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    Old 11-29-2007, 10:37 AM   #1
    cpapp31
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    Question Pain Management RE: Bowel Re-section

    Hi Gang!

    Hope everyone is having as low of a pain day as possible!

    I have a question regarding pain management after a bowel re-section, including TWO hernia repairs. I have been in pain management for around 10 years or so, and have had numerous surgeries for my back (disc fusion), many abdominal surgeries for cysts, hysterectomy (endometriosis), divaticula (bowel re-section), hernias, apendix, ovaries removed and gall bladder.

    In August of 2006, I had a hernia repaired. I ended up in the hospital 3 times after that for hernia pain and divaticula pain. In June of this year, I had my bowels re-sectioned to ease the pain with the divaticula, also to repair the original hernia surgery. Apparently, the mesh from the original hernia had imbeded in my intestines, hence causing a lot of pain. However, this never showed up on any tests (i.e. ct scan) I had after the surgery, the doctor only found out about it while repairing my bowels.

    Anyway, it has been almost 6 months since the last surgery and I am still having severe pain where the hernia surgeries were repaired. It feels like it's on fire and twisting like pain. I see the surgeon next Wednesday and hopefully get some answers. Is this normal, to have this much pain after two repairs?? The main reason I ask is because when I made my appointment to see the surgeon, I explained to the nurse what was happening to me and she said "If you're JUST having pain, maybe you should see a pain specialist", duh!! I explained to her that I am already being treated for pain, I just want to find out what is going on with the pain from the hernia repair. I am hoping it's is not imbeded in my intestines again.

    Anyone, ever go through this surgery and are still having complications? I would really like to talk to someone who has been through something similar. I can't live the rest of my life in this kind of pain, I had to quit my job because I was missing so many days because of the pain.

    Thank you for listening and letting vent. I feel better already, just getting this off my chest.

    Take care,
    Cpapp31

     
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    Old 11-29-2007, 11:09 AM   #2
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    Re: Pain Management RE: Bowel Re-section

    I haven't had a bowel resection, but I have been dealing with severe dense adhesions for about the past 10 years, due to endometriosis and several surgeries. I have had 2 bowel injuries, which were both caused by surgery. I had to stay in the hospital for both, to make sure they didn't leak out (after what was supposed to be outpatient surgery). To answer your question, YES, YES, YES!! I have had terrible pain from the bowel injuries...I think it's due the fact that so many adhesions have now formed in/around/on the bowel. I'm so sorry you're having to deal with this. I'm sure mine is nothing compared to yours, since you have had the resections. I will keep you in my prayers! I'm starting pain management soon, and I haven't gone to my first appointment yet. Kinda scared, because I don't know what to expect. In your experience, how have the PM docs treated chronic pelvic pain due to endometriosis, adhesions from surgery, etc? Again, you're in my prayers!

     
    Old 11-30-2007, 11:56 AM   #3
    cpapp31
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    Re: Pain Management RE: Bowel Re-section

    Hi Pain!

    Thank you responding to my post. My PCP and gyno agree that I do have a lot of adhesions, but more surgery will only create more adhesions. That's why I am beginning to feel so helpless.

    To answer your question about pain management and for chronic pelvic pain. Well, I started pain management for back pain after I had my disc fused. I was with a pain doctor for about 8 years and he would not Rx breakthrough meds, which I clearly needed after so many failed surgeries. My PCP insisted I did need meds for breakthrough and wanted to take over all my pain meds. So, in my experience with my PCP (who has been a Godsend, love her), yes, I think any pain wherever it is should be treated. No one should have to suffer in this day and age, its inhumane in my opinion.

    Good luck with your appointment and I will keep you in my prayers, as well.

    Take care,
    Cpapp31

     
    Old 12-01-2007, 10:33 AM   #4
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    Re: Pain Management RE: Bowel Re-section

    Cpapp,

    I had no idea our pain was so similar! I also have endo, and had many abdominal surgeries. But my true cp comes from the hernia repairs I have had. I had the first one to fix an incisional/umbilical hernia caused by so many lap surgeries. I never recovered. I had severe pain from day one, and always told doctors that something was wrong with the mesh/tacks, or both.

    My problem never showed up on any tests, and most doctors I saw, including several surgeons, stated that no one had pain after a hernia repair, especially from the mesh. Then after two years, a CAT scan showed a problem. I finally got a surgeon to agree to take out the mesh. I prayed that it would solve the problem. However, while there was major problems with the mesh, and it's out now, I still have major damage and pain.

    I recently saw a gastro doc, and he said the muscles in my ab area (something called the odendum (sp?)) was so messed up, he asked immediately what had happened to me to cause so much damage? I said....."well.....it all started with a simple hernia repair......"

    God I feel your pain. I wish I didn't. Mine is being so grossly under treated right now, it's horrible. I now have a large "bulge" in my upper abdomen, that makes me look horrible. I can't suck it in, and it grows everyday it seems. After my surgery, the surgeon actually said, "well you wanted the mesh out, and I took it out for you. I never promised that your pain would be gone. Oh, by the way.....you have a strange deformity....kindof like a hernia but with no hole." He explained that I had a weak spot in my abdominal muscles, but he did not repair it, "because you just wanted the mesh out." I asked if it would get better, and he actually chuckled when he said, NO.....hernias, even this strange kind, only tend to get worse." ha ha ha. Thanks doctor.

