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    Old 08-03-2006, 02:54 PM   #1
    slipperyslope
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    Edema from pain meds?

    I was wondering if anyone else gets swallon feet and ankles from there pain medication it also effects my hands. I take oxycontin 40 mgs 2 times a day and percocet as needed for BT anyhwere from 2-6 per day 5mgs. My feet are really swallon and painful. I know its the pain meds as it started right when I got on Oxycontin. Something in that medication causes me to retain water. the Dr put me on a diuretic it helps a little but not much.

    Its not something that is to bothersome to me but I was just wondering if anyone else has this problem from there medications.

    the medication is working REALLY well for me along with the Lyrica. I can actually move around so much better and I don't have that nagging sciatic pain as much some days are better than others but that is to be excpected with chronic pain, what a god send that stuff is.

    Anyhow, thanks!

     
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    Old 08-03-2006, 11:25 PM   #2
    Fabrashamx
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    Re: Edema from pain meds?

    Hi slippery! I get the exact same thing! My feet and ankles swell so bad sometimes that I have to sleep with them up on a pillow. Mine are for sure related to my pain meds, also. I have no idea why this is happening to us, anyone know? Thanks, Fabby

     
    Old 08-04-2006, 05:24 AM   #3
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    Re: Edema from pain meds?

    Have either of yall tested for diabetes? or gotten your colertoil or blood pressure checked lately? What about ever diagnosed with arithitus * just wondering*

     
    Old 08-04-2006, 05:32 AM   #4
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    Re: Edema from pain meds?

    just curious,but did either of you ask your docs just why this occurs?it just seems kind of odd.is there a possibility that there may be some sort of involvement with the kidneys here?i don't know what,in percocet(tylenol??),would cause edema to occur thats all.

    just wanted to mention to you slippery that when you are taking diuretics,you should also use some sort of potassium suppliment or at the very least,have you potassium levels periodically checked as the repeated urinantion really does tend to deplete your potassium levels pretty dramatically in some people.you tend to lose other electrolytes as well but for some reason,the potassium really is a big problem with most people.just an FYI.i still think you both need some sort of actual explanation as to why your narcotics are causing profound edema like that.it just doesn't seem 'normal' ya know what I mean?all the extra fluid can tend to be an added "stressor' on some body systems.weird.(not you two,the edema,lol).hope things get back to normal here at some point soon.Marcia
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    Old 08-04-2006, 06:11 AM   #5
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    Re: Edema from pain meds?

    Hi Slippery!
    Sounds like you've already heard, but it seems to be pretty common. I take Hydro 5 times per day for RSD. Right now, my ankles are so swollen that I can't even wear sandals. My legs are so swollen that I can't wear my regular shorts. I have gone from 105 pounds to 120 pounds in less than a month...and it's ALL fluid! I'll be watching the board to see if anyone has any answers. I am at a point (after having RSD for over 5 years) that I'm just not willing to bother asking my "specialist". He never has any answers anyway. Only answers I ever get are from here!
    Hope you have a comfortable day!
    Mindy

     
    Old 08-04-2006, 06:36 AM   #6
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    Re: Edema from pain meds?

    Hey guys,
    Are you sure the swelling is related to the pain meds? I was on them for about a year without any swelling, but within hours of my third ESI my ankles swelled up huge. They are still somewhat swollen almost a year later.
    Mindy, isn't swelling caused by your RSD?

     
    Old 08-04-2006, 06:52 AM   #7
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    Re: Edema from pain meds?

    I have the same problem. Along with chills and then sweating. I take percocet, lyrica, cymbalta and topomax. Just added nexium as I'm sick of being sick to my stomach. Every week there is one night I canNOT sleep - and I throw up at least once a week.

    Can I have my old life back?

     
    Old 08-05-2006, 07:34 AM   #8
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    Re: Edema from pain meds?

    hey mindy,did your doc tell you that the swelling you have "could" just be the RSD itself?mine was/is.my R affected knee down thru my foot is very swollen just from the RSD alone.my L one of course looks like a flippin stick just becaue it sits next to the "elephant leg'.Just a thought.marcia
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    Old 08-05-2006, 11:04 AM   #9
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    Re: Edema from pain meds?

    Wow, I don't have to tell anyone about RSD swelling! I have it too, but we have to be very careful when "Swelling" is brought up. Not to scare anyone, but some of the biggest and important concerns are a blood clot, Cellulitis and Lymphedema. It is extremely important to find the cause of unexplained swelling, and then act. I also gained about 20 pounds. My leg was bright red and I was sent to the ER 4 times for Cellulitis, it wasn't that, and then I was convinced by another doc it was Lymphedema. I pressure wrapped it with great pain!!! It did no good.
    Finally, I have been getting a sympathetic bloc, and the swelling went away, along with my 20 pounds that I needed! (I'm skinny) I get the injections every week, and it's been about 12 weeks. I'm clueless as to what comes next! LD

     
    Old 08-05-2006, 09:41 PM   #10
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    Re: Edema from pain meds?

