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    Old 11-28-2005, 06:52 AM   #1
    ab1977
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    Chronic daily migraines-SOS!

    Hi everybody,

    I'm hoping someone can offer some advice to me as I'm very near to giving up on ever feeling better. I have had chronic daily migraines nearly every day for 2 years straight now. They started suddenly with no warning and I have no history of migraines. I am a 28 year old otherwise healthy female with no other chronic conditions. I have been hospitalized repeatedly most times for up to 7 days at a time for my pain with nausea and vomitting. I have been through 3 neurologists who often give up and say their is nothing else they can do for me. I have been on every drug in the book from beta blockers to abortives to anti-depressants. Nothing seems to help. In addition I've had multiple tests including regular MRI's. My life has been severely impacted not to mention my career and relationships. I'm not sure what to do and on really bad days I feel like ending it all. Do the doctors even fathom what I go through everyday? It feels like they don't even care. Anyway, sorry for the bellyaching just hoping someone can offer some advice or hope.

    Thanks,

    ~Aimee

     
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    Old 11-28-2005, 10:53 AM   #2
    curiousforever
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    Re: Chronic daily migraines-SOS!

    are you taking birth control pills?

    I had them daily but only when I was pregnant...and I had one baby in Jan of 99 and my next in 3-00...MISERABLE...let me tell you. Pregnancy was supposed to be enjoyable. I was taking care of my other 2 boys (and 3 during my last pregnancy) with daily migraines and throwing up.

    I was given stadol nasal spray during both pregnancies. That was the only thing that worked.

    Have you had your homone levels checked? I know before I had any kids that I got migraines-first 2 pregnancies I didn't get migraines-2nd 2 pregnacies I got them daily-and since then-none (Thank goodness...)

     
    Old 11-28-2005, 11:19 AM   #3
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    Re: Chronic daily migraines-SOS!

    I don't take birth control specifically because I was told they caused migraines. I have had my hormone levels and they were normal.

    Thank you

     
    Old 11-28-2005, 12:16 PM   #4
    curiousforever
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    Re: Chronic daily migraines-SOS!

    Have you done a daily list of things you've eaten to see if there is a correlation?

    Things like caffiene, chocolate, etc can cause migraines...what about allergy testing? Is it possible that could be causing it?

    Just throwing things out there for you-I have no idea what you've tried...

    Have you tried stadol nasal spray? It's heavy duty stuff.

     
    Old 11-28-2005, 12:46 PM   #5
    ab1977
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    Re: Chronic daily migraines-SOS!

    Yeah I've went through just about every kind of drug out there including preventatives and abortives. I haven't had allergy testing, my neurologist doesn't seem to think I need it as he is certain I have a neurological disorder. Though at the same time he hasn't done much to help me over the past several months, I feel like my pleas for help have fallen upon deaf ears.

     
    Old 11-28-2005, 12:52 PM   #6
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    Re: Chronic daily migraines-SOS!

    What is he doing then to find it? Can you have a neuro disorder and not be able to find it?

    Can you ask your primary doc for allergy testing? I would think if you had a food allergy that it could cause problems with migraines. (not that I know for certain though)

     
    Old 11-28-2005, 03:21 PM   #7
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    Re: Chronic daily migraines-SOS!

    Hi ab, I'm so sorry youre going through this! I've been there, when the specialists decide they've done all they can for you, Its depressing. Maybe you can ask for a referral to pain management, as well as these ideas other posters have suggested for trying to pinpoint the causes. I have heard from people that it can be difficult for migraine patients to get into a standard pain clinic, but I'm not sure why, at the very least maybe your neuro guy can suggest a headache clinic. Hang in there, and remember you always have us to talk to, and we care. ~Fabby

     
    Old 11-28-2005, 05:51 PM   #8
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    Re: Chronic daily migraines-SOS!

