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  • Please help and reply - Sjogrens problems?

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    Old 08-13-2019, 08:20 AM   #1
    JohnnyZ's Avatar
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    Please help and reply - Sjogrens problems?


    I am at work so will write this as quickly as possible. Forgive.

    I am a 41 year old male previously superfit. I am in the UK.

    A year and 1/2 ago I experienced symptoms of dry eye and mouth. I actually started by hypersalivating then the opposite happened. This has levelled off and not as bad as it was but never returned to normal. My eyes vary but are never as they were.

    Later the fatigue started. Then my lovely head of hair (I always loved my hair) went dry and thin and now is brittle and falls out all the time. A bald patch is appearing toward the back and my scalp is itchy.

    Before Christmas I thought this was enough and then the paraesthesia started. Worse in my legs but also get it all over. My upper thighs get it the worst and the skin is drier. This happens on my arms now with dry skin and I sometimes get rashes.

    I noticed my hair thinning on lower legs. I also noticed dark under my eyes. Panda eyes.

    I also have partially discoloured lips. I don't remember the name.

    I get indents on my arms very easily.

    The worst for me at the moment is my hair. I always prided myself on this (we all have something we like) and I planned to get a transplant. I have been told I can't if this is happening. It looks absolutely awful and I've always been petrified of balding.

    The paraesthesia is lessened off a bit but never goes. It is nasty. Oh and I get muscle twitching in one arm and my legs. Oh and sharp nerve pain in my upper left back sometimes.

    My 5 year relationship with the love of my life ended. She treated me very badly in the final year and my move to a sunny beautiful city by the Mediterranean in a new apartment with her beautiful children was destroyed. The first sign of the conditions started before when I came under a lot of pressure from her.

    I have seen a specialist who said there wasn't enough inflammation to diagnose Sjogrens and said I have Sicca Syndrome. She thought maybe there was something else but discharged me with no further help. This was a top notch private Rheumatologist. I am on my second GP and have been treated terribly. The first would say things like 'you can't have Sjogrens you are a man' and 'it is what it is'. The 2nd would not prescribe me with anything, wouldn't put me forward for tests, hadn't heard of Sjogrens or Sicca, and still refuses to accept any link between Planquenil and it's use in Sjogrens. He hates that I have consulted people on the web and says 'I have no magic wand, there's no point in any further tests'.

    I almost never meet any other men with all this.

    I have lost a lot. I know it's corny and I cringe saying it but I was called a very handsome man. I was very outgoing and confident. I have lost all of that.

    I wondered if anyone would talk to me and help me?


    Last edited by Administrator; 08-13-2019 at 10:31 AM.

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    Old 08-13-2019, 02:03 PM   #2
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    Re: Please help and reply - Sjogrens problems?

    Hi JohnnyZ,

    You might be hyperthyroid. Check out the symptoms of that and see if it seems familiar.

    I feel for you to be stuck with social medicine as I hear that often getting diagnosis and treatment and referrals is hard to come by. Some symptoms are just hard to diagnose, regardless.

    Try asking a doctor to humor you and to test you for hyperthyroid. But sir, anyone that leaves because you are not well was not the love of your life. I'm sure that you loved her, but care enough to let it go. She and wistful thinking is not worth your time. I know the 'what if' lurks like a demon. But you can say no to the memories and find someone that understands love. They are out there. I have been thru the pain and disappointment but now have been with the one that loves my life truly, now for almost 40 years. I was a gorgeous young woman but now I am 70. My mate aged as well. LOL

    Anyone that relies on appearances is too shallow to be dependable. Always be your own best friend and wait for the one that is an honest real friend to you.

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