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    Old 03-28-2007, 03:13 PM   #1
    blondie817
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    Re: I have a ? for people who see a pain dr. please

    Here's my story, I would appreciate any input or suggestions!
    about four months ago I noticed a lump in the back of my neck. It proceeded to get worse, more swollen, and more painful so I went to see my primary care doctor. She ordered a CT Scan and an MRI which both came back normal. She had perscribed me 30 percocet 5/325mg once a week for about six weeks. Those were helping but I still cannot sleep through the night without waking up in pain. It's hard to even get through the day without constantly thinking of how much pain I'm in. She then decided to switch me to the 25mg fentynol(spelling?)patch which did not work AT ALL! Man, everything I read online I thought I had finally found a way to manage my pain but nope, so I went back on the percocet. She then trasferred me to the Pain Clinic at the local hospital and since then it has been a nightmare. At my first meeting the Dr made me CRY because the things he was making me do with my neck were hurting so bad. He then told me I was too young to be taking percocet everyday. My neck is constantly swollen and I have been in bed for FIVE DAYS because I cannot barely move my neck. I called to get a refill of the percocet and my primary care said I would have to go through the pain clinic for all my pain related meds now. So I call and the nurse at the pain center and she asks what I am doing for the pain. So I tell her taking the percocet and she responds with "OH really? Where'd you get those from?" (made me feel she was implying I bought em off the street or something!!). So I told her my dr gave them to me and she said "Well this doctor is not going to give you those so don't even think about it". I called back yesterday and was given a perscription for ultram which is not helping AT ALL!! I don't know what to do...my pain is getting worse and the meds are getting weaker. I think they assume because I am 22 I must be addicted or something but I am in PAIN! I do not feel any "high" whatsoever from the percocets, in fact sometimes they don't even really help. I'm about to give up on this whole thing and just deal with being in severe pain for the rest of my life. I don't know what to do. Should I switch to a different doctor or try to set up another appointment with him so he can actually see how much pain I'm in?

     
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    Old 03-31-2007, 04:44 AM   #2
    blondie817
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    Re: I have a ? for people who see a pain dr. please

    Ok so here's the new saga to my nightmare...

    I called my pain dr yesterday morning to get a refill on the percocet and piroxicam(anti inflammatory). Well the nurse called me back and told me that my dr didn't feel "comfortable" refilling either of those and that he was going away on vacation next week so basically not to call them for any reason. She then told me I could move my appointment up but when I got transferred to the receptionist she informed me the dr I see is full until April 12. I was ready to cry. I just want to figure out what is wrong with me and what is causing all this rather than be taking all this medicine! I then called my Primary Care Dr and thankfully got an appt the same day. So I went there and she filled both prescriptions and gave me a few refills on the anti inflammatory. She explained that it's not because I am 22 but that these medicines are not a long term solution for me and can be habit forming. I also had to sign a "contract" stating I would not call any other dr to refill the percocet and that I would not call for early refills. I mean seriously, I UNDERSTAND these are controlled substances but when you are using them for legitamate PAIN it is kind of hard for me to comprehend. So now I am nervous that when I do see my pain dr on April 12th he will be mad at me because I went "behind his back" to get these two medicines

     
    Old 03-31-2007, 12:50 PM   #3
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    Re: Advice Please

    Hi there! I am sorry you are being made to jump through hoops to get pain relief until they can even find out what is happening...not right. I am a little confused, so please correct me if I am wrong. Are you seeing a PM dr. now that you have a contract with, and are concerned because you had to go to your primary Dr., or do you have a contract with your primary Dr. ? I just was not sure, but if you did have a contract with your PM, and now have one with your primary Dr, and want to stay with your primary Dr. to treat your pain, then I would just tell the PM Dr. that you found someone else to treat your pain, and null and void the contract with the PM dr. Does that make sense? If you decide to go this route, I would say it as nicely as possible to them so you don't close the door to any future possible need to go back to this Dr (the PM Dr.). When I found my new PM Dr., I called the one I was going to, and let them know that although he had been a great help, I felt I needed to give this new PM Dr. a try, and they said if I ever needed them to come back and it would be no problem, and they thanked me for letting them know I had signed a new contract. It was no problem in my case. Anyway, I hope this helps at least a little....please keep us posted o.k.? Hang in there, Surgical Disaster

     
    Old 03-31-2007, 08:23 PM   #4
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    Re: Advice Please

    hey there
    Sorry you are in so much pain. I want to try and help you. How long has this been going on? That is, since it was 1st treated by a MD?

