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Confusednut 06-01-2017 01:52 AM

What is happening to me?!
 
I've started having some possible seizure-like episodes starting 2 months ago, which I think may be autoimmune issues. My doctor has chalked it up to anxiety but tomorrow I will be requesting to see a neurologist or?

My medical adventures started off after a very stressful couple of months, when my husband was seriously depressed. It kicked off with extreme fatigue lasting about 4 months, then really bad pins and needles in both legs and arms for almost a continuous month, then slightly blurry right eye, pressure in head, slight body tremors and jolt waking up to intense adrenaline rushes that I couldn't control. These rushes came in waves and went over my body starting from my head / heart through my body, legs, toes. There is always a warm sensation after that. It almost feels like my blood vessels are constricting and releasing, like that of a blood pressure monitor band being released. This usually happened a few minutes after I fall asleep, waking me up in the process. It has made it very hard to get any decent sleep and I have been averaging 2-3 hours of sleep per night this last month. They almost come in a pattern-like way whereby I can feel it coming on just before it happens; my body tenses up and I involuntarily catch my breath. And then a "rush" followed by a warm sensation and lightheadedness. All of this lasts about 30 seconds. This "wave/ rush" has been happening for about 2 months now and and happens about 15-20 times an hour, usually when I am resting or settled. I don't seem to notice it when I am on the move or standing. My doctor suggested an anti depressant since I was feeling down but because I am still nursing my infant(1year) she decided against it later.


Now what has really started me is that yesterday I got an oximeter to test my oxygen levels and I noticed that each time I had one of those "rush sensation" episodes, my pulse drop very lowland that's when I involuntarily catch my breath. There are 6 bars for the heartbeat strength and I averaged 5 bars. However whenever I had the wavelike rush, it would dip to just one or two bars. I tried to feel my pulse and it feels faint compared to previous times I tried.


My question is what do you think this is? What tests should I be asking of my doctor. should I be seeing a neurologist or cardio?I have seen 2 family physicians, 3 visits in the last 4 months about this and they both said anxiety. They did a bunch of blood tests and the only thing that was flagged was that I was low on zinc. I am 37,slender,no smoking,drugs or drinks, have always been in relatively good health , apart from anaemic issues every other 5 or so years. I am not anxious but this mystery is now causing me to, especially since I discovered the dip in heartbeat rate. I have 3 little ones under 7 years and a husband that depend on me for everything so I am trying to get to the bottom of this ASAP. Please help!

MSJayhawk 06-01-2017 02:11 AM

Re: Is this MS, Lupus,tumor, adrenal disease?
 
Confusednut ,

:wave: Welcome.

Your anxiety and familial stressors both which your and your pregnancy may be linked.

I would encourage you to address any cardio issues first. Please note that some of what you described could certainly be anxiety related.

It appears that you have taken blood tests. Unfortunately there are simply no single tests available. The diagnosis is one of elimination.

Thank you for sharing. I will keep you in my prayers as it appears you have a "full plate". I hope you will obtain some definitive answers soon.

:angel:

MSNik 06-01-2017 02:37 AM

Re: Is this MS, Lupus,tumor, adrenal disease?
 
Hi there.

Everything you wrote could simply be anxiety. You would have earned that badge as it appears you are juggling quite a bit.

Most autoimmune diseases can be seen in blood work. MS cannot. Assuming your family doctor is doing their job and ordering the correct blood work you are probably in the clear for autoimmune diseases.

Cardio is one of your more important things to rule out. I would start there. See if you can get a referral to a cardiologist OR simply make an appointment for a full cardio physical; you can explain to the doctor when he takes your history that you simply want to rule out anything being wrong.

Getting your stress under control is of the utmost importance right now. Whether this is anxiety or Cardiac- you have to find ways to destress.

Can you exercise more? Spend more time with people who relax you? Take up a hobby or stop and smell the roses? Its going to be very important that you take on some "you" time to try and get your body to slow down.

Best,
MSNik

Snoopy61 06-01-2017 07:15 AM

re: What is happening to me?!
 
Adrenaline rushes are typically due to the "flight/fight/freeze response which can be caused by stress, anxiety/panic attacks, PTSD, and fear. Your life has recently been very stressful and your symptoms started after your life became difficult which would indicate Mental Health problems as the cause for your symptoms.

I would suggest seeing a Mental Health Professional, a Psychiatrist and Psychotherapist. This is where I believe you will find the most help. Mental Health problems can cause body wide physical symptoms.

Best wishes...

Cibb 06-01-2017 07:41 AM

re: What is happening to me?!
 
Hello ;). I am so sorry you are going through this. I know what it's like to have a whole bunch of terrifying symptoms and being desperate for help and answers.

I would definitely suggest you be evaluated by a Neurologist, Cardiologist, as well as have a Sleep Study for your peace of mind. The Neurologist will do testing to rule out seizures. Also a Sleep Study would really help as you are having most of your symptoms when falling asleep. It could be sleep apnea and your body waking you up with an adrenaline rush when you breathing lessens. If that's the case, a simple C-Pap machine worn during sleeping is all you need. The Cardiologist should do a Holter Monitor test where you go home wearing the heart monitor for several days so any abnormality can be caught during the episodes.

If all is clear then it could be your body reacting to the stress of your recent pregnancy, breastfeeding, and your husband's depression. Your vitamin/mineral needs when nursing are high and stress can cause your levels to dip which could be causing some of your symptoms. Are you taking prenatal vitamins?

Seeing Family Practitioners should have yielded referrals to the above mentioned specialists, but many doctors just love slapping the "anxiety" diagnoses on someone with unusual symptoms (especially female patients) and just leave it at that. Blood work is just one piece of the puzzle and hopefully the zinc deficiency is being treated. Did they also check your magnesium, phosphorus and Vit D levels? I would push for that as well. The body tingling could be an electrolyte issue or also due to hyperventilation when stressed.

Referring back to the anxiety, all of this is taking it's toll, so now on top of your symptoms and whatever is causing them you do have anxiety which will exacerbate any situation. I would try to take slow, relaxing breaths and just pray to God to lead you to a Dr. who can help diagnose you whenever you get overwhelmed.

Regarding the Pulse Oximeter, I have and use one too. Sometimes it takes several seconds for the sensor to read accurately and so when the bars go from high to low it's just adjusting and not always accurate to what's going on with your heart or O2 level at that very second. But when you have an adrenaline rush this might explain the bars (pulse) going down, I go this off another website:

"Adrenaline rush: Your heart is contracting quickly, which is increasing your blood flow. Once in a while, your heart will take a breather, because it needs to compensate for all of the fast beats it is being required to make. When it does pause, that's what causes the thump, or palpitation, that you feel when you are missing a beat."

I have a feeling that what is going on with you is not serious and that you'll be ok but that further testing should be done just in case.

From one "Confusednut" to another, I hope this helps. You will be in my prayers.

In Christ,
Irene

Confusednut 06-09-2017 12:49 PM

Re: What is happening to me?!
 
i am seeing a neurologist now. i will update if anything changes! The tingling sensation has gone down in severity but is still dully there.


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