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    Old 05-18-2004, 03:56 PM   #1
    momofsix
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    zanaflex

    My doctor is considering trying zanaflex as an adjunct for my nerve pain. What experiences, good or bad, has anyone had with this medication?

     
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    Old 05-18-2004, 04:43 PM   #2
    sirsickalot
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    Re: zanaflex

    Hi Linda,
    I took Zanaflex for about two years for Neuropathy. The only reason I took it so long is because it really helped me sleep. Be very careful taking this drug because it will bring on sudden uncontrollable drowsyness. I don't think it helped me much other than sleep. It is worth a try and I can'r remember any other side effects other than that. You will know if it is helping you feel better right awayif it is working. Good luck

    Rich

     
    Old 05-18-2004, 10:08 PM   #3
    REC73
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    Re: zanaflex

    Heya Linda

    My PM doc has had me on zanaflex for about 3 mo. now for muscle spasms in my lower back and for sleep. The only time i take it is right before i go to bed because it makes me extremely sleepy.

    Good luck and let us know how it goes!
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    Old 05-18-2004, 10:16 PM   #4
    Dave0787
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    Re: zanaflex

    Linda,

    While Zanaflex is a wonderful medication, what you describe is more of a neuropathic pain problem. Zanaflex will help you sleep, but it won't do a whole lot as far as reducing your pain.

    When dealing with neuropathic pain we have two drugs that we like to use as first line therapy. For any form of neuropathic pain other than post-herpatic neuralgia, we typically like to use Neurontin. For PHN, the preferred agent is Carbamazapine (Tegretol).

    Alot of people say Neurontin didn't work for them, and this is common for a few reasons. Firstly, not all drugs work for everyone. However a big factor in whether Neurontin will work for you depends on what sort of doseage you reached. Does less than 1800mg/day are simply NOT going to make any impact on your pain. Sometimes doses nearly 2x that are needed to get adquate pain control.

    For people already on one of these drugs, Elavil makes a good adjunct. Elavil, which is a tricyclic anti-depressant, works on improving sleep cycles and inhibits reuptake of certain brain chemicals, which helps reduce pain.

    Finally, if nothing else helps your pain, it's important to realize that opioid medications ARE indicated for neuropathic pain, and they DO help. One drug that I've had wonderful success with in the treatment of neuropathic pain is Methadone. It's dirt cheap, and packs a huge punch for pain control.

    If I can be of any other help, please feel free to ask!

    David Adams, ARNP

     
    Old 05-19-2004, 06:10 AM   #5
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    Re: zanaflex

    i took zanzflex for back spasms did'nt really do anything but make me tired have you tried neurontin dave is right about the methadone i was on it for about 3 yrs and it took 95% of my pain away if you do go on it make sure your on it for life because the effects of coming off it are a nightmare good luck to you and keep us posted luv kelleigh

     
    Old 05-19-2004, 07:06 AM   #6
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    Re: zanaflex

    Dave,

    What's your response to Kelleigh re coming off the methadone? I have an appointment to talk to a specialist about methadone, but I don't want to be on something I'm stuck with for life. I still like to hope this problem will one day resolve itself.

     
    Old 05-19-2004, 09:28 AM   #7
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    Re: zanaflex

    "Going off" of any opioid is not a pleasant thing. While in no way does this show your "addicted", it's simply part of process. Your body has become tolerant on the medication, and has learned to function with it in your system. Removing it is like removing any other subtance that is vital for functioning. Your body is going to want it back.

    As far as Methadone goes, I actually prefer to use it as drug to taper a patient off of opioids with . This is because Methadone has an extremely long half life, and dose reductions take longer to be noticed. Which, ironically, is the exact reason some people don't like to use Methadone for tapering, but I digress.

    Basically what I'm saying is this. If you really wanna to stop ANY medication, including Methadone, it can be done. It can be done with out any sort of rapid dextox, inpatient detox or detox period. Any practitioner worth their salt can taper an opioid so that a patient has minimal side effects.
    Can you stop taking it over night? Not if you've been on it for awhile. But you will eventually be able to stop taking it.

    David Adams, ARNP

     
    Old 05-19-2004, 12:49 PM   #8
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    Re: zanaflex

    Quote:
    Originally Posted by DaveARNP
    "Going off" of any opioid is not a pleasant thing. While in no way does this show your "addicted", it's simply part of process. Your body has become tolerant on the medication, and has learned to function with it in your system. Removing it is like removing any other subtance that is vital for functioning. Your body is going to want it back.

    As far as Methadone goes, I actually prefer to use it as drug to taper a patient off of opioids with . This is because Methadone has an extremely long half life, and dose reductions take longer to be noticed. Which, ironically, is the exact reason some people don't like to use Methadone for tapering, but I digress.

    Basically what I'm saying is this. If you really wanna to stop ANY medication, including Methadone, it can be done. It can be done with out any sort of rapid dextox, inpatient detox or detox period. Any practitioner worth their salt can taper an opioid so that a patient has minimal side effects.
    Can you stop taking it over night? Not if you've been on it for awhile. But you will eventually be able to stop taking it.

    David Adams, ARNP
    i wish you were there when i took my self off methadone they did not wean me what so ever i've been off 100 or so days and still suffer physchological effects from it believe me methadone was great for my pain don't get me wrong and i'm not trying to make her not try something different my experience was just pretty bad but my dr did say if i went back on it for pain i'd be on it for life if you could shed some light on that you seem to know alot about it and i can finally maybe get an answer to a question i've asked on the addiction and recovery board was my experience so bad because i went from 50 to 0 ? my physical w/ds lasted 5 or more weeks thanks kelleigh

     
    Old 05-19-2004, 12:53 PM   #9
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    Re: zanaflex

    linda i did'nt mean to put any doubt in your mind it is a really good opioid for pain i probably should'nt of said that because everyone is different and it's my own personal experience sorry believe me if you go on this you will be pain free hugs to you kelleigh p.s. another good thing about it is it has a 24 hr half life so you don't have to take it as often as other narcotics when ifirst started taking it 10 mgs lasted like 10 hrs again sorry i should'nt of said that i hope you resolve your pain issues soon i know what chronic pain is i suffer everyday my thoughts are with you

    Last edited by no patience; 05-19-2004 at 12:57 PM.

     
    Old 05-19-2004, 01:11 PM   #10
    StarfieldJane
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    Re: zanaflex

    Hi Linda,
    I'm on 10mgs Zanaflex 3x a day..Everyone is right, it makes you sleepy, but I've been taking it about a year now and it seems the sleepiness side effect has reduced considerably. It does help me with the spasms in my back, legs and feet. It doesn't help with pain, but it definately helps me with spasms. Take care,
    Jane
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    Old 05-27-2004, 07:00 PM   #11
    Amanda01
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    Re: zanaflex

    I was on Zanaflex for muscle spasms due and it worked pretty well but did knock me out. I am now on Baclofen and it works much better w/o the side-effects

     
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