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rld42953 08-04-2008 06:49 PM

Feels like plastic coming through the skin
My wife is suffering horribly and can't get any one to help. History: 1)she has MS 2)she just finished six weeks of vancomycin treatment for an MRSA infection 3)Various other ailments including but not limited to rheumatoid arthritis,fibromyalgia, osteoperosis, degeneration of all the discs in her back and neck, three have been removed. She is 52 years old, 5'8" and weighs 128. she has lost 21 pounds since the current problem started. Here is the problem: She has very, very, severe pain in her ear canal and the outside of her ear and neck. She says at times it feels like large pieces of plastic under the skin. At other times it feels like pieces of glass and sometimes like sand. Always it feels like the material is trying to cut through the skin of the bottom of the ear canal, (both ears). The feeling is that the pieces are moving around and she says that they feel like they are being sucked up into her head. The pain is unbearable. Because of the condition of her back and the pain she feels there she is on morphine patches 24 hours per day. Additionally she takes a lot of other pain medication. Nothing stops the pain unless she takes an oxycodone and a valium and knocks herself out. When she wakes up the pain is just as bad. We have had her to more than 25 doctors. some of them Ear, Nose and Throat specialists. None of them have been able to diagnose the problem. Biopsies have come back negative. Blood work appears to be normal. CT scan and MRI has shown a pocket of fluid and/or inflammation behind the right ear. The ENT's all say it is not significant. Had one ENT say that in his 25 years of experience he has never seen anything like her condition. Any opinions would be appreciated.

AuntieLeela 08-05-2008 08:11 PM

Re: Feels like plastic coming through the skin
A rare, [I]extremely[/I] painful condition called Trigeminal Neuralgia occurs in people over 50, usually women, and in MS patients. It's a problem with the trigeminal nerve in the face. [url][/url]

RA can cause hearing loss and TMJ (jaw joint inflammation) can cause referred pain through the ears, eyes, neck and head.

Good luck, I hope you find some answers soon!

rld42953 08-06-2008 07:51 AM

Re: Feels like plastic coming through the skin
Thank you so much for taking time to reply. I went to the handy internet and read up on the Trigeminal Neuralgia and it sounds like something that we will definitely want to mention to her doctors. Also sounds like this is a condition that is often misdiagnosed so it likely will be a challenge. However, I want you to know how much I appreciate your taking the time to respond.

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