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  • Hope shattered!!! DEXA WORSE

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    Old 01-24-2008, 02:31 PM   #16
    rudiraven
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    Re: Hope shattered!!! DEXA WORSE

    Carol.....this is not about your osteoporosis, just a little suggestion to help you feel better. Go to a shelter and find yourself a "senior" dog who needs someone to love them just like you do . Being a "senior" they won't be so rambunctious and liable to hurt you. It always helps having a non-judgemental "friend" to share our time with. Hope that helps a little and hang in there.

     
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    Old 01-25-2008, 12:11 AM   #17
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    Re: Hope shattered!!! DEXA WORSE

    Podiecat---Get yourself to a doctor who specializes in osteoporosis. Before clearing me for medication mine did a big-big panel of lab work (two full pages of lab requisitions) testing for any condition that might be contributing (in addition to other risk factors like age etc). To my astonishment, the tests came back that I have a major Vitamin D deficiency, total news to me since I take a daily vitamin with the usual amount of D. We need Vitamin D in order to use calcium. I am "spilling" calcium---it is getting wasted rather than utilized. She says this is due to a genetic defect in the tubules of the kidneys. I am 74! I have had good medical care! How can nobody have picked this up before? So now I am on a mega-dose of Vitamin D. Without that, the osteoporosis drug alone would not have helped much or maybe at all and as for the calcium supplements I had been taking for years, I may as well have thrown them out the window. Are you near a university medical center? Call them and get a recommendation for a bone health center or specialist. All doctors don't know everything, while "an expert knows more and more about less and less".

     
    Old 01-25-2008, 05:01 AM   #18
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    Re: Hope shattered!!! DEXA WORSE

    Rosaflor - Do you happen to be in new England? If you are, can you give me the name of your doctor?

    Everyone I've been to says something different and I need a detective as you mentioned. I know that until my endocrine issues are resolved, I won't be able to absorb the 1000 IU's a day of D or all of the other minerals I need. I had to fight for a year just to have the full thyroid panel done which showed that I had been on too much thyroid!!! I know that again, something is not right.

    Please - Can anyone suggest a great detective/osteoporosis doctor/endocrinologist in New England?

    If I was properly and thoroughly evaluated it looks like a possibility - although my liver and ovarian cysts may make it contraindicated. Again - I would need a great, smart doctor who not only can SEE the whole picture but also follow up with ongoing screenings to make sure that my liver, etc is doing okay on the med.

    My naturopath is incredible - the only 'doctor' I trust. She has tried so much for two years now and lots of what we tried, I reacted to. She is as frustrated with my doctor as I am - for not following up the thyroid, etc.

    I contacted a DO in the past and he just shook his head and said it was too complicated!!!


    Rudiraven - I appreciate your suggestion. I do have two cats to cuddle with and have been looking for the right dog, but I'm so wiped out so often and can't keep up with this big old place alone as it is.....

    Last edited by moderator2; 01-25-2008 at 06:33 AM. Reason: posted commercial website

     
    Old 01-25-2008, 08:32 AM   #19
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    Re: Hope shattered!!! DEXA WORSE

    podiecat, sorry to hear about your situation. Although I don't have anything to add about the osteo, I noticed that you said your ability to do weight-bearing exercise is restricted by a Morton's neuroma. If you are hoping to address that problem, I can recommend cryosurgery. I had cryo last year for another foot condition (fibroma), and it was a huge improvement, enabling me to return to a higher level of exercise. There are only about 50 podiatrists around the country who do cryosurgery. I ran a search for New England and did not locate a specific doctor, but here's some info that might be a starting point:

    "...a strategic partnership .... to jointly form 10 regional cryosurgical Centres of Excellence throughout New England. The centres, each of which will be equipped with a complete Cryocare Surgical System, will collectively be called the New England Cryosurgical Alliance and be located in Maine, Vermont, New Hampshire, Massachusetts, Rhode Island, and Connecticut. "

    I too am 55 and in the past 1-2 years been dealing with (like you) foot problems, hypothryroidism, and bone issues (no bisphosphonates for me either) so I wish you the best and will keep you in my prayers.

     
    Old 01-25-2008, 09:24 AM   #20
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    Re: Hope shattered!!! DEXA WORSE

    Podiecat-About your questions on doctors in your area who could help, I did a little looking around and found some information that I hope will help you.The Endo and Bone Specialists are at the Univ. of Vermont Med. Center in Burlington . I put this information and more about the UV Med Center in a separate thread to you . It seems like it should be in a new chapter, a more hopeful chapter for the coming year. Because new posts are coming in , it is slipping down the page but look for the thread that starts with Podiecat.

