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    Old 11-29-2003, 02:53 PM   #1
    Jacque98376
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    Forteo

    Need to know if there are any users of Forteo who might have had any side effects from the medication.
    Have recently had C-scan done of stomach and ribs because of pain but haven't gotten back the results.
    Also have noticed more protrusion of the stomach area.

     
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    Old 11-30-2003, 09:02 AM   #2
    Kaitrin
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    Re: Forteo

    I asked my doctor about Forteo about a month ago, and she'd never even heard of it! I guess it's still not used very often. How did you end up taking it? I hope it is working for you.

     
    Old 11-30-2003, 09:41 AM   #3
    peregrine
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    Re: Forteo

    [QUOTE=Jacque98376]Need to know if there are any users

    Last edited by peregrine; 12-03-2003 at 01:47 AM.

     
    Old 12-01-2003, 02:31 PM   #4
    Jacque98376
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    Re: Forteo

    Quote:
    Originally Posted by Kaitrin
    I asked my doctor about Forteo about a month ago, and she'd never even heard of it! I guess it's still not used very often. How did you end up taking it? I hope it is working for you.
    Kaitrin,
    I have been using Forteo since March of this year. Had been following updates for osteoporisis and this medication was approved in November of 2002. All other medications have not improved my Bone Density scores so this was my last option. I will say that since I have been using the injection(which is daily) that my T scores improved significantly from -4.8 to -3.6 in my lumbar region and from -3.2 to -2.7 in my hip. I do feel stronger and keep up with exercises 3 times a week.
    I just got my results back from the C-scan and there was no evidence of cancer - I am already a cancer survivor and was nervous about this scan.
    You can get more information by going into a search engine for Forteo - the password is newbone.
    Hope this helps.
    Jacque *^*

     
    Old 12-01-2003, 03:26 PM   #5
    Kaitrin
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    Re: Forteo

    That is wonderful that your scores have improved so much! I am hoping that Fosamax will "do the trick" for me but I will definitely consider Forteo if my scan next year shows no improvement.

     
    Old 12-01-2003, 07:10 PM   #6
    Jacque98376
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    Re: Forteo

    Quote:
    Originally Posted by Kaitrin
    That is wonderful that your scores have improved so much! I am hoping that Fosamax will "do the trick" for me but I will definitely consider Forteo if my scan next year shows no improvement.
    Thank you for your reply - if there is ever any informatin you may want with regards to osteoporosis medications, please let me know( I am feelling like a guinea pig and expert) in this new field of medication. Take care,
    Jacque
    p.s. I am still taking Evista (had a hysterectomy a long time ago)

     
    Old 08-24-2004, 01:03 PM   #7
    mktwise
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    Re: Forteo

    Hi,

    I just started using Forteo and wondered how you are doing after all this time?

     
    Old 08-24-2004, 06:51 PM   #8
    Kaitrin
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    Re: Forteo

    My doctor has never mentioned Forteo as a possibility for my osteoporosis - have those of you on Forteo already had fractures? I haven't had any osteoporosis-related fractures and I wondered if maybe that was why the doctor only had Fosamax and Actonel in mind but didn't apparently consider Forteo. (Or maybe the doctor just hadn't heard of it yet - family practicioners can't get the latest info on every single condition, I suppose.)

     
    Old 08-24-2004, 07:21 PM   #9
    mktwise
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    Re: Forteo

    I have been taking Fosamax for 5 years and it has done little to improve my bones. My t score for my hip is still -3.3 (severe) and my spine is -1.7. This is about where I started. I started using the Forteo one week ago and will use it for 1 1/2 years, if all goes well. I have been VERY sleepy since I started. I never took naps before and I have been sleeping all afternoon for the last week. I just feel groggy.

     
    Old 08-25-2004, 12:04 AM   #10
    Oldbones
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    Arrow Re: Forteo

    I'm starting on my 6th month of Forteo injections. I inject my thigh ..... doesn't hurt as bad as the other alternative (stomach)

    My GP and Ortho doctors had never heard of Forteo either. I did my own research and asked my GP about it. He talked to my Rheumatologist and he had patients taking it. My Rheumy is in a much larger city than my other doctors and is very up on all meds. He ordered all the tests to rule out parathyroid disease before starting me on the Forteo. He just wanted to make double sure it wasn't my parathyroid causing me to lose calcium and contributing to the osteo and fractures. However, from what I understand, Forteo is a type of parathyroid hormone.

    I haven't had any side effects except a flushed feeling a couple of times after the injection. I'm just hoping and praying for good results...... for all of us.

    Oldbones

     
    Old 08-25-2004, 08:35 AM   #11
    mktwise
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    Re: Forteo

    I have only used my stomach for my injections. I thought the thigh would hurt more since the skin would be tougher.... but I will try it when I get up my nerve. I will have more bone density scans in 6 months.

     
    Old 08-27-2004, 06:42 PM   #12
    Jacque98376
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    Re: Forteo

    I have stopped using Forteo as I was experiencing some real terrible reactions about 3/4 of an hour after my injection into my stomach. I started trembling uncontrollable and was freezing, crawled into bed and finally calmed down but then had extreme "hots"
    (had this happen about 5 times)
    Contacted my Dr. who told me to stop, which I was going to do, and then he put me on Actonel - 6 month bone density showed improvement (Aug) My 10 month bone Density while on Forteo showed my going backward. I am also taking calcium and Vitamin D with my Actonel. No reactions to anything.
    I should of placed this Post before now, sorry. My hip has gone from osteoporosis to osteopenia. Will definitely stay on this schedule. Seeing my Specialist in Sept.

     
    Old 09-27-2004, 07:45 PM   #13
    Canyondweller
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    Re: Forteo

    I just looked up the cost of Forteo. Obviously you must have prescription coverage as it runs over $500 a month. Not very feasable for people without insurance like those of us on Medicare

     
    Old 09-28-2004, 01:22 PM   #14
    Oldbones
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    Arrow Re: Forteo

    Quote:
    Originally Posted by Canyondweller
    I just looked up the cost of Forteo. Obviously you must have prescription coverage as it runs over $500 a month. Not very feasable for people without insurance like those of us on Medicare
    Yes, Forteo is very expensive. I have a good insurance policy that I've paid into for 27 years. I am able to get a 3 month supply for one co-pay. I'm really thankful for my insurance and the fact that it will pay on Forteo. I was somewhat disheartened to read of Jacque's side effects and her bone density going "backward" on Forteo. Thankfully, she is doing well on Actonel which I could not tolerate at all! It did a job on my stomach even though I followed the instructions to a "T". I fractured both feet in a two month period in October and November, 2003 and in December I fractured my hip. I am so hoping that Forteo is working for me. At least nothing else has broken since I started on Forteo so that is a plus. I don't think many doctors use Forteo on their patients unless their bone density scores are severe and also if they can't tolerate Actonel or Fosamax. I do hope that in time, the price of Forteo will decrease so that it is more affordable for someone without insurance.

    Oldbones

     
    Old 09-28-2004, 10:39 PM   #15
    Canyondweller
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    Re: Forteo

    Well, mine is severe at -4.5 and I cannot tolerate the meds because of esophageal problems that I have without the meds. The nasal spray gave me such splitting headaches that I could not stand it so as of now I am on nothing. Will have another test in March because the other was not the DEXA but done by CT scan. May have to risk using the pills. Sure cannot afford Forteo. Unfortunaety when I turned 65 my insurance would not cover me anymore and now I pay for Medicare and a supplement.

     
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