It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Pain Management Message Board

  • New side effect, constipation

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 12-11-2007, 11:45 AM   #16
    paulo60
    Inactive
    (male)
     
    Join Date: Nov 2007
    Location: Portland Oregon
    Posts: 107
    paulo60 HB Userpaulo60 HB User
    Re: New side effect, constipation

    Thanks all, I'll give the miralax a shot tonight. Never thought this would be a topic for discussion, that's what is so great about this anonymous board, the freedom to discuss even the most personal problems we have with our medical and medication issues. Yeah, plugged up is not a good feeling...Paulo

     
    Sponsors Lightbulb
       
    Old 12-11-2007, 12:05 PM   #17
    paulo60
    Inactive
    (male)
     
    Join Date: Nov 2007
    Location: Portland Oregon
    Posts: 107
    paulo60 HB Userpaulo60 HB User
    Re: New side effect, constipation

    Hi Dietcoke,
    Thanks for taking the time to explain a complex history. Now for me to be honest also. In my experience, once you have been on any pain meds for awhile, and have a significant pain disorder such as you describe, any euphoria that might have come the first few weeks is either due to a dose too high, or popping an extra pill on top of the regular prescription. That would drop my blood pressure also, as these drugs depress respiration and conversely, blood pressure. Syncope, (fainting) can come from many things, drug interactions being one of them, excess serum opioids another. Did your CRPS somehow resolve itself? If not, how do you manage pain now? Several things come to mind when you mention aberrant behavior, the type that would frighten your wife. A. wrong dose, or wrong med, one that you might have an allergy to or be unable to metabolize due to enzyme deficiency, or B. Getting into recreational use. Please do not get me wrong, I am not passing judgment of any sort, the whole thing with pain and narcotics is a slipper slope and fraught with dangers. But the only times I have ever had any of the behavioral symptoms you described is when I first got started on pain meds 9 years ago at doses too high for me to handle; or when I also did the thrill seeking thing before realizing that was a quick way to spiral down, crash and burn. So you are not the only one who has done that. But I am interested in how you are managing pain symptoms? And, thank you for such honesty.....Best wishes for a happy marriage and good health....Paulo

     
    Old 12-12-2007, 07:17 AM   #18
    dietcoke
    Junior Member
    (male)
     
    dietcoke's Avatar
     
    Join Date: Jul 2005
    Location: Dallas Metroplex
    Posts: 34
    dietcoke HB User
    pain management & clearing something up

    Paulo,

    You gave me credit where none was due because my post about opioids was confusing. I did get off of MS Contin, but not willingly. The doctor that had prescribed them for me was indicted by the Fort Worth Police Department’s “drug taskforce unit,” or the Tarrant County “something or other” (I have forgotten the correct name, etc.) Although he had broken no laws, it would have cost him $100,000 in legal fees to go to court, and his attorneys believed he could have lost. Ultimately, he brokered a pea: 1 year without practicing medicine. I am a CPA, and since it was hard for me to pass the exam and build a practice, I could not blame him for the decision he made. He wrote me one final prescription of MS Contin and I did get off of it myself. I had to, for the only other option was a “forever” option, which I cannot name and hope I do not get in trouble for alluding to it.

    CRPS did not resolve itself. I have been told by one of the leading “experts” in CRPS in the D/FW Metroplex that it will never “resolve” itself. Other doctors have told me the same thing. Of the 9 (or was it 10?) others in the group that I ventured through the last pain clinic with, 5 others had CRPS, and they still struggle every day, just like you and I do. I do have hope that, in the future, some treatment will be available that will help me that will be affordable.

    A small percentage of people—very small, I have been told—experience paradoxical side effects with certain medications, and for me, the medication just happened to be opioids. All of the drug interactions were assiduously studied by psychiatrists at the pain clinics (3 of them), changed, studied, and yet the paradoxical side effects simply never could be decreased. The pathetic irony of it is that no other drug I have ever taken has caused me any side effects that were not easily manageable, yet uploads—all of them—do, etc.

