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Mayo Clinic Arizona

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Old 11-02-2005, 06:27 PM   #1
Join Date: Jul 2005
Posts: 489
notpain HB User
Mayo Clinic Arizona

I have been in pain for almost 15 months. I have slight TMJ, Cervical Disc Disease, and buldges or herniations (who knows every doctor calls them something different). Adn I have chronic sinusitis. I've been full circle 18th doctor today. I've seen multiple surgeons, neurologists, ENT's, physical therapists, etc. No one can figure out what is going on. I just get this "I don't think it's your neck", followed by "I don't think it's your sinuses", then "I don't think it's TMJ"... ad nauseum. Well I feel the problem in my neck and no one can figure it out and they keep just pointing back and forth. I'm sick of doctors, but I'm also sick of being sick.

One surgeon suggested I visit the Mayo Clinic. I have also been told I should see a Neuro-otologist (And that's great advice except for the one guy in the state is booked out until January). In the meantime I get worse and worse and can no longer care for myself and I am having trouble walking. So either I get myself in front of a Doctor who will at least TRY and figure it out, or I wait to die.

Anyone have any experience with the Mayo Clinic In AZ? It's closest to me.

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Old 11-02-2005, 10:18 PM   #2
Join Date: Dec 2004
Location: Tempe, AZ
Posts: 309
StMishl HB User
Re: Mayo Clinic Arizona

My understanding used to be that the Mayo clinic was where you check in and STAY until they figure out what the heck is wrong with you... I also live in AZ and very much wanted to give this a try (as my back/hip will NOT get better and I have RA). However when I called, I was told you make an appt, which at least with my isurance I needed a referal for, and were seen by a regular ortho, or neurologist or whatever... they just happened to be the very best and had all the "tools" (MRI, X-RAY, surgery suites, etc...) in-house. BUT please know this was simply MY experience based on 2 phone calls, so maybe it is NOT correct....
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Failed Bk Fusion, facet joint/hip issues & RA -Wish I could Jump like him!

Old 12-12-2005, 09:07 PM   #3
Join Date: Jul 2005
Posts: 489
notpain HB User
Re: Mayo Clinic Arizona

I can not recommend Mayo Clinic AZ - just a big cattle call, and very expensive. Save your $ and search for reputable specialists.

Old 12-12-2005, 10:21 PM   #4
Join Date: Sep 2005
Posts: 306
stacykgb20 HB User
Re: Mayo Clinic Arizona

I do not recommend that anyone get treated at a facility that your insurance does not cover. But it isn't that difficult to get a referral to the Mayo Clinic from another specialist in my experience, though I go to the original one in Minnesota. They definitely have some of the best doctors available there, and I have been very pleased with each of the roughly 10 doctors I've seen there, including 3 or 4 neurologists and neurosurgeons. The half dozen or so neuro-doctors I had seen before them in some of the most renowned clinics and teaching hospitals in the Twin Cities were all completely ignorant when it came to my condition and therefore acted extremely defensive, hostile, rude, and condescending toward me. I honestly thought all neurologists and neurosurgeons were useless idiots and complete jerks who had no clue at all what do do with any patients who weren't magically cured by Neurontin and the other poisonous anti-seizure drugs they worshipped. But Mayo was completely different, and I recently read that their neurology department is ranked as #1 in the country...are you anywhere close to Minnesota? Because if there is any way you can get treatment from the main Mayo Clinic, I highly doubt you will be disappointed with the quality of care, and I honestly believe their team of doctors will be as well or better suited to treat you as any others you could find, both because of their skill level and because of the efficient and cooperative system in which they operate. Just by way of example, my main doctor at Mayo, who heads up their orofacial pain department, has referred me to nearly a dozen specialists hoping they had any suggestions that might help me (I have an extremely unusual, rare condition which everyone in the medical community tells me is still very mysterious and poorly understood, lucky me) and has consistently been able to set up appointments for me with the heads of a variety of departments within a few days. He is also amazingly caring, dedicated and experienced...both the doctors I see there regularly are willing to inconvenience themselves on extremely short notice in order to help their patients in any way they can. I believe that the Mayo Clinic in AZ is a completely separate institution who does not benefit from the unique financial structure of Minnesotan medical organizations nor the vast endowment and thus the financial ability to attract great doctors that the original Mayo Clinic benefits from. Again, if you have any way of getting in to see them, I would recommend it very highly, particularly if you are desperate for help, and I'm very sorry to hear that you weren't pleased with your experience at the AZ clinic.

Old 12-12-2005, 10:28 PM   #5
Join Date: Feb 2005
Location: Minnesota
Posts: 448
Taimse HB User
Re: Mayo Clinic Arizona

I saw a doctor in Physical Medicine and rehabilitation at Mayo in Rochester, MN. Put me through a bunch of tests for RSD....autonomic and temp tests were abnormal and consistent with CRPS. bone scan was normal. Told me I didn't have RSD. He didn't refer me on to any other specialist....only Pain Rehab if I wanted to learn to live with my problem. Told me the pain was in my head but wrote to my primary doctor and said to probably keep me on Neurontin. My primary doctor told me the day after I saw that doc that she knows my pain is real.

Last edited by Taimse; 12-12-2005 at 10:30 PM.

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