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    Old 01-15-2006, 03:04 PM   #1
    Kirim
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    Back pain related to Actonel?

    After 2 yrs of taking weekly Actonel, for the past 6 days I have been experiencing a very uncomfortable back pain. Aspirin, Advil, etc. are not helping.
    Do you think that this could be Actonel related?
    I work at a desk for more than 9 hours daily and it is getting pretty uncomfortable.
    I was diagnosed with mild osteoporosis in my lumbar spine. Does osteoporosis hurts?

     
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    Old 01-15-2006, 10:48 PM   #2
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    Re: Back pain related to Actonel?

    Hi,
    I haven't taken Actonel so I don't know if back pain is a sympton. Do you have any previous back problems and pain. Alot of sitting could cause back pain. I don't have any pain with osteoporosis but a fracture could cause pain. Small fractures might not show up on xray but you could ask your doctor about that.

     
    Old 01-17-2006, 11:12 PM   #3
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    Re: Back pain related to Actonel?

    When I took Actonel, I usually spent the entire week in pain everywhere. Most of my joints, my back, my neck and my knees hurt the most. If back pain is not something you've had before, I'd say it's the Actonel. It caused a lot more problems than it was worth. Besides pain, it made me anemic and I practically lost my appetite - something I haven't gotten back so I rarely eat often like I used to and lost almost 10 pounds per month until I took myself off of it. Then I tried Fosamax, had similar issues and removed myself from Osteoperosis drugs.

    Does Osteo hurt? I don't know if it hurts by itself. I haven't and don't feel it. If I get a compression fracture I might

    If an uninformed Dr. tells you that feeling the side effects means the Actonel is working, they're wrong (one told me that).

     
    Old 01-19-2006, 11:33 AM   #4
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    Re: Back pain related to Actonel?

    Yes, osteo meds can cause back pain. I've tried every single one of them including Forteo injections. Couldn't tolerate the side-effects of any of these drugs. Until they come out with something with less side-effects, I'll take my chances. You might try strontium supplements as an alternative.

    Osteoporosis by itself does not cause pain. The pain is a result of fractures or you could have some spinal arthritis. Sitting all day is hard on the back, but if you've never had back problems, then I would agree it's probably the Actonel. You have to decide if it's worth it for you to continue on it. Have you made substantial bone gains in the two years you've been taking it? I had a back x-ray done to be sure I had no fractures. The only sure way to know is to have an MRI.

    Last edited by Piano0105; 01-19-2006 at 11:35 AM.

     
    Old 01-19-2006, 12:13 PM   #5
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    Re: Back pain related to Actonel?

    Fosamax gave me severe leg pains and charley horses in my toes where they would curl up and I would be screaming in pain until I could get them straightened out. My poor husband - rushing into the room, would massage my feet. I have been off Fosamax now for a year and a bit, and the pains might be lessened but they are still there. Fosamax and Actonel have very long half lives. Prior to taking Fosamax I didn't even know what a charley horse was. I'll never take those drugs again. I'm now trying more natural means - calcium and eating healthy, walking, weight training, and last night I went to my first Yoga class. I enjoyed it and hope it will help, too.

    Right now I have three packets of Actonel in my bathroom drawer. They were pharmacy samples that my rheumatologist gave me to 'get me started' on an Actonel regimen. He stated that it would be easier on the side effects than Fosamax. I put the packets in my purse - simply because I didn't want to argue with him - after telling him over and over that I couldn't take Fosamax.

    It's just really hard to know what to do.

    Linni

     
    Old 01-20-2006, 07:40 PM   #6
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    Re: Back pain related to Actonel?

    YES, ALL bisphosphonates like Fosamax can cause pain. This class of drug will completely change the make up of bone. First of all, they kill osteoclast cells, one of two types of cells absolutely necessary for natural bone growth. The other is osteoblast. Without osteoclast cells, you can no longer build bone. It doesn't matter how much exercise or weight training you do. "Bone building" drugs replace natural bone with a plasticy type of material that actually gets more brittle over time. It's not a wonder that taking these drugs causes bone and joint pain. Fosamax killed my best friend this past summer and I've done a LOT of research on these types of drugs, even calling Merk Pharmaceuticals to confirm much of what I found. PLEASE read "The Myth of Osteoporosis", a great read that confirms what I've found - that bisphosphonates are neither safe or effective.
    Good luck to all of you and spread the word, please.

     
    Old 01-23-2006, 07:35 AM   #7
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    Re: Back pain related to Actonel?

    Yup. I can attest to Actonel causing bone and joint pain. I have been off of it for about 2 months and am feeling much better. I'm scheduled to start Forteo at the end of Feb and all I'm doing right now is calcium supplementation and exercise. I am hoping that I have not lost too much bone in this time (my t-score was -4.5) and sometimes I feel I have not done enough to maintain what I have. So I had some questions for anyone who has some input. 1) How often, and how much time do you spend on weight bearing activities (I ask this because in the book "Exercises for Osteoporosis" the exercises are relatively of short duration, especially when completing the set programs, and given that you have to leave a day in between). 2) Have any of you done shorter courses (VS the 18 months) of the Forteo? We know some of the bad stuff about the bisphosphonates but not about the Forteo so it is somewhat worrisome for me (as am sure it is for all of you taking it). 3) What are your longterms plans in managing your osteoporosis; ie. after several years on the bispho's or the course of Forteo. Is anyone doing hormones?
    I would like to thank everybody on these boards for all of the help and information you impart. You are priceless!

