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Diagnosed at 19 - worried and confused

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Old 09-26-2011, 07:09 AM   #1
Join Date: Sep 2011
Location: Australia
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Rimay HB User
Diagnosed at 19 - worried and confused

I was diagnosed 6 months ago at 19 with osteoporosis. The lack of information available for people my age has made the situation much worse, it is very frustrating to not know about the future. At all. Im always wondering HOW careful I should be, if I'm doing enough. What it means for having children? I keep finding conflicting information. Doctors dont help at all they say they arent sure either, but that its bad. Its very discouraging to have a doctor tell me that I needed to be more upset about my diagnosis. I wasn't upset at the time because there was nothing to really tell me what the diagnosis meant for my future, and really there still isnt.

They don't know what has caused the osteoporosis so therefore treatment has been very complicated especially because I am limited with my age and long term effects of msot of the drugs are still not known.

Im in pain and especially at night in my hips and back and when I think of all the times Ive told the doctors this and they've told me how thats not possible because osteoporosis doesnt cause pain it just makes me want to cry with frustration.

If anyone has any sort of information that they could provide, like personal stories I'd be very happy to hear them.

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badbadbones (09-26-2011)
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Old 09-26-2011, 11:27 AM   #2
Join Date: Sep 2011
Location: Indianapolis, In. USA
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badbadbones HB User
Re: Diagnosed at 19 - worried and confused

Hi Kiddo,
I'm sorry. Did you have a break? Did they do a Dex scan on you or how did they diagnose
you?? Genetics and the medication for asthma I took as a child had alot to do with mine; it seems that you are getting little info from your Dr.

Old 09-26-2011, 04:59 PM   #3
Join Date: Sep 2011
Location: Australia
Posts: 2
Rimay HB User
Re: Diagnosed at 19 - worried and confused

I was sick for awhile, losing weight and dizzy all the time, I was constantly at the doctors and doing every test known to man kind all coming back negative. As a "routine" sort of thing because I was showing signs of a metabolic disease she sent me for a bone density scan which came back with an average of about -2.8. So because of my situation instead of focusing on the osteo and treatment I was sent to specialists for the other side of things trying to find the cause, which they still cant. So in the middle of everything I was going through I finally got a test back that said I had something (osteo) but then had to face the fact that it still didnt tell me what was wrong with me and is not something that can just be easily fixed.

I asked the doctor if it was because of the weight I'd lost but she explained that the damage my bones seem to have would have taken years. The only treatment I have been put on is the birth control pill and I have to skip my monthlys, this is so the estrogen can protect my bones?

Its starting to really effect my life, I worry about it all the time because Im concerned about the future and the pain can be at times unbearable. Im looking for a new doctor, Ive had such bad experiences with medical things and doctors, I have more faith in eastern medicine after what Ive been through.

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ml56 (09-27-2011)
Old 09-30-2011, 12:13 AM   #4
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Join Date: Sep 2011
Location: Victoria, Australia
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laurav HB Userlaurav HB Userlaurav HB Userlaurav HB User
Re: Diagnosed at 19 - worried and confused

Hi Rimay, and Hugs

I can sure sympathise with your worries. I'm 26 and just been diagnosed with osteoporosis myself - though at least in my case I know that there are multiple reasons to explain why I've developed it.

Was it just your GP who referred you for the bone density scan? Are you seeing an endocrinologist? They're often the best people for exploring causes, as well as treating if treatment is necessary. (Ignore me completely if that's the doctor you've already seen).

In any case - *hugs* and all the best with the investigations.

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