS seem to be the same for many of us and you have not mentioned any of them.

    There is no test for MS. Testing begins with a MRI of the brain/ spine, usually involves Evoked Potentials (eyes and muscles) as well as sometimes a spinal tap (to check for Obands in the fluid). Even with all these tests, there is nothing conclusive. MS is dx when everything else is ruled out and there are over 400 diseases which mimic MS...for many it is a long testing process. For me it took less than 48 hours as I had screaming loud symptoms which aligned with many lesions (scars) on my brain which corresponded. It can go either way..

    I would not be thinking MS at this point, but I would pursue this to find out what is happening...remember, even an inner ear infection can throw your body off balance and cause symptoms.

    Look for a MS specialist so that you know everything is checked by the correct doctor and let them take it from there.

    MSNik
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    Old 02-26-2017, 06:37 AM   #6
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    Re: Can MS come on so suddenly??

    Nevi2017,

    In addition to the aforementioned blood tests, if you have been or live in an area with Lyme Disease, your blood tests should also be checked for Lyme Disease as it is a well known MS mimicry.

    Often the mimicries can be determined and treatment can begin. There simply is no specific test for MS and there are over 400 MS mimicries. Taking the first steps with a regular physician is a good move as the waiting time to see an MS Specialist is long (or usually is long).
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    Old 02-26-2017, 07:44 AM   #7
    Nevi2017
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    Re: Can MS come on so suddenly??

    Thank you so much for your replies. I will look into this all. Good food for thought.

    Lastly, if I am understanding you guys correctly, is it correct to say, most MS symptoms come on and stay on for a week(s) at a time? In other words, it is rare for them to happen and leave that day?

    Thanks so much for your time

     
    Old 02-26-2017, 11:02 AM   #8
    Snoopy61
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    Re: Can MS come on so suddenly??

    Quote:
    Originally Posted by Nevi2017 View Post
    Lastly, if I am understanding you guys correctly, is it correct to say, most MS symptoms come on and stay on for a week(s) at a time? In other words, it is rare for them to happen and leave that day?
    Multiple Sclerosis is not a disease that can be generalized. Each person's journey with MS is different even in the way it behaves.

    Before I was diagnosed or even knew anything was wrong I had symptoms that would come for a few minutes, hour(s) or a day. This is still true. I had one incident where I stepped off the curb and went down. My leg just gave out, no pain, no object, no warning.

    Symptoms can come and go for those with MS. Symptoms that come and stay is due to permanent axon damage.

    I have never heard of or experienced what you described. The ER Dr. that mentioned MS would have no way to know if MS would be the cause without proper testing for MS as well as ruling out all other possibilities.

    Quote:
    When he gave me normal routine exam, touch his fingers my nose etc I passed perfectly.
    If he did a Neurological exam and it was normal then what you experienced wouldn't be MS. Everyone with MS has some deficits upon neurological exam.

    I would suggest you follow up with your Primary Care Physician(PCP) and let him/her know that the ER Dr. mentioned MS. Your PCP can do a Neurological exam and refer you to a Neurologist.

     
    Old 02-26-2017, 05:23 PM   #9
    MSJayhawk
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    Re: Can MS come on so suddenly??

    Nevi2017,

    My symptoms persist for 24+ hours. But I also have daily symptoms due to my PPMS. If your symptoms are less than 24 hours (intensity can vary), it is highly unlikely that the symptoms are MS related or MS.

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    Old 03-09-2017, 10:09 AM   #10
    Nevi2017
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    Re: Can MS come on so suddenly??

    So i went to my neurologist. He ruled out mini-stroke because he said that leg would not have been able to hold me up if it were mini-stroke and I would have collapsed to the floor.

    So this week I go for MRI of brain and spine. He said we may never know but MRI would be good to get. Sometimes a virus can do this.

    Does anyone know if any other odd neuro disorders come on so quick and vanish so quickly in a day? I've looked over other disorders but no one really says the brevity etc of symptoms. Only the symptoms. Just not sure why that happened and hoping it won't come back

    Thanks

     
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