     
    Old 01-23-2006, 06:04 PM   #8
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    Re: Back pain related to Actonel?

    meca,
    I try to walk twice a day, always at lunch time and then either after work or during work when going around the campus to/from a meeting. I should lift som hand weights but don't do it on a regular basis. I've been on the Forteo for about 16 months but i hope to stay on it for the full 24 months. The listed side effects are scary but so far I don't notice any. I don't know what I'll do after but it won't be taking oral biophosphates, because my stomach can't take it. I guess I'll keep taking calcium and doing exercises. Maybe a new treatment will be available. I'm not taking hormones either because I can't tolerate the side effects.

     
    Old 01-24-2006, 06:46 AM   #9
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    Re: Back pain related to Actonel?

    Thanks for your input Taape. It helps to know what others are doing. I guess that since I am not taking any medication at this time, I am trying different things just to try to keep from getting worse. I have made an appointment this friday to see a holistic doctor just to see what I can do as adjunct therapy, especially before and after the Forteo. I will let you know if I find out anything interesting. Thanks again for all.

     
    Old 01-24-2006, 11:43 AM   #10
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    Re: Back pain related to Actonel?

    meca,
    Yes, it is hard to know what course of action to take. I did quite a bit of research before deciding to go on Forteo when my doctor suggested it. I had some concerns, but finally decided that the benefits (hopefully) outweighed the risks. I have been on it for about 10 months and am anxious to see if I have any improvement, although I understand it can take up to 18 months to see any improvement (my spinal T-score was -3.5). I have not had any side effects from the Forteo so far. I was on Actonel for a year before starting the Forteo. I know a lot of folks on this board have had problems with Actonel and Fosamax, but I was fortunate and did not have any problems with it. I don't know what I will do when the time is up for the Forteo. Some of the things I have been reading lately make me think I do not want to go back on Actonel, but that will be a year or so away, so maybe some new miracle drug will come along! Actually, I would like to not have to take any medication and try to maintain my bones with diet and exercise, but guess we will have to wait and see. I try to eat a healthy diet, take calcium supplements and exercise. I take an aerobics class which includes weight-bearing exercises and strength training and am pretty active otherwise. I am post-menopausal but opted not to take any hormones. I'm not sorry I made that decision, but sometimes wonder if my bones suffered for it. I still have trouble coming to terms with the fact that I have osteoporosis. I am basically healthy and have had no broken bones or fractures. Good luck to you.

     
    Old 02-03-2006, 05:31 AM   #11
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    Re: Back pain related to Actonel?

    Quote:
    Originally Posted by Kirim
    After 2 yrs of taking weekly Actonel, for the past 6 days I have been experiencing a very uncomfortable back pain. Aspirin, Advil, etc. are not helping.
    Do you think that this could be Actonel related?
    I work at a desk for more than 9 hours daily and it is getting pretty uncomfortable.
    I was diagnosed with mild osteoporosis in my lumbar spine. Does osteoporosis hurts?
    I had to go to ER yesterday because of the back pain. They took many X Rays and it was determined that my back pain is caused by a deviation in my spine (something else to add to my osteoporosis/osteopenia)
    I have to call my doctor today, but the doctor at ER told me that there is nothing I can do other than to take pills for the pain and pills to reduce the inflamation cause by the rubbing.

     
    Old 02-03-2006, 04:57 PM   #12
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    Re: Back pain related to Actonel?

    I would ask to be referred to a Spine Specialist -orthopedic spine surgeon. The emergency room doctor may not be making a comprehensive assessment of your problem.

     
    Old 02-08-2006, 03:54 AM   #13
    Kirim
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    Re: Back pain related to Actonel?

    Quote:
    Originally Posted by taape
    I would ask to be referred to a Spine Specialist -orthopedic spine surgeon. The emergency room doctor may not be making a comprehensive assessment of your problem.
    I have an appointment to see my doctor on Friday. He has requested the xrays from the ER I went to.
    Let's see what he has to say.
    Meanwhile, I wonder how can I go on with my regular routine. How am I going to clean my house, etc..
    I still have pain, it is a bit better thanks to the 800 mgs Ibuprofen, I am also taking before bed time a pill called Flexiril (or something similar) to reduce the inflamation, maybe that is helping too.
    I will post again after Friday.
    Thank you all for your concern. God bless

     
    Old 02-08-2006, 09:57 AM   #14
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    Re: Back pain related to Actonel?

    It's typical for doctors to find other causes for the pain caused by bisphosphonates and other drugs. Many surgeries are performed on those who's only real problem is their drug. Oh, they'll often find "proof" of a physical problem, but is it really the cause of the pain? Get a second and third opinion before resorting to surgery. Bisphosphonate joint and bone pain is common.

     
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