    Last edited by osteoblast; 01-25-2008 at 09:35 AM.

     
    Old 01-25-2008, 07:38 PM   #21
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    Re: Hope shattered!!! DEXA WORSE

    Hi Deanana, Is cryosurgery done with a laser? - I'll look it up.

    I think part of my recent total meltdown was because I've been trying to break myself into new $300+ orthotics that my podiatrist pushed me to have made and they are not right. The arch is too high and not only is the neuroma pain much worse, but my balance has been off - very scary with my DEXA scores. He will try to remake them one time but I can't get my money back.

    The surgery he suggested would be going down in from the top of the foot to remove the bundle of nerves. Is that the surgery you are talking about?

    Carol

     
    Old 01-25-2008, 08:10 PM   #22
    suggi
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    Re: Hope shattered!!! DEXA WORSE

    Hi

    I am 10.9% below fracture level in my spine and 10% in my hip and the only med I can tolerate (or am not allergic to) is Evista. I too have gone down on the Evista as time goes by. It is scary as I was being very careful not to lift more than 5 - 10 lbs and not bend from the waist, etc. and then hubby's asthma got worse and he had a passing out spell that the doc has not pinned down as yet but he has been extremely tired since soooooooo I have been out there helping him shovel snow which I haven't done since my diagnosis. I also raked leaves this fall and have been bending over cleaning and am going to attempt to paint a couple of rooms because I want to get a house all on one floor as mine is a multi level with the bathroom and bedroom not on the same level as the kitchen and at the rate I am going I am afraid I will end up in a wheelchair. If I ever fall I'm done for..... My endocrhonologist moved away and I am not sure of the one I have now. That doesn't seem to be a popular field around here and I can't drive into Boston. That would certainly kill me.

    Any thoughts from any of you would be appreciated. Can't seem to find anyone to help and do not have that support that my friends have with their relatives, kids, etc.

    Thanks much. I am going to be 70 and because we had mold remediation because of water intrusion in the basement on wood walls (which we got rid of) I am supposed to keep this place dust free.....HA HA. I live on a state highway and it is really dusty here. I have 3 air purifiers going at all times. The mold is gone but they said I have to keep the humidity down and mold likes dust. They said that goes for any house but this house is just too much for me to clean. Hubby only makes $17/hr so I can't hire a cleaning company. He had a good paying job before but the whole department was laid off and he had to keep downgrading his resume to finally land this job. I am grateful that he is working but it is hard keeping up with the bills. We used up our savings and the equity loan.

    I never thought my "golden years" were going to be so hard. Every day brings a new problem, either with the house or our health. I had a mastectomy also and have Crohn's disease.

    Thanks for letting me vent. I know there are those out there worse off than me but sometimes I really get overwhelmed.

     
    Old 01-26-2008, 02:44 PM   #23
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    Re: Hope shattered!!! DEXA WORSE

    Quote:
    Originally Posted by podiecat View Post
    Hi Deanana, Is cryosurgery done with a laser? - I'll look it up.

    I think part of my recent total meltdown was because I've been trying to break myself into new $300+ orthotics that my podiatrist pushed me to have made and they are not right. The arch is too high and not only is the neuroma pain much worse, but my balance has been off - very scary with my DEXA scores. He will try to remake them one time but I can't get my money back.

    The surgery he suggested would be going down in from the top of the foot to remove the bundle of nerves. Is that the surgery you are talking about?

    Carol

    Hi Carol,
    No, cryo is not done with a laser but with a super-cold instrument that freezes nerves and generally prevents or reduces recurrence of pain. It is much less invasive than conventional podiatric surgery -- just a small incision to allow certain areas to be frozen. It's been used for years for some conditions but only for several years for some foot conditions such as plantar flibroma (not sure how long for neuroma). There is a cryosurgery discussion board on some other site (not sure of name) that you could search for (maybe one on these boards too, I don't know). I know what you mean about worthless (but pricey!) orthotics -- I haven't worn mine since having the cryo. Hope you make headway on all your issues -- just keep looking for a doctor you can work with. I went 2 hours north for the cryo and 2 hours south for help with the thyroid/bone issues from a doctor specializing in bio-identical hormones.

     
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