    Thanks for the ideas, Zoey and Marcia! Looks like Mindy is joining Slippery and I in the edema club! I have been checked for diabetes, as it runs in my family, and it has always been negative. I do tend towards high blood pressure, but it is mostly related to the pain, When my pain becomes really acute, it is not unusual for my BP to be in the 190/120 range, usually they have to give me morphine and 20 minutes later it will be 125/70 again. I have mentioned the edema to the doctor, but it has gotten much worse since I saw her last, and at the time she felt it was the heat and restricted salt in my diet. But I notice if I don't need to take pain meds for a few days, the swelling goes completely away. very wierd! Thanks and I will keep checking to see if anyone knows why, If I find anything on my own I will post it for Mindy and Slippery. Hugs, Fabby

     
    Old 08-07-2006, 09:12 AM   #11
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    Re: Edema from pain meds?

    Also with mine - that night I can' sleep at all - can rest in bed with eyes closed for hours and not get mad (like I used to when I couldn't sleep).
    Then the next day I start th rowing up.

    And like you Fabby, I' ve been checked for diabetes...

     
    Old 08-08-2006, 02:31 AM   #12
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    Re: Edema from pain meds?

    I have noticed the last 2 months my feet and ankles and hands are swollen with realy bad pain since I have been on the med;s. Also my right big toe has now become totaly numb. I am pretty healthy, no diabe, I am 5-2// 115 lbs and have no high blood pressure. Any clue??? Its realy weird more than a few people are having this problem!!!

     
    Old 08-08-2006, 06:13 AM   #13
    feelbad
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    Re: Edema from pain meds?

    hey curious,just curious here but have you ever checked to see if there would be any sort of actual drug "interaction' between the lyrica,cymbalta and the topomax all taken togehter?i would think that between these three meds that your brain would be getting a bit 'overzapped' with alot of the same types of chemicals.you know what I mean?i am familiar with the cymbalta and the lyrica(have taken those myself) but not with the topomax.isn't the topomax also an anti siezure med as well?

    this combo just sounds like it could have some sort of issues thats all.are you currently having any other side effects other than what you have already mentioned here like co ordination or eye problems?

    i am unfortunetly having to taper off the lyrica as we speak which is really bumming me out as it is really the very first and only med that has ever even touched the horrid central pain syndrome i have.it also reduced some of the intensity of the RSD in my knee.its because of the really overwhelming side effects caused by the lyrica that is forcing me to have to go off of it.

    my legs become sooo badly uncoordinated like I start stumbling around like I just drank a six pack or something.but the worst effects have been on my eyes.my peripheral vision has been really affected and also i get to where i feel like I lose actual control over them?like I have to really just concentrate on them in order to be able to focus on something.reading?? forget it.the strange thing is i would actually take my morning dose at around 5;30-6;00am,and be just fine til around 9;00am,then bam,out of nowhere these effects would just hit me out of the blue,then stay for about three hours and then dissapate,but would leave me feeling just spaced out for most of the day.the really odd thing is this "pattern' of events was like clockwork,every single morning while i was taking that morning dose.every single morning,without fail,the same time,the same thing and I haven't a clue as to why.

    i do know now(after doing a bit O research)that there are alot of the anti siezure meds that have an affect on the cerebellum inside the brain?this area of the brain actually governs a few things including co ordination and some aspects of vision.i even found on the pfizer web site that in rare instances there is a condition that you can get from lyrica called cerebellar syndrome which kind of displays the same types of symptoms I was having.kind of scared me there.

    but what really prompted me to say okay thats it,was this nightmare(are you having any sort of actual nightmares or wierd dreams on the lyrica?)which i have had a few of when i started this stuff and had never really ever had major nightmares or freaky types of dreams before that,but this was the most hidious nightmare ever.

    i dreamt that i was walking up to people and just asking them to 'please take my leg off" like all these people in some group that were all just standing around me?well this ended up somehow from me asking this to me lying on a table and WARNING THIS GETS ICKY,all i saw was me lying there with someone standing over me with a hatchet/and then the hatchet just came down on my upper leg,actually right where my pain area stops about mid thigh?and the leg was just cut off.i woke up screaming my lungs out,scared the living hell outta my poor hubby and the cat,who happened to be lying next to me in bed.but man,i actually 'felt' that pain and saw blood and everything.it was just wayyy tooo real.and that was all it took to actually make that decision,it was just unbelievable,totally unbelievable.it was just way too real ya know?

    so,the morning when I got up,we removed all the morning doses of the lyrica out of my pill boxes.for some reason,my nite dose of 50mg never bothered me.it was just adding that morning dose that pushed all things over that edge,just not taking the morning 25mgs seemed to stop all of the ongoing symptoms pretty much completely,even the freaky dreams and I was taking this dose right before bed,go figure.it must have been just a particular "level" in my blood or something when the added 25mgs was brought into the mix that really did the deed for me.

