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Just looking for opinons please


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Old 12-07-2018, 08:31 AM   #1
teddybearhugs
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Just looking for opinons please

For a couple of years now, I have been displaying a lot of symptoms for MS.

Visual problems, include blurred vision at times, floaters and some pain/discomfort if I look to the side??
Numbness and pins and needles in my face, hands and fingers.. with no obvious triggers.
Jerking movements in my legs and shoulders (although I don't know if this is a symptom of MS but it happens daily)
I suffer with balance and vertigo, a lot and have cognitive issues..in the sense of, I can literally forget what I am talking about mid sentence (happens loads) cannot seem to concentrate, my memory is terrible, I mix my words up, spoken and written, drop things.
I have bladder issues, I can't seem to hold my urine for very long at all now, and have had a sudden urge to go, (ie, I didn't feel I needed a pee, and then suddenly the urge is overwhelming) and sadly I have wet myself a couple of times.. the frequency to go, has increased to, I feel like I want to go to the loo a lot more.
I am also being treated for anxiety and depression, find myself becoming breathless at times for no real reason, and have had some issues with my ears, like tinnitus, and a bit of hearing loss, (nothing that lasts more than a couple of seconds). I have widespread pain (but have been diagnosed with fibromyalgia). I also get this feeling fairly often that feels like a tight band around my chest,mainly to the left side and breathing in and out becomes painful (was worried I was having a heart attack the first time it happened) it passes but is awful..??
I am under a Neurosurgeon for neck issues, and he felt my symptoms related to MS, when I spoke to him about them, and was going to refer me to a specialist... he ended up referring me to someone completed unconnected, and she wasn't interested at all in any of the above symptoms and wanted to investigate other issues.
I decided to see my GP with the bladder issues a few weeks ago and she requested an MRI scan on my lumbar spine, I had a call today saying I need to call to make an appointment to speak with the Doctor about the results next week, but have been able to access the results online through my surgeries online facility, I can't see anything that looks worrying, but there is a bit that says.
Focus of low T1 and low T2 signal
change within the L2, T12 vertebral bodies are likely to represent
bony islands.
So I decided to look this up online... I can't make any sense of what it is online connected to this, other than the fact it seems to refer to legions?? I am aware that legions on the spinal cord can be related to MS, and wondered if there may be a connection.
My GP tends to fob me off with most things (and has done with some issues that have needed treatment in the past) I just wondered if anyone on here, thinks any of this could possibly be related to MS, and whether I should be pushing more along those lines, with the GP looking into this or not.

Thanks in advance xxx

 
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Old 12-08-2018, 05:03 AM   #2
MSNik
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Re: Just looking for opinons please

Hi there. As a person who lives with MS I wanted to answer your questions.

Yes, your symptoms could be MS related BUT, MS mimics about 100 other diseases and you should NOT jump to MS right away.

The MRI you had on the Lumbar spine does not suggest MS. The bony islands that are noted are not MS related- this is changes in your spine from whatever is going on in your back... That being said, 99% of "lesions" on the spine which are MS related usually show up in the C spine (below the brain) or the Thoracic spine- not usually on the L spine and it does not appear you have had MRIs of either of these areas. The biggest place for lesions to appear is on the brain. That also should be imaged.

Lesions do not show up like bony islands- lesions, are usually noted by a radiologist as areas of concern and a good radiologist can tell the difference between MS lesions and other issues. They would usually refer further testing to a neurologist on the report.

Without your MRI comments, the rest of your symptoms do possibly reflect a MS diagnosis; but without the proper testing, it could be unknown for a long time. Most of us with MS have had it YEARS or even DECADES before we knew we had it because the symptoms just werent bad enough for us to investigate further. My suggestion to you is to visit a Neurologist. Look for a MS specialist. Some neurologists specialize in strokes or migranes - you dont want one of these, you want one who has a practice around Multiple Sclerosis and you can find this by either calling and asking, or going on the website and seeing what the doctor specializes in. You can also call the local MS society and ask for referrals in your area.

Its not urgent. There is no cure for MS and seeing one will only put your mind at ease if you get the dx....there isnt much anyone can do other than treat the symptoms....there are some meds to help prevent the disease from progressing but they are not guaranteed. My point is that even if it takes awhile to see a specialist, its not going to hurt you.

I hope this helps somewhat...MS is not the end of the world. You can live a perfectly normal life with it- it doesnt change your life expectancy or anything else other than making you very aware of how to avoid triggers which can set off your symptoms and helping you to take better care of yourself.

Please ask about a visit to a neurologist and do your homework and find the right one.

Good luck!
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Old 12-08-2018, 12:44 PM   #3
teddybearhugs
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Re: Just looking for opinons please

Quote:
Originally Posted by MSNik View Post
Hi there. As a person who lives with MS I wanted to answer your questions.

Yes, your symptoms could be MS related BUT, MS mimics about 100 other diseases and you should NOT jump to MS right away.

The MRI you had on the Lumbar spine does not suggest MS. The bony islands that are noted are not MS related- this is changes in your spine from whatever is going on in your back... That being said, 99% of "lesions" on the spine which are MS related usually show up in the C spine (below the brain) or the Thoracic spine- not usually on the L spine and it does not appear you have had MRIs of either of these areas. The biggest place for lesions to appear is on the brain. That also should be imaged.

Lesions do not show up like bony islands- lesions, are usually noted by a radiologist as areas of concern and a good radiologist can tell the difference between MS lesions and other issues. They would usually refer further testing to a neurologist on the report.

Without your MRI comments, the rest of your symptoms do possibly reflect a MS diagnosis; but without the proper testing, it could be unknown for a long time. Most of us with MS have had it YEARS or even DECADES before we knew we had it because the symptoms just werent bad enough for us to investigate further. My suggestion to you is to visit a Neurologist. Look for a MS specialist. Some neurologists specialize in strokes or migranes - you dont want one of these, you want one who has a practice around Multiple Sclerosis and you can find this by either calling and asking, or going on the website and seeing what the doctor specializes in. You can also call the local MS society and ask for referrals in your area.

Its not urgent. There is no cure for MS and seeing one will only put your mind at ease if you get the dx....there isnt much anyone can do other than treat the symptoms....there are some meds to help prevent the disease from progressing but they are not guaranteed. My point is that even if it takes awhile to see a specialist, its not going to hurt you.

I hope this helps somewhat...MS is not the end of the world. You can live a perfectly normal life with it- it doesnt change your life expectancy or anything else other than making you very aware of how to avoid triggers which can set off your symptoms and helping you to take better care of yourself.

Please ask about a visit to a neurologist and do your homework and find the right one.

Good luck!
Thank you so much for your reply, you have given me lots of information, I am really grateful for, thank you again. Kind regards

 
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