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  • Pain Pump - Questions for those who have it

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    Old 02-12-2005, 07:04 AM   #1
    klh121560
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    Question Pain Pump - Questions for those who have it

    Can anyone who wears or has researched well pain pumps help me with a few questions. A friend of mine who has been in pain for as long as I know her, needs help. She had ovarian cancer in the past, an illeostomy, back pain and sciatica, and now has abdominal (pelvic) cancer again. Because of the illeostomy, she can only take SA meds and has been on Morphine Sulphate for years. She is at a very high dose and having trouble with docs wanting to Rx for her. She is also part of that terrible NJ workers comp system so she hasn't had the best choice of docs.
    She is about to go to chemo for the recent cancer bout, but I want to help her get better pain control. She mentioned a external pump that can be manually adjusted, but I haven't heard of that. I only know of the internal implantable ones from Medtronics or J&J.

    Can anyone tell me as much as they know about pain pumps. Who makes them?, how much do they hold/how often they need refills?, what meds can go in them?, is there an external one she talked about?, and what you feel are the pros and cons having used them now?.

    Thank you for any assistance you can offer !


    Peace,
    Ken

     
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    Old 02-12-2005, 07:57 AM   #2
    myspine
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    Re: Pain Pump - Questions for those who have it

    Hi Ken
    I am so sorry to hear about your friend. Unfortunatly I have never heard of a external pump. I just wanted to say welcome. I do not know if anyone else knows anything about that either. Is it a clinically trial? Medtronics only does the internal, and I only THINK external is done on a trial basis, maybe someone will jump in soon with a answer. Good luck to you and your friend.
    shelley

     
    Old 02-12-2005, 01:08 PM   #3
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    Re: Pain Pump - Questions for those who have it

    I have the implanted intrathecal morphine pump. I have not heard of an external pump, outside the hospital after surgery.

    I got great results for my trial and have the implant now for 18 months. It's a wonderful devise and I wouldn't trade it for anything out there other than a whole new back! If you want more detail, go to medtronics. If you want specific info from experience, let me know what your questions are and I will be happy to answer whatever I can.

    Carol
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    Old 02-13-2005, 06:06 AM   #4
    klh121560
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    Re: Pain Pump - Questions for those who have it

    Thank you for your replys.

    Shore - The only problem (as if there weren't alot) with WC, is that it only allows my dear friend to see their docs. There are not many to choose from, and they don't seem to want to help or Rx pain meds in the quantity she needs. The WC is not for cancer, but for an accident she had at work which hurt her back badly. She has had pain from that along with sciatica to add to her other problems.
    It breaks my heart to see her in pain all the time. We spoke yesterday as she is in a rehab clinic for cancer trying to get her strength so she can go to needed chemo sessions. The doc has slowly cut her pain med (morphine) and this only makes her go thru withdrawal which doesn't help her at all. We are trying to change the docs mind now. Hopefully, this will happen and she can then work on getting stronger.
    I have gone to the medtronics site, read their info, found specialist close to her (one of my old PM docs is a specialist) and when she gets thru the chemo, she can see him about a pump.

    Carol - Thank you too for your help. And yes, if you have time, any personal info is helpful. I can always read websites, but other CP patients personal stories are what is not on a website. At least one that you can interact with.

    It was my friend that told me about an external pump, but I too have not heard of it. She may have incorrect information. She is the sweetest caring person, and has helped many thru her pain. When I talk to her and she is crying, I wish I could be ther to help, but I live in a different state, so I do as much over the phone with her, and with whatever info I can get or make things happen as I can. I am sure everyone reading can understand what it feels like. She and I are both buddhists, and I believe that is what gives us are internal strength.

    Peace,
    Ken

     
    Old 02-13-2005, 01:25 PM   #5
    geifer
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    Re: Pain Pump - Questions for those who have it

    I am on my second pump first one put in 1997 and the second in 2001, I go to pain management thur a hospital I know there are private doctors who also take care of this. Try calling a hospital in your area and see if they offer it, I am not sure but I hope this helps. Take care and all my best geifer

     
    Old 02-13-2005, 04:47 PM   #6
    carol632
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    Re: Pain Pump - Questions for those who have it

    Ken, I am not sure what kind of info you want. I got my pump because of stenosis, fbss, fibro, osteophytes.....severe leg pain and lower back pain were the worst of my symptoms.

    I had the 4 day trial. A catheter was inserted into the spine and ran to an IV pump where the morphine dripped from into my spine. Over the next few days, the amt. was adjusted as I walked and moved around. By the time I left the hosp I was almost pain free. Came back 10 days later and had the implant. It was a quick surgery (40 min), recovery time was fast, just a few days and i had hardly any discomfort and was receiving excellent pain relief.

    There are other ways of doing the trial. One is a one time injection directly into the spine; another is a catheter placed and you wear the pump in a fanny pack for 3 weeks while the meds are adjusted. If you respond well, the pump is implanted.

    If you have specific questions, let me know. I am more than happy to help.

    Carol
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    bone spur removal
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    morphine pump

     
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