    I have tried: 2 Implants, both stimulation and a morphine pump, both of which had to come out because they eventually stopped working. The morphine pump caused an infection, which hospitalized me. I have had a 4-level Facet Rhizotomy. Every form of alternative medicine I could possibly try, some of which are almost comical, like sleeping for 3 years on a mattress full of magnets (didn’t do anything except cost me a bundle of $$, which insurance did not cover). Scherotherapy. Cognitive therapy, where the healthy therapist told me that pain “really wasn’t that bad” and that I could learn to “rethink” the way I viewed pain (I tried, and she was wrong in my situation). Homeothapy. Deep tissue massage. Physical therapy from 3 different facilities. Acupuncture. A man with a master in Nutrition worked with me for a year. I took so many vitamins, minerals, and other pills—well over 100 every day—that all I could do was laugh when my twins kidded me (laughing beats crying). I did that for one solid year, and when the man finally admitted that he could not help me. I’ve seen over 35 doctors. I’ve been to Mayo in Rochester (which is the most overrated research/”teaching” hospital I have ever been to), Scott & White in Temple, Texas, John Hopkins in Baltimore and a slew of both hospitals and clinics in the D/FW Metroplex. I’ve been through 3 pain clinics. 9 MRIs. 2 drug influxes. I have no doubt that I have forgotten things that I have tried, but I can look into the mirror and honestly say that I have done every thing I can do at this present time. No stone has been left unturned, and I have no regrets for the somewhat bizarre things that I have tried. I would do all of them—every one of them—again if I were starting over and knew so little about it, as I did when I started.

    I have not tried Voodoo. I also have not “Drawn Down the Moon” or attempted to conjure any villian up. Those are options to me because I am a Christian.

    Yet, in many ways, I am fortunate, considering my trek through the medical mountains and the CRPS. Thankfully, my wife is still here and, according to her, isn’t leaving, and the divorce rate is rather high for people with intractable pain (which is a gross understatement). Why hasn’t she left me? Because she loves me? Partially, but she is committed, and that is the primary reason she stays and will stay. My boys are healthy and doing fine. We are neither “rich” nor “poor” and we have decent medical insurance. My wife teaches third-grade “miscreants” and somehow, she loves it, which means that my pre-existing condition is covered. The people in my “group” at the last pain clinic that had CRPS are either bedridden or very, very inactive. I’ve stayed as active as I can, for that was preached at the pain clinics, and I am glad it was, and I actually listened (which is amazing for me).

    I manage my pain with a “cocktail” of 5 medications, by daily water-therapy, by daily self-hypnosis, by continuing to stay abreast of any new technology or medications, and by screaming (I am just kidding about that one). I also see a therapist—an L. P. C., that is—who listens to me rant (I’m not kidding about that one).

    Incidentally, Mayo advised me to “kill” my right ilioinguinal nerve with a mixture containing alcohol, and that would “stop the pain.” The doctors at Scott & White read the letter from Mayo, and then they called Mayo. Then I was informed that they only do that on people that have a short time to live, that they would never do that on someone like me, and they explained it to me, etc. I called Mayo back to ask, “What now?” Basically, the answer was, “Good luck and Good Bye.” Mayo was, for me, more than a “bust.”

    Wow... My response is too long. I'm a lunatic.

    Paulo, I wish you well.

     
    Old 12-12-2007, 12:21 PM   #19
    paulo60
    Inactive
    (male)
     
    Join Date: Nov 2007
    Location: Portland Oregon
    Posts: 107
    paulo60 HB Userpaulo60 HB User
    Re: pain management & clearing something up

    D/C. I think you more or less thoroughly answered any questions I had, may have had, or ever will have no seriously, I appreciate reading a persons intricate journey through the world of choices to find health and freedom from pain. It's a lesson for all of us who do have fairly well established and intractable pain disorders caused by an underlying disease that until we see a treatment or a touted cure in a medical journal and then a doctors office, the chances of finding one elsewhere are slim. You have a marriage and a family, may you also find and keep some golden nugget that will make your pain less of a burden. I wonder where I would be if I could not take opioid medication? But you have found a way, so more power to you...Paulo

     
    Old 12-12-2007, 11:54 PM   #20
    mattiemay
    Junior Member
    (female)
     
    mattiemay's Avatar
     
    Join Date: Jun 2007
    Location: penna.
    Posts: 22
    mattiemay HB User
    Red face Re: New side effect, constipation