    I am just throwing this out there and i know oppiates are a last option. Would maybe some level of an oppiate provide relief, with the level of mild sedation that they give? have you tried any standard oppiate pain killers? What do they do for you in the hospital when you go there for your migrains? let me know so i can maybe offer up some help.
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    Old 11-28-2005, 06:19 PM   #9
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    Re: Chronic daily migraines-SOS!

    Stadol is an opiate.

     
    Old 11-28-2005, 06:22 PM   #10
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    Re: Chronic daily migraines-SOS!

    I meant like hydros,percs,morphine,demoral, especially demoral cuz i hear that used for severe severe migrains. Have you tried that stuff?
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    Old 11-28-2005, 07:31 PM   #11
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    Re: Chronic daily migraines-SOS!

    Dear ab1977 (Aimee),

    I have Lupus and the Lupus Anticoagulant--have been diagnosed difinitively since 1993. One variable that is different for me is that I am male!!

    However, the medication that "curiousforever" stated saved my life until I was evaluated for Chronic Pain and changed to much stronger and long-term medications! "Curiousforever" stated that her usage of Stadol Nasal Spray (a Class IV opiate, although it was not a controlled substance when it first came out) was the "thing" that saved her life during the time when she needed it. When I used Stadol NS, I paid $7 per Rx with my insurance. It wasn't until much later that I learned the "without insurance" price is between $70 and $80! When I used it, I used one bottle per week. Can you imagine how a person who truly needs the relief of Stadol could possibly afford it? While I am aware that it is available in a generic form, I highly doubt that a person saves very much!

    As "Chaddyfriend" alluded, there is a vast array of additional opiates that help migraine pain. As well, there are certain types of corticosteroids that help some people. The idea that different medications work for different people cannot possibly be emphasized enough!

    NOW...Here's where I go into my tantrum. I get obnoxiously sick of certain doctors who think the use of opiates for migraines is "wrong" or "inappropriate".

    Let's face it, friends: Whatever relieves the hellish and seemingly endless pain of migraine headaches deserves evaluation. And, I don't care if it is as simple as Tylenol w/Codeine or as advanced as chronic use of morphine, Demerol, or fentanyl.

    Relief is relief. No person deserves the pain of ongoing Migraine Pain. The physicians who refuse to prescribe adequate amounts of these various types of opiates--for whatever reason--must have never experienced this type of pain.

    I'll finish by my gripe. I think most of the problems concerning the location of relief has to do with doctors being scared and/or threatened by governmental/medical agencies pertaining to the prescription of opiates.

    This is the same gripe I seem to repeat, but it always helps me feel better (psychologically, at least) each time I express it!

    Sincerely,
    Jon

     
    Old 11-28-2005, 11:35 PM   #12
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    Re: Chronic daily migraines-SOS!

    conductor, i cannot agree with you more. Youm ight find this interesting , i havnt mentioned this on here before. When i went to see my nuerologist like 3 weeks ago, he had little signs all over the room saying "We do not prescribe or refer to oppiates for migraine use". That seems ridiculous to me! Like u said above, severe pain is severe pain, If i person is in sever pain cuz they chopped of there arm and a person is in throw up crying screaming bloody murder pain because they smashed there big toe with a hammer, severe pain is severe pain. I can understand people drug seeking and not really having something wrong with them, but when someone has had severe severe migraines for 2 years and has not gotten sufficient help or options, that is ridiculous. These oppiaphobe docs are making people suffer. I do however understand that oppiates are only a last resort, but it seems to me this person has tries ALOT to treat her migraines without oppiates, and i think it is time to try something that mite actually work. Now there, that was my grip along with you bro! Have a good nite my fellow cpr's!
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    Old 11-29-2005, 05:40 AM   #13
    feelbad
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    Re: Chronic daily migraines-SOS!

