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Prolia safety info question


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Old 01-01-2018, 07:49 PM   #1
swei790
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Prolia safety info question

I have an aunt 71 years of age who's had annual reclast in the past. The specialist said there's no more benefit after 3 or 4 infusion of reclast so she prescribed Prolia.

I have read that some people have developed unusual fractures in their thigh bone. This is very worrisome because my aunt is prescribed Prolia to try to prevent getting a fracture, but if it's possible to get a fracture as a side effect of an expensive medicine ($2,700 per injection in my area), that defeats the purpose of getting an expensive medicine injection.

I don't want to pay to run the risk of getting a fracture. I'll be calling the doctor to get her opinion, but I think the only thing she can do is to prescribe another medicine. Any opinions you can offer?

Last edited by Administrator; 01-01-2018 at 07:53 PM.

 
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Old 01-02-2018, 04:55 AM   #2
Titchou
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Re: Prolia safety info question

Fractures are unfortunately a side effect of some of these medicines. Why is your aunt on it? What are her DEXA scores? Has this treatment improved them over the years? Does she have medical issues that don't allow her to due weight work or take HRT? Just need more information about her to give you a good alternative.

 
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Old 01-05-2018, 06:17 PM   #3
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Re: Prolia safety info question

Aunt had stopped reclast during past 2.5 years, and is scheduled to get prolia next week.

Her most recent Dexa scores are:
lumbar spine is normal
Left Hip (total) T-score -1.7 z-score -0.1
left Hip(femoral neck) T-score -3.0 z-score -1.1

Back in 2015
lumbar spine is normal
left hip (total) t-score -1.7 z-score -0.3
left hip (femoral neck) t-score -2.6 z-score -0.9

I think left hip femoral neck has gotten a little worse, and that is where the osteoporosis is. In this situation, would Prolia be the next appropriate line of treatment? She has no weight problem, exercises, takes daily supplement of calcium and vitamin D.

Last edited by swei790; 01-05-2018 at 06:20 PM.

 
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Old 01-05-2018, 09:15 PM   #4
Titchou
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Re: Prolia safety info question

Obviously this treatment is not helping her! And she barely has osteoporosis! What idiot doctor has her on these treatments? Is she on HRT? If she is a candidate for it, I highly recommend it as it has greatly increased mine. I'm 72 this month and went from -1.6 to-1.0 over 6 years due to the added estrogen. BTW, osteoporosis starts at -2.6 so she barely had it in 2015. HRT could have made an impact. I strongly suggest it if she can take it. If not, I'd try to find an osteoporosis clinic and talk with them. If you have a med school nearby, they probably have one associated with the rheumatology department.

 
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Old 01-06-2018, 04:37 PM   #5
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Re: Prolia safety info question

I think you mean Hormonal Replacement Therapy by HRT? No, aunt is not on HRT. What kind of specialist doctor do I need to see to get a consultation about HRT? Does Medicare Part B typically cover HRT?

Here' s aunt's baseline DXA score back in 2011.
Left Hip (Total) T-score -1.2
Left Hip (Femoral Neck) T-score -2.9

In 2013, DXA was done at another lab, and they just did Total T-score as -1.4 with classification Ostopenia Fracture Risk Increased. The doctor just continued with annual reclast infusion back then.

 
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Old 01-06-2018, 08:19 PM   #6
Titchou
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Re: Prolia safety info question

She should just see her gyno. Who is doing the treatment now? Surely she's seeing a gyno if they've done the DEXA. That's who normally does them. At any rate, she should never have gone on reclast with a score like that. I'm stunned they did that. I live in a large city with a major medical school and you don't see that here. I'm on medicare advantage plan so have no idea what standard Medicare Part B covers. Look at the formulary - would be Activella, prempro, etc. Does she have her uterus?

 
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