    i was on vicodin, then switched to kadian, then to fentanyl and back to kadian, no problems on vicodin and fentanyl but big problems on the kadian. I usually go several times a day, so to skip 3 or 4 makes me very uncomfortable. i have tried colace and pericolace, and had to even resort to fleets..which pretty much made me explode...i felt like my body was turning inside out! And my bottom wasn't such a mess since immediately after childbirth if you know what I mean. The colace doesn't seem to do anything, and the pericolace gives me such bad cramps that i can't move! It will take me three days of agony to empty my colon..and then my body is so sore from it, not to mention how painful my back is from all that pain, strain, and sitting. I guess I'll have to try the miralax (?). Also, does anyone know, if I need to see a doc about this (I probably should) do I use my regular insurance or the worker's compensation stuff? I have ended up skipping doses of the kadian to try to keep myself regular but then i'm hurting and just immobile so that isn't good either. I guess I'll ask my PM doc if I can go back on the fentanyl patch to see if i tolerate that better as far as constipation..it didn't help my pain as much as the kadian, but this is getting ridiculous..i feel like i'm totally preoccupied by my elimination patterns.

     
    Old 12-13-2007, 12:17 AM   #21
    paulo60
    Inactive
    (male)
     
    Join Date: Nov 2007
    Location: Portland Oregon
    Posts: 107
    paulo60 HB Userpaulo60 HB User
    Re: New side effect, constipation

    Hi Mattiemay,

    I know just what you mean when you say you are getting preoccupied with what should be normal elimination. I have been treated for chronic pain daily for about 9 years, and over that period of time been on quite a few different medications, several times on much higher doses of the oxycontin I currently take. I have done a little research on Purdue, the maker of oxycodone and oxycontin, plus a few derivatives. They had some big patent lawsuits and also other legal problems, but that hasn't stopped them from making billions from an ever increasing use by doctors of their pain meds. Since as I said I have used it several times before without having this level of constipation, only two things seem reasonable. There may have been a very slight change to the filler products that help bind the narcotic in pill form; or my body has changed. I eat a high fiber diet, take supplemental psyillium fiber, and still have a daily problem. I even take very high doses of powdered vitamin c which would ordinarily induce diarrhea; I too am used to managing this side effect well, and having more than one BM every day, so when I don't, or only have partial elimination I feel uncomfortable, and also find myself frustrated that I am so concerned about something that I have never had to worry about. Today I started miralax, and hope that I will see some progress in this area within a couple of days. I am glad we have this site to discuss what would be a laughing matter to normal, pain and med free family or friends. You aren't alone Let's hope that everyone who has commented thus far finds the right protocol so we can all move on and feel comfortable that our bodies are not betraying us further...Best of luck to you. Paulo

     
    Old 12-13-2007, 01:33 PM   #22
    trowftd3
    Senior Veteran
    (female)
     
    Join Date: Jul 2002
    Location: WA, USA
    Posts: 895
    trowftd3 HB User
    Re: New side effect, constipation

    I am surprised that no one has mentioned the Yakima Fruit Paste yet.

    Yakima Fruit Paste

    DOSE: 1-2 tablespoons per day

    1 pound prunes
    1 pound raisins-pitted
    1 pound figs
    4 oz senna tea (look in your health food store, it looks like a bunch of leaves)
    1 cup brown sugar
    1 cup lemon juice

    1. Prepare tea-use about 2 1/2 cups boiled water added to tea and steep 5 minutes.
    2. Strain tea to remove tea leaves and add only 1 pint tea to a large pot, then add fruit.
    3. Boil fruit and tea for 5 minutes.
    4. Remove from heat and add sugar & lemon juice. Allow to cool.
    5. Use hand mixer or food processor to blend fruit mixture into smooth paste.
    6. Place in plastic container and place in freezer. (Paste will not freeze but will keep forever in freezer).
    7. Spoon out what you require each day.

    Enjoy eating it straight off the spoon.
    Spread it on toast or add hot water and make a drink.

    * If the fruit paste is not working (you are not having bowel movements) then you need to increase the amount of fruit paste you are taking.

    * If the fruit paste makes you have very loose stools then you need to cut down on the amount of fruit paste you are taking. Perhaps even taking it every other day in some cases.

    I use the senna tea bags because I couldn't find the loose leaves and it works fine.
    I got this recipe from Dave(Shoreline) and it works wonders.
    I even made it for my mom when she was taking opiods while she was on Hospice care. It doesn't take very much and it actually tastes good....kind of like a fig newton. It's a little bit of work to make a batch but it will last you a good while in the freezer.

