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    Old 06-12-2018, 10:39 PM   #1
    Sickand tired45
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    Not much left

    Ive had 2 spinal fusions, degenerative disc disease,bulging, all the spondy's ,thoracic,lumbar,and the cervical. Ive done physical therapy,injections,all of it.I have a fairly physical job,on my feet all day. The only thing that helps me is the medication dilaude, but with all of this opiate.crackdowm the people who need it cant get it, Dr's are scared. I just want to. be at a pain level of 6 but im at 8-10 all the time,its wearing me down,im miserable,i make my wife miserable,anyone going through this? I need someone who understands that im not making my back pain up. I just wanna function at work

     
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    Old 06-13-2018, 07:59 AM   #2
    backhurtz
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    Re: Not much left

    Are you being treated by a Pain Management doctor, a physiatrist or your primary? If you aren't being treated by a pain management specialist or a physiatrist/ physical medicine and rehab specialist, you might want to consider those options.
    I have always found that dealing with a physiatrist/physical med and rehab doctor was far better than most others.
    Quote:
    Originally Posted by Sickand tired45 View Post
    Ive had 2 spinal fusions, degenerative disc disease,bulging, all the spondy's ,thoracic,lumbar,and the cervical. Ive done physical therapy,injections,all of it.I have a fairly physical job,on my feet all day. The only thing that helps me is the medication dilaude, but with all of this opiate.crackdowm the people who need it cant get it, Dr's are scared. I just want to. be at a pain level of 6 but im at 8-10 all the time,its wearing me down,im miserable,i make my wife miserable,anyone going through this? I need someone who understands that im not making my back pain up. I just wanna function at work

    Last edited by backhurtz; 06-13-2018 at 08:00 AM.

     
    Old 06-14-2018, 06:33 AM   #3
    tortoisegirl
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    Re: Not much left

    Welcome! Sorry you are struggling. I think there are always more options, although potentially similar to what has been tried before. Another option is combining therapies that were tolerated in the past but by themselves didn't have a noticeable result, as in combination there could be an impact. Yes, seeing a pain management doctor is important, as is seeing one who you click with, who you feel believes your pain and genuinely wants to help you manage it better, frequently having new ideas and wanting to see you often. If that isn't the case, keep trying. It took me about four tries to find a good fit.

    Yes, they are becoming more difficult to find, but when looking for a new pain doc, try to find one who does "medical" management (which means with medications, which may include opioids, but yes, it is getting more rare). You don't want one who only does "interventional" treatment (injections).

    I too get moody when I am in prolonged severe pain, I think everyone would. Some suggestions are:

    - Be aware of the effect of the pain on your mood and try to warn/apologize to your loved ones in advance.

    - Combine treatments. Few of us get significant relief from just one. As you know, the main categories are daily medications, as needed medications, injections, alternative therapies, and lifestyle adjustments. There are always more options left, although often similar (such as being in the same med class). For example, I had given up on muscle relaxers as I had tried about four of the most common ones, but my doctor mentioned a "new" one that he read about, Lorzone. Turns out it is just a higher dose brand name option of an older one, Chlorzoxazone. However, unlike the others, it has actually been helpful and doesn't cause side effects like sedation.

    - Take care of yourself. For example: Seek out a therapist if you are willing, ideally one trained in helping patients with chronic pain or chronic health conditions. They may be able to help you cope with the pain, help your loved ones understand what you are going through, give you some strategies to try to help reduce stress/anxiety, etc.

    Insurance typically covers therapeutic massage with a doctor's prescription; that can be helpful for muscle tension and stress/anxiety. Make time to do things that make you happy and improve your mood, even small things, like watching a show that makes you laugh, or enjoying a piece of chocolate. Try to stay positive, but also let yourself validate your more negative feelings.

    Focus on getting good sleep, eating well, staying hydrated, getting a bit of exercise (water therapy is often recommended for folks who can't tolerate even typical light exercise). If you have adjunct symptoms with the pain, like depression, anxiety, or sleep issues, all of which are common, seek out diagnosis and treatment for them. Although pain can be very difficult to effectively treat in the long term, these other issues are often more easily treatable, and can improve quality of life.

    If you have sleep issues, seek out a sleep specialist. For me personally that has made a huge difference. I found out I have multiple sleep disorders going on. Look into workplace accommodations through the ADA which may help you cope throughout the workday. For example, an ergonomic office chair, being able to have more flexible hours or take extra breaks (and extend your workday). Taking some time off (whether a chunk of time, or in a regular basis) through FMLA is another option, although unpaid, but it does secure your job.

    Hang in there! Best wishes.
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    Kate
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