    I'll tell ya,i had truely forgotten just how totally debilitating head pain can be up til this past month with dealing with this brain aneurysm,honestly.i have gotten migranes off and on since i was thirteen and for the most part,my midrin really saved me and then as the years have gone by,my migranes went from,when they first started,like twenty per month,to maybe like one per year.so I had really not had to actually deal with the head pain for many many years as the midrin usually aborts them before they get to the horrid stage.but recently,wow.this really really just totally debilitated me.I was getting them every day(the midrin was not working well at all) and also ones from the aneurysm alone.and am still getting them off and on since the coiling was done on the 14th of this month.honestly,as horrid and nasty as my spinal cord secondary injury crap,and the RSD in my knee is,these headaches actually are what is really doing me in here.head pain,quite honestly,just has got to be the absolute worst type of pain you can get.I am in no way trying to say that our chronic pain situations are not totally devistating,but with this horrid headpain,geez just thinking hurts.I cannot believe that any docs espescially any neuro doc who knows just how horrid migranes can be would let you suffer through this nightmare without offering you any sort of narcotic relief since none of the 'old standard" migrane therepies have worked for you.You DO need to seek out a good pain clinic just to see what they can offer you,really.most neuros do not actually really 'treat' pain very well at all.a good pain clinic would at the very least,offer you some good pain options while you try and find the actual culprit as to the cause.

    Have you ever done a food diary?i found out,just by keeping a very exact record of all and any food or other junk that I put into my body for just six months,that my big migrane triggers were foods that for some reason,i was eating before with absolutely no problem,were just all of the sudden,causing alot of my migranes,really.I actually cut the frequency down to that one per year(don't know what triggers that one but it just happens sometimes for some other reason than a food trigger)just by writing down what I ate and for some reason,my migrane would not show until the next day,never the day that I actually ate the offeding food.all i had to do was watch for any patterns tp develop and wow,did they ever.I figured out just by doing this that i can no longer(but did for years with NO problems at all up til it just started happening)eat peanut butter,drink red wine.eat certain foods with some sort of particular red dye,and italian sausage is out of the picture now too.whenever i ingested any of these things,the very next day,migrane.as soon as i stopped eating this stuff,i no longer was getting nearly anymore migranes.i just don't understand why these foods just all of the sudden started causing migranes in me,no idea.I lived on peanut butter during my first pregnancy,but four years later during my secongd PG,it was a no no,and causing migranes.which really really sucked as i was craving it like almost constantly.i also don't know why the migranes wait til the next day to show up either.strange but true.I really really think you should at least try doing the food diary and when you get a migrane,go back and see just what you ate that day and also highlight that particular day so when you get the next migrane you can compare.just keep doing this and eventually you may start to actually see some sort of correlation going on .This really really helped me alot.and the big thing here,get yourself to a good pain doc,really.i do think you will get much much better care and some actual compassion from this type of doc vs any sort of neuro doc.good luck,and please keep us posted on how things are going.I really really do feel for you,believe me.Marcia
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    Old 11-29-2005, 06:33 AM   #14
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    Re: Chronic daily migraines-SOS!

    Exactly Jon/conductor! I used a bottle a week. Went thru a bunch of garbage to get to that point. From "you're just upset you're pregnant again" to "you're just stressed". Until I found a doc who agreed that with me they were hormonal migraines.

    But only after I proved him wrong with something else - ha ha...cause my youngest during a test had shown to have down's syndrome-but I told him he was off on my due date. He argued with me. I still told him he was wrong-I told him how *I* knew. So he did an ultrasound to "prove" me wrong. And gee whiz...I was right.

    My point is, you know your body better than any doctor. if you learn to really listen to the triggers. The food diary is a good idea...cause I noticed that I ended up with one every time I ate Chinese if it had MSG in it. Stuff like that.

    Keep coming here cause between these wonderful people, they'll be sure to help figure something out to help you.

     
    Old 12-10-2005, 04:39 AM   #15
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    Re: Chronic daily migraines-SOS!

    i suffer from chronic daily headaches, they can last up to 18 hours a day. I have been advised by my doctor to try yoga, acupuncture or regular massages, to relax the tension in the neck. Tension headaches are triggered by stress or underlying emotional factors and so have been told to try relaxation techniques

     
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