It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Open to All Other Health Topics Message Board

My Problem...

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 07-24-2004, 03:03 PM   #1
Join Date: Jul 2004
Location: st.shotts
Posts: 1
prs_15_af HB User
Arrow My Problem...

[COLOR=Magenta]Hi my name is amanda im 15 yrs old i have pierre robin syndrome which means i have a high cleft palet it enables me to talk normally like normal teens my age i wish i didnt have this disease i hate having to talk to people i dont know because im very shy and afriad that they will make fun of me it suck because for 15 yrs or sence i learn to talk when i got a bet older i heard my voice if u got similer or if u have prs msg me please!!! because i would love to talk to someone who shares the same problem and to know im not the only one who has prs or feels the same way scared and alone [COLOR]

Sponsors Lightbulb
Old 07-25-2004, 11:45 AM   #2
Senior Veteran
Join Date: Jan 2003
Location: California, U.S.A.
Posts: 3,088
zuzu8 HB Userzuzu8 HB Userzuzu8 HB Userzuzu8 HB Userzuzu8 HB Userzuzu8 HB User
Re: My Problem...

Amanda dear,

I would suggest two things. First, try posting on this site's Rare Disorders Board. I wouldn't be surprised if you get a lot of "hits" there.
Also you might want to do a websearch for an organization called the Pierre Robin Network.
Don't be scared. You are most definitely not alone. It's just a question of reaching out, like you are here, and making contact with others who share the same problem. You'll find a lot of comfort when that happens...and it will...

Good luck,

zuzu xxx

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Parent Teacher relationship problem justmel30 Relationship Health 30 05-04-2010 12:16 PM
Urine Problem-Sk shaiksk Urology 0 05-03-2010 10:01 AM
Penis Problem that is RUINING my life. Please Help Me :( davecurtis Men's Health 4 03-05-2010 09:03 AM
After everything I still have a problem breathing PlushKitti Asthma 3 11-07-2009 05:17 AM
Problem > my EYE & 7th cranial nerve disorder ali8 Brain & Nervous System Disorders 2 04-24-2009 03:34 PM
Extreme sleeping problem sammie616 Sleep Disorders 13 12-07-2008 01:30 AM
A problem that has affected my social life for years. VuLe110 Digestive Disorders 2 11-21-2007 06:50 PM
Perceived breathing problem DJBucs2005 Mental Health 0 09-11-2007 11:06 AM
Problem with anus, please help hgghg Bowel Disorders 10 07-18-2005 10:51 AM
Reporting problem drugs to the FDA Shoreline Pain Management 3 03-29-2004 11:49 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:36 AM.

Site owned and operated by™
© 1998-2018™ All rights reserved.
Do not copy or redistribute in any form!