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  • Chronic Pelvic Pain

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    Old 03-12-2004, 11:57 AM   #1
    ruko4
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    Chronic Pelvic Pain

    I am being treated at a pain management clinic for chronic pelvic pain, I am a 25 year old male who has seen 5 speacialists which 4 were Urologists, have had many urine,blood,semen,samples cat scans, mri,cyscostopy not sure if that is the right spelling or not, many meds 38 different ones, many trips to ER, I probably forgot some things as well. Anyway I have had this problem for over two years now with treatment at a Pm clinic for the last 8 months. I am currently taking Oxycontin 40mg tid, Percocet for bt pain and Elavil 25mg hs, and before that Duregesic 50mcg every 48 hours and many different bt meds demerol 50mg, Dilaudid 2mg, Percocet, The problem with the Duregesic was it wasn't helping with my pain enough and I was having to take way too many bt meds that were not helping much either.

    None of the many doc's I have seen really know what's causing the pain or how to treat it so that's why I am being treated at a PM clinic. The pain is inside my pelvis in the perinium area and also in the testicles. My testicles do not hurt to touch they just HURT! They call the pain reffered pain from the Prostate area. Sexually it doesn't effect me except that at times when the pain is bad I really don't feel like having sex.

    The most frustrating part is not knowing what is causing this pain.
    The Oxy I am on now work's pretty good and allows me to function and be normal, before I was put on this drug I was a mess it was hard to do well almost anything so I think it's been a real life saver for me.
    But I am finding when I do have bt pain it's hard to get rid of, the percocet I am prescribed for this just does not cut it most times and I do what I am suppose to I take it at first sign of pain and usually I take 2 but no relief, so I am thinking maybe hitting it at a different receptor maybe with some dextromethmorphan or another short acting pain killer might help me, any suggestions or info on my condition or about dextro or bt meds in general
    would be great, thanks!!
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    Last edited by ruko4; 03-12-2004 at 11:58 AM.

     
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    Old 03-13-2004, 12:39 PM   #2
    Shoreline
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    Re: Chronic Pelvic Pain

    Hey Shawn, It sounds like you have had the right tests done so I don't intend to scare you by telling you about my cousin. When he was 21 he saw 42 different doctors, was basically treated like the biggest drug addict in the state and the 43rd doc finally did the right test and found he had testicular cancer. He was told he would have died within 2 months if it hadn't been found then.

    He was treated and is doing well now but simply because of his age nobody ever considered the possibility he would have TC. Just make sure you educate yourself about the possibility of prostate and T cancer so you know the right test are being done. My cousin had no clue other than the terrible pain.

    I have a friend that's a coroner, She said that every man over 60 she has ever done an autopsy on, either had undiagnosed PC or died of prostate cancer. In her opinion. men getting prostate cancer isn't a question of IF but rather When. Most likely when you are a senior citizen, but there is no such thing as being too young for a disease or condition. Just educate yourself and make sure they do the right tests. You do have to be your own advocate.
    Take care, Shore

    Last edited by Shoreline; 03-13-2004 at 12:42 PM.

     
    Old 03-14-2004, 12:39 PM   #3
    surgicaldisaster
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    Wink Re: Chronic Pelvic Pain

    Shore, you are not kidding about age not being a factor...my son had rhabdomayosarcoma(an extremely aggressive cancer)below his left testicle when he was 2 yrs.8 mos. old. He is now 10 and cancer free. Assuming they have done tests to rule this out, of course there are other breakthrough meds. available, and not to mention we all react differently to different meds. So, while percs might work for someone else for BT pain, it just may not for you. There are other options to discuss with your Dr. There is roxicodone, dilaudid, Lorcet, Vicoden, and many others. I would suggest you tell him/her that it's not helping and see what he/she comes up with. A lot of the time it is trial and error until you find a good fit. Hang in there and good luck...Surgical Disaster. Ps. Have you had any surgeries in the pelvic region? I only ask because I suffer from ARD(Adhesion related disease) and it can cause the pain you describe as well.

     
    Old 03-15-2004, 10:59 AM   #4
    ruko4
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    Re: Chronic Pelvic Pain

    Thanks for the replies you guys, I have had other tests done for testicular and prostate cancer and they said I had neither. Also in Canada we don't have Vicodin all we have for hydrocodone is a syrup for severe coughing and also a tablet 5mg of hydro only used for a cough suppressant as well, Lorecet they don't even make I am pretty sure of.
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    Last edited by ruko4; 03-15-2004 at 10:59 AM.

     
    Old 03-15-2004, 05:03 PM   #5
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    Re: Chronic Pelvic Pain

    Just a stab in the dark here, but I hope Shoreline reads this.....is it possible this pain could somehow be from his back? I remember reading on another board about a guy who was have testicular and pelvic pain...turned out he had some problem in the low lumbar but can't remember what it was. Does that sound at all plausible?
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    Old 03-15-2004, 06:58 PM   #6
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    Re: Chronic Pelvic Pain

    Anyone with pelvic pain should read up on these: sacroiliac joint dysfunction, pelvic malrotation or unleveling, pubic symphesis dysfunction, sacral ligament dysfunction.

