It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Open to All Other Health Topics Message Board

My 22 month old daughter was diagnosed with mastocytosis.

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 10-14-2007, 09:45 AM   #1
Join Date: Oct 2007
Location: benton, ky, usa
Posts: 5
natejewel HB User
Re: Systemic Mastocytosis

Hi, everyone. I am new to this and am having difficulty figuring out were to post. My 22 month old daughter was diagnosed with mastocytosis. They are going to test to see if it is systemic. She has already had one episode of at daycare were she couldn't breathe. Here allergies are terrible and her brown pigments are spreading weekly. They were noticed at nine months on her back. They have since spread to her abdomen, shoulders, and now down her arms.

To top it all off I have recently been diagnosed with a genetic disorder, hemochromotosis. My body doesn't excrete any iron. It primarily stays stored in my liver and joints. We have done blood work on her and her levels are suspicious. She is going back to have the genetic coding soon.

I was wondering if anyone had any advice or knew if these two disorders might be related. We were told that she might outgrow the mastocytosis. If not then it might lead to cancers. Any help would be appreciated. Thanks

Sponsors Lightbulb
Old 10-17-2007, 03:34 PM   #2
Join Date: Oct 2007
Location: england
Posts: 2
jxn790 HB User
Re: My 22 month old daughter was diagnosed with mastocytosis.

hi i am new to this also, your message was one of the first iv read, it caught my eye because you are going through some things with your daughter my daughter is 20 months i would just like to say hope evrything goes well and your daughter and hope your daughter will out grow this my daughter is now in hospital with numerous of things that is all complicated so i know how worrying it is to be going through health problems with a child. I have never heard of mastocutosis but as it is a new name to me i can do some research on it ill let you know if i get some good information.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Possible Mastocytosis-waiting test results sarayment Rare Disorders 16 01-27-2010 08:54 AM
PLEASE HELP!: Mastocytosis, Celiac, Endometriosis?! wilsjel Endometriosis 6 01-14-2010 02:54 PM
Can you have mastocytosis without the skin lesions? hopetofeelwell1 Rare Disorders 1 08-07-2008 02:02 AM
systemic mastocytosis prissy2 Rare Disorders 4 07-20-2008 09:37 AM
Can someone have mastocytosis and still have negitive blood tests? Janilee Rare Disorders 72 09-01-2007 06:33 AM
Question regarding 6 month old daughter roxannemur Cerebral Palsy 7 08-25-2007 03:18 AM
Mastocytosis Calder Open to All Other Health Topics 1 02-27-2007 04:19 PM
Just diagnosed with osteoporsis at 30 30yearold Osteoporosis 59 12-31-2005 04:23 PM
17 month old MRSA positive lynn2004 General Health 4 08-10-2005 07:55 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:22 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!