    At the time it was the size of a silver dollar. I had my surgery in May. This deformity is now, the size of my FIST. I have no idea how many other people like us there are, but for two years I tried to find as many as I could. And low and behold.....there were others like us! sarcasm

    I again am so sorry you are dealing with this. It seems at some point I am going to need even more, and much more major surgery to repair all this damage. But believe me, it will not be anytime soon. The burning/stinging pain? I am VERY familiar. It is responsive somewhat to narcotics, but not very responsive. The only thing I have tried that has made a great difference is Cymbalta. It has reduced the burning/stinging pain alot.

    Sadly, the majority of my pain is not the burning. It is a terrible soreness, stabbing, pulling, tender type of pain. Anything, especially lifting, coughing, holding my posture, ect. all make it worse. In other words, ANYTHING that uses my ab muscles, even sneezing, triggers my pain. Therefore I am always in pain, of various levels. My job requires that I lift children on occassion, travel, carry car seats, ect. All of these things do me in.

    Try the Cymbalta is you haven't already. I don't know how I would cope like this without it. Good luck, and although I am so sorry you are living a similar nightmare, I am so glad I am not alone!

    Your Friend,

    Amanda

     
    Old 12-01-2007, 02:14 PM   #5
    cpapp31
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    Re: Pain Management RE: Bowel Re-section

    Hi Amanda!

    Wow, it's is nice to know I am not alone in this nightmare! I thought I was going crazy! LOL Although, I am truely sorry that you are going through this as well.

    I see the surgeon on Wednesday and will post an update. I wanted to mention something that I found out by accident. I was researching hernia repairs and found out one type of mesh used for hernia repairs was RECALLED! This was around the time I had my repair, and no one told me about it. I am ticked off that my surgeon didn't call and let me know about this. You may want to find out if this recall also concerns you.

    I know how painful endo is, I have been dealing with that crap for around 16 years. After I had my daughter, I had severe pains and they did laproscopic surgery to remove a cyst and when the operated, the doctor said I had a severe case of endo, the endo had wrapped around some of my organs and hence a few years later, at the age of 29, I had to have a hysterectomy. Also, the doctor said it was a miracle that I was able to have a child with that amount of endo. I feel so blessed that I was able to have a child.

    Also, I know exactly what you are talking when you mentioned the lump protruding from the surgery. I have a huge lump where my repair was done and I am sure it is growing. It burns like heck and feels like it is twisting inside my body. I really hope the surgeon can do something, I can not imagine having this pain, on top of my back problems for the rest of my life. No way!

    How is your endo pain? How old are you, if you don't mind me asking. I am 39 now, and when I was29 years old, I was told hysterectomy was the only solution. If you are yound and want to have children, you may want to run from any surgeon that says that to you. However, at the time I had my hysterectomy, I didn't have a choice because the endo was attaching to my organs. And could have caused the blood to my organs to cease. Which might have killed me.

    Regarding the Cymbalta, I tried it for a couple of months and had so many side effects, that my PCP put me back on Zoloft. But, I am very happy it is working for you and so many others.

    Thank you so much for making me not feel so alone in this nightmare.

    Take care,
    Cpapp31

     
    Old 12-02-2007, 06:59 PM   #6
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    Re: Pain Management RE: Bowel Re-section

    Cppap,

    I am 30 now. I have stage 4 endo, and it is everywhere. It is on my colon, bladder, ureter, both ovaries, both tubes, cul de sac, and of course outside my uterus. I have had 4 surgeries, in an attempt to have a chance at pregnancy. I had no idea that these surgeries would put me in this situation.....with the cp of endo, plus cp due to the surgeries!

    I am engaged now, and we just bought our first home. I finally have somewhere to put a baby! We have no idea is we even have a chance at being successful, but I have to try. Having chronic pain, and being on these meds complicates things so much. I will most likely have to stop most of my meds, including even the Cymbalta in order to have a healthy baby. It's a gamble, but your story gives me hope that it may work out for us, as it did for you!

    I am glad not to be alone too. I hope the surgeon can help you. I am not willing to allow anyone else to operate on me, unless it's a C-section! LOL

    Good talking to you. My appt. with the PM to discuss my out of control pain, is Tuesday. I see your surgeon appt. is Wednesday. I will be praying for great appts. and look forward to your follow up!

    Amanda

     
    Old 12-03-2007, 12:55 PM   #7
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    Re: Pain Management RE: Bowel Re-section

    Hi Amanda!

    Wow, I really do feel your pain. Endo is a very strange disease to treat. The pain is unbearable. It seems with endo, the more surgery you have, the more problems you have. It's a no win situation.

    I am so happy for you and your boyfriend and will pray that you both have a healthy, happy baby.

    Besides dealing with endo, I have cp from my back, divaticula, ibs-d and so many other problems. I had to quit my job recently because I was missing so many days due to the pain.