    I have had extcrutiating pelvic pain for 10yrs and just recently found it was related to a fall from a horse. It caused my ligaments to weaken, then with my first pregnancy, my pubic symphesis tore and caused horrid pain. When it reattached, it lengthened one of my legs by a half inch and the ligaments became more lax as time went on. It allowed my hips to ride a little outside the sockets because of shallow sockets and the pain was in my hip joints, sacrum, pubic bone, creases of my thighs, down the thighs and shooting pains in the groin area.

    It was enough to put me in a wheelchair with my second pregnancy and caused me to be unable to even lift my legs upward without help. If you look up pubic symphesis dysfunction, there's a site that has personal stories and one is Kmom...she puts it into words that make so much sense.

    The only real relief I got from the pain was a massage therapy called structual integration. I won't lie, it hurt like hell! But it was only painful for the moment, there was no residual pain and I started to get extreme relief after about the 5th visit. It's about 100.00 per appointment and you do 10 of them. It was the first time I walked upright with out crying. Well worth it......then I got pregnant with my second and blew it all to crap! It tends to be a "side-effect" of it. If you don't want to get preggers, take precautions! I was pregnant by my 8th appointment and didn't get to finish, so I'm going to be starting again.

    Good luck, hope this helps.....oh yeah, the medical "cure" for it is surgery and screwing hardware into your bones....rarely provides any type of relief, is painful and not curative. Just stabilizes the bones, not the ligaments. Another treatment that I've heard is helpful is prolotherapy. I'm going to do accupuncture and more chiro as well. The chiro gives more immediate relief, but you have to do massage with it to allow the muscles to move back into the right position or they'll keep pulling the bones out of place.
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    Old 03-16-2004, 06:03 AM   #7
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    Smile Re: Chronic Pelvic Pain

    Hey ruko4, some other suggestions about breakthrough meds(didn't realise you are in Canada) are dilaudid, roxicodone, actiq, msir(morphine immediate release), and I know Shore is the expert on this type of thing, but I know there are a lot more. I think a frank discussion with your Dr. is in order to get this pain under control. And, I think Angel could very well be right, have they checked your back? Just a thought...hang in there and pls. let us know how you are doing! Surgical Disaster

     
    Old 03-16-2004, 07:30 AM   #8
    ruko4
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    Re: Chronic Pelvic Pain

    Thanks again for all the replies you guys are really knowledgeable and helpful this board has helped me out alot!
    One of the urologists that I recently spoke with mentioned that a lower back problem could be the cause of my pain but he said not likely. Also my PM doc said that some nerves from your lower back some are how are connected to your pelvic area or something like that. But if this is true why don't I have alot of back pain? Is it possible that a lower back problem can cause little back pain and refer all of the pain to my pelvic area? My PM doc said that it is definetly refered pain because it does not hurt to touch.
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    Old 03-16-2004, 05:45 PM   #9
    injured betty
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    Thumbs up Re: Chronic Pelvic Pain

    Quote:
    Originally Posted by Angel77
    Anyone with pelvic pain should read up on these: sacroiliac joint dysfunction, pelvic malrotation or unleveling, pubic symphesis dysfunction, sacral ligament dysfunction.

    I have had extcrutiating pelvic pain for 10yrs and just recently found it was related to a fall from a horse. It caused my ligaments to weaken, then with my first pregnancy, my pubic symphesis tore and caused horrid pain. When it reattached, it lengthened one of my legs by a half inch and the ligaments became more lax as time went on. It allowed my hips to ride a little outside the sockets because of shallow sockets and the pain was in my hip joints, sacrum, pubic bone, creases of my thighs, down the thighs and shooting pains in the groin area.

    It was enough to put me in a wheelchair with my second pregnancy and caused me to be unable to even lift my legs upward without help. If you look up pubic symphesis dysfunction, there's a site that has personal stories and one is Kmom...she puts it into words that make so much sense.

    The only real relief I got from the pain was a massage therapy called structual integration. I won't lie, it hurt like hell! But it was only painful for the moment, there was no residual pain and I started to get extreme relief after about the 5th visit. It's about 100.00 per appointment and you do 10 of them. It was the first time I walked upright with out crying. Well worth it......then I got pregnant with my second and blew it all to crap! It tends to be a "side-effect" of it. If you don't want to get preggers, take precautions! I was pregnant by my 8th appointment and didn't get to finish, so I'm going to be starting again.

    Good luck, hope this helps.....oh yeah, the medical "cure" for it is surgery and screwing hardware into your bones....rarely provides any type of relief, is painful and not curative. Just stabilizes the bones, not the ligaments. Another treatment that I've heard is helpful is prolotherapy. I'm going to do accupuncture and more chiro as well. The chiro gives more immediate relief, but you have to do massage with it to allow the muscles to move back into the right position or they'll keep pulling the bones out of place.
    I am currently undergoing Prolotherapy theatments. I don't know if they would work for everyone but it was well worth my money. No insurance covers it. I pay $400 per session and have undergone two sessions. The pain from my hip to my back has already subsided. I no longer have pain in the front of my pelvis where it was coming through.

    I tried all of the other alternatives but found nothing else that said that it would possibley make my ligaments return to their original state after an injury. At this point I give it a thumbs up.

    I am going to undergo four treatments altogether. That comes out to about the cost that you are paying for the structural integration. He tells me that I might have to return for a tuneup later, but I doubt it.

    I was a REAL skeptic when I started this process. But ligaments are what holds your body together and if they are lax, you fix them or it is PM.

     
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