    Hope this helps~Mush

    ps Dietcoke, thanks for telling us your story. I think all of us can gain a little something from each story that we here on this board. I'm sorry that you haven't found something to help your pain that you can live with.
    We're all still waiting for that 'magic cure' that the doctors assure us is right around the corner!
    __________________
    undiagnosed lung and back pain after pneumonia in '03, tmj, migraines,(two failed surgeries for) Kienbock's disease

    Last edited by trowftd3; 12-13-2007 at 01:35 PM. Reason: add more info

     
    Old 12-13-2007, 05:19 PM   #23
    paulo60
    Inactive
    (male)
     
    Join Date: Nov 2007
    Location: Portland Oregon
    Posts: 107
    paulo60 HB Userpaulo60 HB User
    Re: New side effect, constipation

    Thanks for the recipe. Since I am just recently back in the U.S. from abroad, and new to the city I am in now I am sharing a house with a couple of others and there is not much in the way of good kitchen utensils such as even the modest ones you mentioned. I am also broke from previous medical bills before I got medicare, so I can go about as far as the senna tea and prunes. I got quite a few recommendations to try a laxative called Miralax, and it has put me down and in bed with the worst stomach cramps. In fact, this is the first time in my life that (outside of appendicitis) I have ever felt any stomach pain. I may either have to reduce the dose, I have taken it as indicated on the box, or stop it altogether, or instead of morning take it in the evening. If anyone reading this has used miralax please let me know if there is some secret to taking it. Thanks again for taking the time to write out that recipe. I am going to probably have to switch medications, as it has been six weeks and I still have not adjusted well; and I have been on oxycontin three times before for good lengths of time, and even at much higher doses...Paulo

     
    Old 12-13-2007, 10:25 PM   #24
    mattiemay
    Junior Member
    (female)
     
    mattiemay's Avatar
     
    Join Date: Jun 2007
    Location: penna.
    Posts: 22
    mattiemay HB User
    Re: New side effect, constipation

    arrggh...i was thinking of trying that miralax stuff, but i don't need to have that terrible cramping again...but not taking my kadian twice a day is hurting me too...i have been taking one or two on the days that i have had a bm, but skipping doses on other days, plus taking colace twice a day, the pericolace really made me cramp....so if i cramped from that senna, how would i do on the miralax or the paste, i'm not much of a fan of raisins, figs, or prunes either. Its hard to experiment with trial and error because i'm really afraid of getting badly constipated again...its sad but at least the back pain is something that i am used to having to put up with...better the enemy you know...

     
    Old 12-14-2007, 12:26 AM   #25
    ms_west
    Senior Veteran
    (female)
     
    ms_west's Avatar
     
    Join Date: Dec 2006
    Location: western us
    Posts: 7,265
    ms_west HB User
    Re: New side effect, constipation

    Quote:
    Originally Posted by paulo60 View Post
    I got quite a few recommendations to try a laxative called Miralax, and it has put me down and in bed with the worst stomach cramps. In fact, this is the first time in my life that (outside of appendicitis) I have ever felt any stomach pain. I may either have to reduce the dose, I have taken it as indicated on the box, or stop it altogether, or instead of morning take it in the evening.

    Ughhhhhh and I am one of the ones that probably recommended it to you. I am so sorry. I take mine at night. It might be that it is cleaning out or unstopping you (Sorry to be gross....) and you will be fine after the next dose. I would skip tomorrow then take 1/2 the next day. This stuff really works and in your case it sounds like it works to good. SORRY!! I truly like you and did not mean any harm. LOL

    Last edited by ms_west; 12-14-2007 at 12:28 AM.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Methadone side-effect? Loss of mental acuity. Keereepip Pain Management 10 09-18-2010 10:10 AM
    Soft Stool Constipation / pain right side of anus / Smelly Anus seriousissue Irritable Bowel Syndrome (IBS) 1 07-12-2010 07:23 AM
    Progesterone cream side effect? odcdfm Menopause 3 04-26-2010 06:32 AM
    Embarrassing issue ( med side effect ) katlovesdogs Pain Management 8 03-12-2009 09:45 AM
    weird side effects RIGIRL Smoking Cessation 46 04-24-2007 01:22 PM
    Periods and other side effects of Diane 35 eliannas_mommy Acne 2 03-29-2007 06:40 AM
    An unpleasant side effect...constipation neurowreck Epilepsy 4 08-19-2006 02:33 PM
    Help!!! On Methadone for pain, with side effects foreverangel143 Pain Management 5 12-20-2005 05:18 PM
    Forteo Side Effects (new user) BelindaG Osteoporosis 15 08-15-2005 08:21 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 05:24 PM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!