    I have started the SSDI process and am hopeful. However, I have heard so many people being denied. It's very sad to me.

    Anyway, hope all is well.
    Take care,
    Cpapp31

     
    Old 12-03-2007, 06:45 PM   #8
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    Re: Pain Management RE: Bowel Re-section

    Hi guys, I have been reading your stories. I had a hysterectomy at 24 for endometroisis. I also had bladder and bowel involvement. My bowel adhered to my abdominal cavity. They had to go in and separate it. I ended up with major revision surgery at 26 and praise God all has been fine. I am now 43. I just had to say that I can relate to your pain -- now I am struggling after having my 4th back surgery last week. I wish you good luck Amanda in conceiving and having a healthy pregnancy. I unfortunately never experienced the birth of a child but I have two precious adopted children that I love dearly and could not imagine being a part of my life.

    I am located in VA and if you are close by and need an excellent surgeon for endo, let me know. Good luck to you both.

     
    Old 12-04-2007, 08:57 AM   #9
    cpapp31
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    Re: Pain Management RE: Bowel Re-section

    Hi 123!

    Great point and thank you so much for bringing that up. Being pregnant was the best experience in my whole life. However, if it wasn't mean't to be, as in your situation. My Hubby and I would have went the adoption route. We love children so much. My daughter is now 15 years old, my how fast they grow.

    One concern, my daughter has ver painful menstral pain and I have made an appointment with the top gyno in my area (my gyno) he was the first to use lapro in gyn. Anyway, I am hoping and prayering she doesn't have endo.

    Take care and thank you for sharing with us,

    Cpapp

     
    Old 12-04-2007, 06:12 PM   #10
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    Re: Pain Management RE: Bowel Re-section

    Thank you Pepper! I wish, with all the women that suffer with this disease, that it would be more widely known, respected, studied, ect. I truly hope we can concieve, but that may not be possible, like what you've experienced. I just wish when there is such a serious disease that not only caused infertility, but life-altering pain and complications, that there was more done about it. You know I have never heard of a celebrity or tv personality that has even admitted to having it?? Maybe one of us will get famous and educate everyone! LOL Thanks for sharing, to both of you. At least I am in good company.

    Your Friend,

    Amanda

     
    Old 12-05-2007, 02:57 AM   #11
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    Re: Pain Management RE: Bowel Re-section

    I have added your daughter to my prayer list. Please keep us updated. I pray she does not have it. What is so hard about endo is some people can have a ton of it and little pain or they can have microscopic and have severe pain. Also not all doctors know that it can be almost clear in color and is sometimes very difficult to see even via microscopic.

    May the LORD be with you both and may you find some pain relief today.

     
    Old 12-05-2007, 03:51 AM   #12
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    Re: Pain Management RE: Bowel Re-section

    I agree. My Mom had endo, and one of my sister's had a hysterectomy at 26 due to endo. Strangely enough, my other sister is fine. There is definetely a genetic component, and I pray your daughter is able to know endo only through your stories. If she does have it however, she has a wonderful Mom who can be her educated advocate. I can't think of anything that is more comforting, if she is facing this. Please keep us posted, and as always, you are in my prayers.

    Your Friend,

    Amanda

     
    Old 12-05-2007, 09:30 AM   #13
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    Re: Pain Management RE: Bowel Re-section

    Amanda and 123!

    Thank you both for your kind words and prayers, it means so much to me.

    Amanda, I replied your other post. And, I am steaming mad at your pain doctor! What a JERK!!

    Also, I am updating my other post about my visit with my doctor this morning.

    I will keep you all in my prayers, as always. It is so nice that we have each other for support, when others just don't understand what we cp's go through. Very sad

    Hugs,
    cpapp31

     
    Old 12-05-2007, 09:29 PM   #14
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    Re: Pain Management RE: Bowel Re-section

    As a grown woman I had never even heard of endometriosis until I ended up in the ER with pelvic pain so severe I literally thought I was dying. I was in the right place at the right time because the head OBGYN was in the ER right then and personally took my case. This was almost 4 years ago, one of the first things explained to me was that almost 40% of women with this condition are infertile and that I should come to terms with the fact I may never have a child. I had a few surgeries and more than a few complications and with each one I knew my chances went down just a little more..

    A week after my son was born I got a 'congratulations' card in the mail from that same OBGYN who I no longer saw but was in the same building as mine, at the bottom he wrote "I GUESS WE SHOWED ENDO WHO IS BOSS!"


    *I feel so much for you ladies and every woman ever effected by this condition. I agree it is grossly ignored.

     
    Old 12-06-2007, 11:37 AM   #15
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    Re: Pain Management RE: Bowel Re-section

    Hi Babyowensmama!

    Welcome to the boards! I am so happy for you that you were able to conceive. I found out I had endo AFTER my daughter was born. After my surgery to remove some of the endo, the surgeon said he couldn't believe that I had been able to have a child, as severe as my endo was.

    Thank you so much for sharing your story about your precious miracle baby! Hopefully, our stories about conceiving will give other women who are in this painful nightmare hope!

    Take care,

    Cpapp31

     
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