    Who ordered the CTscan and MRI? When they told you the results to the MRI and CTscan, they should have sent you somewhere else other than the Pain Clinic. You should have a referral to see a Doctor who can find out what that lump / why your neck is swollen...it could be something serious, and if not looked at ...actually get worse. Not to frighten you, but did they run any labs? Did they look for or rule out any infection?

    Now as for the Pain Clinic...whats the deal? you might wonder....I'll tell ya...., Remember, I'm on your side ..but I will be blunt...OK.you must be 100% honest with them, & show them that you are not just trying to calm the pain down...but also trying to heal, &....you cannot ask for specific meds. That's the rules. Whoever that contract you signed with...that is to be the ONLY person that gives you pain meds, and usually other meds too like Xanax, or Valium....all of those need to get OK'd by the MD you signed the contract with. So, who did you sign the contract with? Who gave you the meds? When is your next appointment with the Pain Clinic?

    I am pretty new at this myself, so I can see where you don't understand things. Its ok. But you really need to straighten things out. B/C if one Pain Doctor identifies you as trouble, you might have a rough time for a long time trying to find another doctor. A few things off the cuff...EVERYBODY signs a contract. They don't like giving younger people strong pills like Percocet b/c you have a long life ahead of you... and if, by chance, this condition is with you for the rest of your life, you don't want to Max out the heavy hitters (Fent Patch) right away. I, personally, think Percocet is fine...esp, you have the 5/325, right? How many a month? Thats another thing...they do not like you making your own schedule with your perscibed pain meds. In other words, no early refills. If you have 30 and it says, 1 every 6 hours...that means its good for 7-10 days depending on the pharmacy. ALSO....I bring my Mom, Sister, or Dad along, ....its a really good idea having someone there to A) Back up your story B) Witness this unfairness you feel C) They can usually remember more instructions than the patient can.

    Alrighty, answer.... and we will work with you and get you going down the right path! No worries...it'll work out. It's just alot to swallow when you are new at pain troubles.
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    Old 04-01-2007, 08:32 AM   #5
    feelbad
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    Re: Advice Please

    you are getting some really great advice here but i just wanted to ask you if you actually have the copies of your CT and MRI results in your possession?I can understand why swelling and a lump would not actually show up on an MRI,but quite frankly,the way CTs are,'something' must have shown up in that.just what exactly did they tell you about your test results?the thing with any rad results and mostly specialists?they will usually only tell you what THEY feel is pertinent to your specific issue at hand and not actually everything that was found in the results(this has happened with me many times,thats why i started getting all my results myself).did anyone else actually take a good look at your hard films or did they just have the actual results in the rad report.this does make a difference in alot of cases since any actual rad report is only as good as the overall knowledge and experience of the interpretting rad,and nothing more.if the reading rad really doesn't know a whole lot or has never seen a particular issue,they will not be seeing it the way any experienced neurosurgeon or ortho doc would,you know what i mean?

    it just seems a bit odd that you have some sort of actual lump there that is ,from your symptoms,causing some level of actual inflammation,but nothing showed up on either test?is this causing anything like numbness or tingling or pain,like radiating pain down any arms or problems with your fine motor functions in either hand?If you were told that they saw nothing on these tests to confirm an actual problem,this could also be part of your pain med problems as well,and also considering your age.that is unfortunetly the way things are.

    i really do think you need to obtain your very own copies of all and any tests they have done on you and look at them yourself in order to see if they actually have found anything out of the norm but for some reason,decided not to tell you.it does happen.

    as far as ever actually seeing the pain doc again,i wouldn't hold out alot of hope there since you,in their eyes,did go behind their backs,tho not an intentional decieving type situation,it does not matter the 'whys" only that you DID.it really sounds ,since you did sign a contract with what appears to be your actual primary?that this would be the only doc from now on that you will be able to obtain anything narcotic from.you do have another option to see another PM but you will have to maintain your Rxs thru them exclusively if you should decide to see these people for ongoing care.

