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  • Actonel once a week side fx?

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    Old 05-22-2003, 07:12 AM   #1
    OppOnn
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    Post Actonel once a week side fx?

    Can anyone tell me if they have had following side effects after taking Actonel once a week - hair loss, weight gain, stomach irritation?

    I assume if taking it only once a week can do good, it can also have some harmful side effects?

    I can't lose hair, can't gain another pound, and have Crohn's so can't afford any stomach irritation, however slight, because I have been in remission (never cured) for 3 years and any stomach irritation could result in 6 months of active Crohn's, or forever. Can't risk that.

    So, has anyone been on once a week Actonel with no side fx?
    Thanks.
    O


     
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    Old 05-22-2003, 07:04 PM   #2
    bingoqueen
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    I have only taken 2 pills ( 1 actonel pill per week). The Dr. only gave me enough for two weeks to see if I could take it. I have had constipation which I never had before. I don't like the thought of possibly having problems with my esophogus. I think I'll just keep taking my calcium pills.

     
    Old 05-23-2003, 06:39 AM   #3
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    Stay in touch. Let me know how you are doing. That's what I want to do too.

    But am also looking into phospherous, Vit K, also one of following, SAme, DHEA, and perhaps more. Certainly the first two.

    I'm also thinking of upping my calcium and magnesium,
    from 1500 to 2000 for former, maybe 600-800 for latter, and taking care to take enough not too much D, and
    other minerals.

    The problem is it takes a long time to find out if we are doing it right.

    Maybe taking more magnesium with your Actonel would have got rid of the constipation. But all the side
    fx scared me stiff, as much as the osteo.
    Good luck to you.
    O


     
    Old 05-23-2003, 09:38 AM   #4
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    I have heard that taking too much calcium can actually leach calcium from the bones. How much is "too much" I don't know, but I try not to go over 1200 to 1500 mg.

    Peregrine

     
    Old 05-23-2003, 12:10 PM   #5
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    Yes, I've heard something similar. I think it's a question of being to absorb it. I have a feeling I didn't absorb enough. Which is what I told another kind of doctor I was consulting for something else
    yesterday - my chiropractor. He said, oh, as a woman, you need to take more than 1,500, more like 2,000.
    Men can take 1,500 he said, but not women and he mentioned somehing about he had seen x-rays with calcium pills not absorbed sticking to bones.

    I wonder if taking a powdered calcium is better?

    Also, has no one taken the once a week actonel with
    no side effects?
    O

     
    Old 05-23-2003, 07:49 PM   #6
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    I don't think I've heard of any actual pill sticking to the bone in a xray. the pill is swallowed, passes into the stomach where the juices break it down into the small intestines where what is NOT absorbed is then passed through bodily waste, urine. I think he had his head on backwards that day and meant to say you can tell by xray where calcium is not being absorbed, at least I hope he meant that.

     
    Old 05-24-2003, 02:42 AM   #7
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    I take a liquid calcium which is supposed to be much more absorbable.

    Peregrine

     
    Old 05-24-2003, 08:33 AM   #8
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    Hi OppOnn, Wish I had something good to tell you about Actonel once a week pills. Well, I lost hair, my esophogus(sp) burned, as did my stomach. After 4 pills, one month, I had a reaction, large swollen hives. Had to have a large injection of steriod to stop the reaction. Steriod reduces bone mass, ugh, I don't need to lose any more bone. Dexa shows -3.7spine and -3.5hip. That was the only reason doctor wanted me to try hard to take it after I had the burning pain in areas I mentioned. Now I am on Miacalcin Nasal Spray. I am still losing hair from this one, but cannot take any of the others, so will get a wig if I have to. Also taking calcium 3 times a day and 1 vit. D. Hope this helps, good luck with what you decide to do.
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    Old 05-24-2003, 08:46 AM   #9
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    Nancy H - I heard similar before - that the calcium doesn't always pass thru. Whatever, I don't think I am absorbing what I take.

    Peregrine - may I ask which liquid calcium you take?
    Does it taste bad or ok because I can't take juices or much since I have Crohn's.

    Cheryl Anne: Oh dear! Yes, you have helped me make up my mind. I can't risk all that. Especially any stomach or any gastro irritation - not only do I have Crohn's but also reflux. And I don't want to lose enough hair to have to wear a wig! Omigod, no.

    Why on earth can't medical research can't come up with bone building drugs without these awful side fx? Are we organized enough/complaing enough to get the message out that we shouldn't have to suffer to reverse bone loss.

    Or...well, I think I'll post another question on my Or!
    Thanks everyone.