    soo now my NP wants me off all anti siezures for the next few weeks to see where my neuro pain syndromes are actually at then we are going to try a new one,again.i am a bit paranoid to be off all of the ant ss as i have been on them continuously every single day since nov 2001.this should be fun.hopefully the pain wont get too out of control during this time and between my TENs and other stuff i can keep things under control without having to make a pleading emergency phone call to my PM.i myself am rather curious to see how all my neuro related crap really is without any anti Ss.

    sorry for the long winded post.i am just wondering if anyone else who is or has taken lyrica has experienced any of the freaky crap that I have with this med?

    just an FYI too here,when I was taking cymbalta,i started getting increased swelling in my RSD knee and in other jointed areas as well.it appears they are seeing this with cymbalta pateints now that it has been used on more than just the trial patients.just thought you might like to know that too.hope things 'go down' soon for all of you.marcia
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    Old 06-01-2007, 03:35 PM   #14
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    Re: Edema from pain meds?

    Hi everyone, it was hard finding a site relating to edema, 'especially' reading that swelling can come from meds, which I had felt along. I had pain management injection through a pain management doctors. I had what drs. were calling sciatica for 10 years, and it was caused from a chiropractic adjustment i had after and auto accident. So you guessed it I suffered though ten...long years with buttocks leg pain down to my left foot. ONly the past few months was did I realize that it wasn't the sciatic nerve it was pain casued from the 'piriformis muscle'...which lies in the very near proximity of the sciatic nerve...which alot of drs. are unaware of...since they give of the same symptoms.

    Anyway!...to make my point. I never had any form of swelling until my sixth injection,which was delayed by a month this I feel may have even caused my swelling...and the injections consisted of Lidocaine and Kenalog, which is sometimes used for pain. And again like others have mentioned it was only minutes before the swelling was present. Actually it was appoximentaly 10 to 15 minutes by the time I left the PM dr. until I arrived home.

    By the time I got home ...I needed to remove my bra because my shoulders hurt me so badly from the straps the swelling was all around my neck gridle and all along the top of the shoulders. weeks later my dr. called it buffalo hump or humpback from the steriods...Next I had to remove both my shoes because my feet were both swollen in the (heals of both feet/backs area and ankles) of the foot. And this was causing the shoe... to push my foot to the front of the shoe and my toes were hurting. By the following morning both my hands were puffed up like a muffin.....my wrist only on the left side were swollen...plus a bunch of other crap apeared all over my body. I had a rash from my ankle to just above my knee as well.

    Sure I went to my pcp...big deal!!!!, he tells me I had lymphedma. Of course I didn't no what that was?????????. and he tells me it may never go away. SO I ask him why??? is it here now??? it was never there before this. He tells me some people are born with it...... I said!...you dumb 'B' I never had this before in my life. I say the injections caused this.

    I called a lawyer for help...he tells me if you can get your pcp to say what your telling, that the injections caused your swelling then call me back and will do something...But I'll can tell you right now it won't happen. And he was right. TAll this happened to me back in April of 1998, and the swelling is still present to this day.

    Note: the swelling isn't fluid nor water...since diathetic don't do a thing. In my opinion the pockets of swelling is fat, caused by cortisteriods, and this had been my third try to stop this buttocks pain. I did read where and Orthopedic dr. can drain the pockets of fluid which I though it was in the very beginning. So I went to see one (Ortho, and he tells me 'I can't drain something I don't no what it is. DAH!!! that's why I came to see you. So of course nothing was accomplished.

    So bottomline here is I still own this swelling ...and to date, only the past month that its causing me trouble. I seen my present pcp and he puts me on Naprosyn now Napoxson, if it doesn't get better he tells me, will send me to an Orthopedic..(.why!?) he thinks its the 'rotator cuff' in my shoulders.Did he even acknowledge the swelling around my neck gridle 'NOPE'.

    I think I'll tell him 'NO'... I won't waste my time again 'been there done that'. Then I told him I think it's the swelling around my neck gridle.. You can't tell me that this swelling isn't stagnent, after 10 more years, and is possible causing me an infection...which in return is causing my pain.


    He then tells me...remember I told you that I spoke with a surgeon and he said that the area of the neck gridle is a very critical area...since to look inside would need to be an invasive method, and he said its to risky for him and you...so he won't do it.


    So what does this tell me ZERO, and back to square one.

    Thanks everyone for letting me vent...I hope you all find a way around your problems..and I wish you all the best results possible.

    ty all

     
    Old 06-01-2007, 06:16 PM   #15
    butrfligirl28
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    Re: Edema from pain meds?

    I have never had problems with swelling of any kind, and I take oxycontin and percocet, or any other pain med I have taken.

    My mother-in-law took Lyrica and had to stop due to the terrible swelling. It is a common side effect, but can be dangerous. (she also has diabetes) I would really want answers as to why you all are experiencing this swelling. It doesn't seem to me that it would be from traditional pain meds, but more from meds such as Lyrica, Tegretol, Topamax, ect. Get it checked out instead of just accepting it as a normal side effect. I don't think it is normal or should be taken lightly.

    Hope it gets better for you all soon!

     
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