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Soo much pain

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Old 07-17-2006, 02:35 PM   #1
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eclipse27 HB User
Soo much pain

I've had alot happen to me the past 5 years, 2 disloacted shoulders, 2 disloacted knees, carpel tunnel. I have an extremely high pain tolerance...but right now ive been facing something for a year. Extreeme headaches, Horrible pressure, Horrible pain behind my left eye. No pain medicines (tylonel or adivl) can help. Dr.s don't know what to give me ....don't even know what i have. Any recomendatoins. I also have extreme fatigue.

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Old 07-17-2006, 07:55 PM   #2
Join Date: Jul 2006
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mergatroy HB User
Re: Soo much pain

We don't know your situation, but you listed some of your medical problems. It sounds like you have a high pain threshold, but if a dr. hasn't figured out what your problem is within a year, I would look elsewhere.

I have a breathing problem that has stumped 3 pulmonary doctors and each one works on me for a period of time, then tells me they don't have a clue. And they usually recommend a specialist of some kind. At least they are honest enough to say they don't know and send me to another doctor. Maybe this is what you need? Or leave town to find someone?

Best wishes to you. Headaches like that must be horrible. Is there a large city close by (if you are not already in a large city)...go shopping. One guy said he went to the Mayo was close to him and he wanted a second opinion.
He got it.

Old 07-17-2006, 08:09 PM   #3
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mshatch HB User
Re: Soo much pain

Hey there
I had several of your symptoms before I had neck surgery on c5 and c6. Headaches, fatigue, muscle pain, among others. Its hard to say exactly what could be going wrong but obviously there is something going on. If you have been going to this doctor for that long and you still have symptoms I would also say its time for a second opinion.
I know its hard to get across to most doc's that we are in real severe pain but you know you are. I think in most cases you would have to have a diagnosis to be able to go to a pm doc.
Please try to get a second opinion and if not get a full spinal MRI.
Let us know how things work out ok.
Best of luck

Old 07-17-2006, 11:13 PM   #4
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zoey1 HB User
Re: Soo much pain

Have a question given your problems have you seen or been refered to a rhumatolgist yet? Imflamation can cause all kinds of issues and high sed rates can contribute to underline pain issues as well as the imflamation. If you haven't tried that route yet see if that could help. Some of the fuller staffed clinics have exrays labs all on site the inital appointment can do lots of lab work exrays etc and give you at least part of an answer in short order.
My advice would be to try that route next.

Old 07-18-2006, 08:26 AM   #5
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mpvt HB User
Re: Soo much pain

My suggestion would be see an optometrist and a neurologist.Headaches that cause significant pain or last more than a day need to be evaluated.Don't let this go on as you could be dealing with something that needs medical attention right away.Good luck and let us know how you make out...Dave

Old 07-19-2006, 01:56 PM   #6
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Lightbulb Re: Soo much pain

Have you ever heard of Cluster Headaches? My husband gets these in cycles, as do most people who suffer with these monsters. He will have them daily, usually twice or more a day (actually, they usually happen at night).. they can last up to an hour I believe, but most last around 30 minutes. Usually the cycles occur months at a time. Like, he'll have them daily for a couple months and then all of a sudden they will be gone for months.

Some people get what is termed a "shadow".. it's like the typical migraine sufferers' "aura" before the pain. They cause INTENSE stabbing head pain and pressure.. and here's the thing that stuck out with you.. the pressure is usually behind one eye. That eye may turn bright red and the whole area around the eye may even swell a bit during them. My husband has been in the ER getting shots of I don't even know what, but it doesn't help him at all. He just has to wait it out.

Do your headaches wake you up when you lie down to sleep? That is a telltale sign of Clusters. Not everyone with Clusters has this prob, but just about everyone that has headaches that wake them up from sleep has cluster headaches.

My husband's GP diagnosed him, but he was then referred to a neurologist (who is actually MY pain management doc, but this was before I was referred to him). My husband takes OTC Melatonin to regulate his sleep patterns.. I don't know the dosage or anything like that and I'm NOT telling you to try it, I'm just saying.

Don't just take my word on this at all. I think you need to see a neurologist regardless. Headaches like that are nothing to play around with!

Good luck, and I pray this isn't what you have.. they're horrendously bad and can force just about any man into a fetal position praying for death. Ask your doctor about Clusters.. you may want to research it yourself first. Arm yourself with info!!

Old 07-19-2006, 02:29 PM   #7
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Re: Soo much pain

I am so sorry you are having such horrible headaches. If you have a high threshold for pain, your headaches would probably put a normal person on the floor.

Has anyone suggested an MRI or CAT scan to make sure everything is ok in your brain? This sounds worse than migraines.

I would also agree with the suggestion about seeing an optomotrist as well.

Whatever you decide, I really hope that someone can give you some answers and some relief from this pain. Don't stop looking for answers. There is someone out there who can help.

Please keep us posted!

Old 07-20-2006, 06:00 AM   #8
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Re: Soo much pain

I have to agree with Lezlee, if you haven't gotten a CAT scan or an MRI yet, push for one.. and keep pushing until you get one. Alot of doctors try to shrug off headaches.. "oh, everyone gets headaches, blah blah blah". Yeh, bite me lol

If, by chance, you do have Cluster headaches, they're not going to show up on MRI or CT. Research is still being done to try to figure out what causes them. But, it's absolutely crucial for you to have one or both of those to rule out any other disorders.

I know I'm pushing the Cluster issue on you on a little hard, but it's only because I KNOW how excruciating these headaches are just from hearing my husband's description of them and also seeing him curled into a ball with his head in his hands almost bawling. There have been many times in the middle of winter that he has gone outside around 3am in nothing but his boxers and stuck his head in the snow to try to stop the pain. They're just that bad and no one should have to suffer like that!

Not all doctors are up to date on these at all and many of them have never even heard of them simply because it's has been so hard to get any real research on them because, per MRI, everything seems completely normal. They do know that they are a vascular type of headache in the same category as migraines.. primarily affecting males (but some women do suffer from them) beginning between 20 and 40 yrs old. There are alot of different types of treatments for them, but like with everything else, everyone is different so..

Old 07-20-2006, 06:49 AM   #9
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Re: Soo much pain

the other posters here have pretty much covered everything,most importantly,getting the MRI done on your head.i just wanted to add that anyone who is suffering from ongoing headpain without an actual Dxed cause,really DOES need a full neuro eval and an MRI with contrast,this "should' be able to catch any abnormalities within the brain and skull,even some vascular malformations such as aneurysm or avms.while your other injuries appear to be pretty significant I doubt thay have any real contributions to what is causing the headaches.

just seeing your primary for the initial eval would be fine and having him refer you for the MRI.depending on what the eval and films say,movng onto a good neurologist or neurosurgeon would really be your best bet,depending on what is or is not found.something is triggering these types of headaches,you just need to do the rule outs along the way to find the possible cause.but definitely get that MRI with the contrast dye.good luck and please let us know how things are going for you.Marcia
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

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