It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Pain Management Message Board

  • Parsonage Turner Syndrome

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 07-17-2009, 10:31 PM   #1
    arianatheodora
    Newbie
    (female)
     
    arianatheodora's Avatar
     
    Join Date: Jul 2009
    Posts: 1
    arianatheodora HB User
    Post Parsonage Turner Syndrome

    Hi, I was diagnosed with PTS (Parsonage Turner Syndrome) when I was 15. I can describe the pain to you, but noone can understand until they experience it. The pain felt like my arm was being ripped off and crushed all at the same time. This went on for weeks. I could not sleep, I could not do anything but think about the pain I was feeling. I begin to develop additional shocks of nerve pain that would travel down my arm at all times of the day. My shoulder began to flatten until it looked like a shrunken boney shoulder, where i had once been strong. Then the weakness came. I couldn't even lift chapstick up to my lips. My recovery has never been complete. The hereditary form is suspected in my case and I have had several attacks. It is by far the worst thing that i have experienced. The worst pain I have ever felt and i have had a child. My mom, my twin and I have all had it. Very young children can get the hereditary form and all I can think is how long until my own daughter gets it. It's a freaking curse, there is nothing out there that can ever help the pain. All those drugs you are taking won't help if you have PTS. Believe me, i tried everything there was, legal or illegal. The best you can do is hope to pass out so you won't have to feel it. Sorry for the bad news, but if you have it....that's the truth of it.

    Last edited by arianatheodora; 07-17-2009 at 10:32 PM.

     
    Sponsors Lightbulb
       
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Turner's Syndrome??? stinie General Health 1 01-30-2008 09:21 AM
    Turner Syndrome xPenguin_Dance Women's Health 3 08-15-2006 02:33 PM
    Distinguishing Chronic Fatigue Syndrome from Neuroborreliosis CFD 333 Lyme Disease 30 05-05-2005 09:55 AM
    Criteria to Diagnose Antiphospholipid Syndrome/Hughes Syndrome AngelicBrat Lupus 0 05-04-2004 12:03 PM
    Parsonage Turner Syndrome - Do I have it? igy76 Pain Management 1 09-19-2003 06:28 PM
    Turner's Syndrome Symptoms with negative diagnosis beccalynn Open to All Other Health Topics 2 09-11-2002 07:24 PM
    FRAGILE X SYNDROME: EFFECTIVE TREATMENT MAY BE AVAILABLE SOONER THAN EXPECTED Diane2boys Children's Health 2 04-09-2002 01:43 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 01:04 AM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!