    the one other option is to do what i did years ago when all i had was my ongoing shoulder blade issues and that is to stay with your actual primary but only see the pain doc for treatments like injections of various sorts.i was just referred to,about ten years ago,to who has now,because of spinal cord damage,my current pain doc,just for trigger point and ESI types of injections just as an ongoing part of my primarys treament plan for me,this really worked out well for me since i had the treatment advantages there from the pain clinic but my primary had control over any actual med Rxing for me,which ment since i wasn't being Rxed anything from them there was no contract stuff to adhere to either.it would be the same type of situation as if you were being referred to like a PT person for treatment,you know what i mean?

    you really DO just need to see those reports for yourself and make some more permanent decisions regarding who is going to really be in charge of your ongoing care.you just cannot mess with pain clinics,they have very strict guidelines as far as what you can and cannot do and having to undergo more guidelines as with the random pill counts and the suprise UAs.they have to be stringent in what they do since there are many people out there who would use them for other purposes than pain control ya know?you just don't want to start yourself out here the wrong way since you really have no idea as the years go by as to whether or not they may be needed at some point in your future,this could really screw things up for yourself if you are not careful in the decisions you make now.i wish you lots of luck with this.hopefully someone will be able to finally figure out just what is causing your neck issues.but look at your reports.marcia
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    Old 04-01-2007, 09:00 AM   #6
    blondie817
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    Re: Advice Please

    Hey guys, sorry here's the story behind all that, for some reason I thought I had posted it first! Anyways here goes..

    about four months ago I noticed a lump in the back of my neck. It proceeded to get worse, more swollen, and more painful so I went to see my primary care doctor. She ordered a CT Scan and an MRI which both came back normal. She had perscribed me 30 percocet 5/325mg once a week for about six weeks. Those were helping but I still cannot sleep through the night without waking up in pain. It's hard to even get through the day without constantly thinking of how much pain I'm in. She then decided to switch me to the 25mg fentynol(spelling?)patch which did not work AT ALL! Man, everything I read online I thought I had finally found a way to manage my pain but nope, so I went back on the percocet. She then trasferred me to the Pain Clinic at the local hospital and since then it has been a nightmare. My neck is constantly swollen and I have been in bed for FIVE DAYS because I cannot barely move my neck. I called to get a refill of the percocet and my primary care said I would have to go through the pain clinic for all my pain related meds now. So I call and the nurse asks what I am doing for the pain. So I tell her taking the percocet and she responds with "OH really? Where'd you get those from?" (made me feel she was implying I bought em off the street or something!!). So I told her my dr gave them to me and she said "Well this doctor is not going to give you those so don't even think about it". I called back yesterday and was given a perscription for ultram which is not helping AT ALL!! I don't know what to do...my pain is getting worse and the meds are getting weaker. I think they assume because I am 22 I must be addicted or something but I am in PAIN! I do not feel any "high" whatsoever from the percocets, in fact sometimes they don't even really help. So the first post I wrote was actually after the events in this one...sorry if that's confusing!
    Oh one more thing, my pain doc suggested "injections" has anyone had those and can give me a brief explanation of what they are?
    Thanks everyone!

     
    Old 04-01-2007, 03:39 PM   #7
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    Re: Advice Please

    Hi Blondie! From what I can tell, after reading all the posts in this thread, you STILL haven't told us what the findings were from the CT and MRI and xrays that were already taken. You've just repeated your first post, word for word, all over again after folks have asked you to explain what your diagnsosis is. What EXACTLY have the doctors told you what is wrong with you? There should be a diagnosis. I'm sorry if I'm not understanding something, but can you please tell me what the doc says you have??? Thanks and all the best - KathyMac

     
    Old 04-01-2007, 03:44 PM   #8
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    Re: Advice Please

    Yeah...I just read your 3rd post and thought I was going nuts. LOL. You repeated the 1st post. I am hoping to help, but the post does not answer any of my questions that I had asked. Also, if you can also answer what were the names of the Injections your doctor mentioned? There are many of them that a MD can prefrom.
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    Old 04-03-2007, 10:39 AM   #9
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    Re: Advice Please

    Hi guys I'm sorry!! Anyways both my MRI and CT scans came back normal. I have to get another MRI this Thursday because apparently when I got the first one done they did not do the right region of my body...stinks! I'm not even sure what the names of the injections are...all my PCP said was that the pain doc's notes said that at my next appointment he'd like to do some injections and see if thats helps? Sorry for the vague answers but I'm new to this whole thing and am just really confused

     
    Old 04-03-2007, 05:33 PM   #10
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    Re: Advice Please

    Sorry to ask a stupid question but is this a lump you can actually see or do you just feel it? The reason I ask is because my best friend has reflux disease and this is her only symptom!! She elevated the head of her bed and takes prilosec and it has helped her immensely.