     
    Old 05-24-2003, 12:57 PM   #10
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    It is interesting to read about the reactions to Actonel. I had an experience in February after being on once a week Actonel for 6 months. The short story is I ended up in the emergency room with bloody diarrhea. After 4 days in the hospital (2 intensive care)and every test imaginable it was diagnosed as Ischemic colitis. It has been determined that I don't have a heart problem. Ishemic colitis is lack of blood flow to the colon and some causes are heart problems and medications. Since then I have had a normal colonoscopy. Note: I went off the Actenol and two blood pressure meds that I was on after the hospital stay. Blood pressure has been great off meds.
    So, has anyone out there heard of this reaction to Actenol. My doctors say "Not likely"

     
    Old 05-24-2003, 02:09 PM   #11
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    These drugs seem so scary.

    I've just been diagnosed with osteoporisis, and just dont' know what to do.

    Poor you. Having to go thru all those tests and worries with each. But, thank goodness, you are
    OK now, both for the heart and the stomach.

    So, what are you doing to reverse your bone loss now?
    Or are you just recovering from the attempt and working out what to do?
    O

     
    Old 05-24-2003, 02:26 PM   #12
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    I also have osteoporosis and I'm 61. Doctor told me to increase my excersize and of course the Vitamin C.
    I also had headache, body aches and weight gain when I took the Actenol.I also am off of HRT due to cancer.So it is scary, however I have a 90 year old mother who still plays golf and has never taken anything but vitamins for her bones. (Doctor wanted to put her on Fosomax this year) I said no way!
    The only way we will really find out the side effects of these new drugs will be time. In Canada, UK and Austrailia they seem to have a better watch system. Actenol is one of their black flag drugs(highly watched).

     
    Old 05-25-2003, 03:36 AM   #13
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    OPPONN,

    I hope it is o.k. to post this information on this board. I don't sell it so probably o.k.

    The liquid calcium/mag with vit. D that I take is made by Innovative Natural. You can find it at health food stores such as Whole Foods. It has a slight chalky taste, nothing horrible. Considering the horrendous side effects of everything else, taste was not a big factor for me.

    I take 1 tablespoon twice a day in just a little bit of water, this way, just a few gulps and its down. I can always tell whether or not I am absorbing calcium by the condition of my nails. With everything else I have tried they split, bend and peel. Since I have been taking the liquid they are finally growing strong again.

    Have you ever tried that test they recommend to see if your calcium is being absorbed in your body? You take one of your pills and let it sit in 6 oz vinegar (supposedly a similar environment to our gut) for 30 minutes. After that time it should be broken down. If so, it is absorbable. I tried this on several different products and after 24 hours they still had not changed one iota!

    I will never ever take the calcium drugs again. My symptoms, on all of them, were so frightening (and serious)that I was sent to 2 different specialists to determine why I was suddenly having myriad problems. Thankfully, a gastroenterologist suggested I stop the calcium drugs for 2 weeks, as he had often seen similar problems with other patients from their use. I did as he suggested and all of my symptoms disappeared.

    I wish you all the best with whatever you decide to do.

    btw: did you know that Kale has more calcium than milk type products? I always try to eat a lot of Kale as well.

    [This message has been edited by peregrine (edited 05-25-2003).]

     
    Old 05-25-2003, 10:00 AM   #14
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    sse: What exercise do you do? I have an unstable 5th vertabrea but I think I do need to do more than 30 mins on my reclinng bike every day and walking up 4 (8 lots) of stairs every day, which I have just started doing.

    Vitamin C? Or calcium? I can't take more than 500 mg a day of C because of my Crohn's!

    Peregrene: Thank you so much for all that advice. I will try the vinegar test, but if your didn't change an iota, does that mean you didn't absorb the calcium?
    How are your bones, did you reverse the bone loss without the drugs?

    I will try your calcium - it is so hard to take mine in 3 or 4 lots of 2 every day. Easy when at home, but not so when out. I keep forgetting one does here and there! One gulp even if not so good to taste sounds good. Can you tell me, though, how much magnesium is
    in there? And Vit D? Are there other minerals? I need a good balance because of my stomach probs.

    All I have heard is has put me off taking drugs! Not that I would have taken them without a big motivation.

    My question is: are the drugs reversing the bone loss?
    Has anyone reversed their bone loss the same amount,
    presuming drugs do, without taking drugs? The 64 thousand dollar question!
    O

     
    Old 05-25-2003, 05:03 PM   #15
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    I meant to say Calcium.I am taking a coral calcium at the present, I don't know if there is a real advantage with it. It seems to have all the right stuff, Vit d and magnesium. I am also trying to eat more foods that contain Calcium. Right now I am just walking a lot and doing some weight lifting for the arms. Should be playing golf like my 90 year old mom! It will be interesting to have another bone density in 1 year to see how I have done, won't know till then.

     
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