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  • Chronic Cluster Headache Sufferer/on morphene/wondering about suboxone

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    Old 06-06-2008, 05:22 AM   #1
    konacluster
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    Chronic Cluster Headache Sufferer/on morphene/wondering about suboxone

    Aloha, This is the first time that I've joined a forum such as this. Please, if there is anybody out there with similar pain management issues, or with cluster headaches, I would like to hear from you.

    I've been cursed with cluster headaches for almost 10 years. They've varied in cluster duration from just a few days, to weeks & even months on end. I've seen so many dr's that I can no longer keep count. This list of dr's has included many, many neurologists, headache specialists, diet management specialists, general practitioners, and finally, and most currently a pain management guy, who is truly devoted to making me as comfortable as is humanly possible. I've been on more medications of varying types than I can keep track of. . . in fact I just gave up. Pain management doctors started me on oxycodone to address the extreme pain involved, however I built up a tollerance to this med. After trying a few different things, my current dr placed me on morphene extended release tabs, which I currently take every day. This regimine does offer relief in the form of decreased pain during an actual attack, and I have been able to maintain a constant (non increasing) dose for about a year now. It's difficult at times, such as this evening for example, not to take more morphene than is perscribed. Sometimes, like tonight, the pain is so severe, I am tempted to double or even tripple my dose for some relief. When I'm this bad, I find myself banging my head against a wall or some other solid object because the pain caused by this activity side tracks my mind from the intense pain of the cluster attack. My doctor suggested suboxone as a long term pain management med, that might be more effective, and better for me in the long run.

    Is anybody else experiencing similar circumstances? Taking morphene for long term management of clusters? Or, is anyone with clusters taking suboxone?

    Please help. Any information would be greatly appreciated. I'm at my witts end right now with this situation. Nothing that I've ever done, or have been perscribed by any of my doctors has actually stopped the cluster attaccks, or even had even a slight impact on them. Luckily, I have a wonderful partner in life, who is understanding and supportive of my condition. He has a medical background and is simply awesome to have by my side. He is what keeps me going, and being a working, productive member of society. I feel at times though, like tonight, that I'm loosing my grip!

     
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    Old 06-06-2008, 05:31 AM   #2
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    Re: Chronic Cluster Headache Sufferer/on morphene/wondering about suboxone

    Welcome to the site. There are many people here who have a wide degree of experiences. I have suffered from extreme headaches / migraines for years, including cluster headaches.

    Are you taking any type of break through med (BT)? If not, it sounds like you should be. The extended release med is good to help "prevent" pain and knock out the everyday little pain, but does little, if anything, for the major flare-ups. The purpose of the BT meds is to provide relief or "rescue" med. When I have mine, I hit it hard with BT meds. BT meds are instant release meds aimed at directly attacking the flare up.....Something like Percocets, Oxyfast, Hydrocodone, & etc. There are even more powerful BT meds like Actiq and Fentora.

    Before I go any further, I'd like to hear back from you.

    Regards,

    Ex

     
    Old 06-06-2008, 09:40 AM   #3
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    Re: Chronic Cluster Headache Sufferer/on morphene/wondering about suboxone

    I also suffer from Cluster Migraines and have for the last 3 years. Do you take a preventitive Med? I take Topomax daily as a preventitive and it has worked wonders for me, I also use Singulair daily as allergies tend to excerbate my migraines. At onset of a migraine I use Axert and Percocet, I am also on Fentanyl 50mcg patches and take Ultram daily for other chronic pain issues, but these tend to help with the cluster migraines as well. With these combinations along with the usual no caffiene, chocolate, etc. mine have gotten under control, meaning 3 - 5 a month as opposed to 3 - 5 a week.

     
    Old 06-06-2008, 01:20 PM   #4
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    Re: Chronic Cluster Headache Sufferer/on morphene/wondering about suboxone

    Hey Kona, Welcome! I am sorry you have the CHA's. I too, like Steve have not had the clusters, so I don't know for sure if treatment for CHA's and other Migraines is the same. But I had MHA's several years ago for varying periods of time in my late 20's & 30's. I had stopped having them, except for maybe 1 or 2 a year, and then about 2 years ago, with the onset of peri-menopause, I started getting hormone induced Migraines.

    I get them about 2-4 days each month, generally just before and at the beginning of my cycle. I have had so much luck with Imitrex. I take the oral dose of 50 - 100mg when I first start to feel one coming, and it has been a Godsend.

    I agree that I would like to know a little more about what your experience has been. Again, welcome to the board and please post often. Take care, CMP/MM

     
    Old 07-05-2008, 03:49 PM   #5
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    Re: Chronic Cluster Headache Sufferer/on morphene/wondering about suboxone

    Hi, I am a Chronic Cluster Headache sufferer, I have had them now for 9 years. I have tried all known medications (twice) to break the cycle and am currently 2 months into Lithium, which so far like the others has been ineffective.

    I get 2 attacks daily and treat each with 5mg Zomig nasal spray and Oxygen delivered at 15 litres per minute through a non rebreather mask. Since discovering Oxygen therapy (thanks OUCH UK for your help), I deal with my attacks more comfortably.

    Like all sufferers I get a Cluster within a couple of hours of falling asleep and then another almost exactly 12 hours later.

    I keep a portable Oxygen cylinder in my car and have even flown with it, if you need info as to how please ask.

    Despite my management programme I am considering approaching my neurologist to discuss more radical options as I am finding life harder to cope with as the routine and pain eventually drag you down.

    I hope this information may help new sufferers and if you read this and perhaps have some advice for me I am open to suggestions.

     
    Old 08-05-2008, 11:07 AM   #6
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    Re: Chronic Cluster Headache Sufferer/on morphene/wondering about suboxone

    Verapamil is a blood pressure medication reported to have excellent results with cluster headaches at large doses according to Dr. Hain. Do a search on him and see what you come up with.

    Rich

     
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