    Forgive me if I'm way off base but I wasn't sure by your posts about the lump.
    Good luck with you doctors. Keep us posted.~Mush
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    Old 04-03-2007, 07:08 PM   #11
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    Re: Advice Please

    Yeah...I gotta tell ya, I've been worried ever since you mentioned this "lump". I mean, I don't want to say it...but have they ruled-out any of the big boy diseases? That was one of the Questions I had asked...you prob didn't see it...did they do lab work? I know you want the pain to stop, but you seem really cool and collected about this "lump"?
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    Old 04-04-2007, 06:37 PM   #12
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    Re: Advice Please

    Well, I, for one, am still TOTALLY confused about what the diagnosis is? And also, like others, wonder where the lump is. Is it at the base of your head/neck behind your head? Is it in the front? Where the heck is it???? I still feel like I'm playing "What's My Line" with Blondie. It feels like we are just playing a guessing game with each subsequent post. What I want to know is this: What exactly is your diagnosis. What did the doctor tell you the name of this lump is?? And like others: is it a soft lump? hard lump? big? small? please......I still can't figure out what we are talking about here. Can anyone explain it to me?? I'm really, really trying to help but have not one ounce of info that explains any of this. All the best again! Thanks - KathyMac

     
    Old 04-05-2007, 06:17 AM   #13
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    Re: Advice Please

    Usually when someone has a lump they do a needle biopsy first to check for cancer cells than they surgically remove it and have it looked at under a microscope to identify what this lump is. It sounds to me like you have swelling but are calling it a lump. if this was a big tumor type of lump your Dr's would not be putting you off like this and doing MRI'S and CT scans, they would have you under the knife to get it out by a surgeon. if it is in fact an actual LUMP under the skin, than they would to take it out has this been discussed? so please explain more about this LUMP you have.. is it just swelling or an actual tumor you can move around and see. outside of the skin area........... we want to help but your not giving us the information we need to help you. if it is an actual lump, it might just be a lypoma like a benign fatty tumor or something that needs to come out if its causing you that much pain. if its that painful you need to have it removed, but it sounds to me like musle pain with inflamation and swelling vs a tumor of some sort. pls let us know. thanks SS

     
    Old 04-05-2007, 07:15 AM   #14
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    Re: Advice Please

    do you have actual copies of these reports in your possesion or is this just what you were told?If you have not actually even seen these reports and read them for yourself,you need to.docs will not usually tell you what is all in those reports,only what they 'feel' is pertinent to your problem at hand.and even that can vary depending on just how experienced the particular doc and the radiologist who actually read your films are.but you DO need to get your hands on those reports,just to see what the doc may have left out.i just can't see how you can have what you have and those tests not actually showing anything useful,really.

    you just have to take charge of your own healthcare and obtain copies of your own medical records and always obtain copies of any sort of actual testing results.you just need to have this stuff with you espescially if you have any condition that requires a possible surgical intervention or ongoing treatment.believe me,it helps TONS.marcia
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    Old 04-05-2007, 11:18 AM   #15
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    Re: Advice Please

    Hi again...sorry for being so vague in my answers guys! The lump is on the base of my neck to the right...it's really tender and I've been taking Piroxicam(spelling?) for the swelling which helps a lot...I have not had any biopsy's yet. When I went to the pain doc he said there's a possibility I may have a small fracture in one of the top discs which is causing the intense round the clock pain. So I had some xrays done but don't know the results yet. I appreciate everyone's input and help...I do apologize if I'm confusing anyone with my problem!! It's confusing to myself actually since every doctor I see seems to have a different "guess" as to what could be the problem. The only reason I may come off as being so calm about the whole thing is because every doc I goto seems to brush off whats going on as not being life threatening.

     
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