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  • Nerve blocks for buttock pain

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    Old 09-28-2010, 02:08 PM   #1
    andyjanicki
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    Nerve blocks for buttock pain

    I have a spinal cord injury and use a wheelchair as my sole means of mobility. I have been battling with extreme nerve pain in my ischial tuberosity region (the main "sit bones" of the pelvis) for almost a year now. CT scans show that I have severe inflammation in both of these areas, in turn causing this pain. The last procedure that I had done was a caudal epidural which resulted in no relief past the point of the local anesthetic.

    I have been looking into further options and see that for more severe pain the same procedure can be performed but with opioids being injected instead of steroids. Even more severe pain has been treated by freezing or heating the specific nerve.

    Has anyone ever had any of these done and if so how did things go?

    Thanks in advance for your response.

     
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    Old 09-28-2010, 05:27 PM   #2
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    Re: Nerve blocks for buttock pain

    Quote:
    Originally Posted by andyjanicki View Post
    I have a spinal cord injury and use a wheelchair as my sole means of mobility. I have been battling with extreme nerve pain in my ischial tuberosity region (the main "sit bones" of the pelvis) for almost a year now. CT scans show that I have severe inflammation in both of these areas, in turn causing this pain. The last procedure that I had done was a caudal epidural which resulted in no relief past the point of the local anesthetic.

    I have been looking into further options and see that for more severe pain the same procedure can be performed but with opioids being injected instead of steroids. Even more severe pain has been treated by freezing or heating the specific nerve.

    Has anyone ever had any of these done and if so how did things go?

    Thanks in advance for your response.
    Have you ever thought about doing aquatic water therapy?

     
    Old 09-29-2010, 06:42 AM   #3
    andyjanicki
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    Re: Nerve blocks for buttock pain

    No, none of the doctors that I've seen have offered that option. Do you have any idea as to how this might help? Or do you have experience with this option?

     
    Old 09-29-2010, 01:03 PM   #4
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    Re: Nerve blocks for buttock pain

    Quote:
    Originally Posted by andyjanicki View Post
    I have a spinal cord injury and use a wheelchair as my sole means of mobility. I have been battling with extreme nerve pain in my ischial tuberosity region (the main "sit bones" of the pelvis) for almost a year now. CT scans show that I have severe inflammation in both of these areas, in turn causing this pain. The last procedure that I had done was a caudal epidural which resulted in no relief past the point of the local anesthetic.

    I have been looking into further options and see that for more severe pain the same procedure can be performed but with opioids being injected instead of steroids. Even more severe pain has been treated by freezing or heating the specific nerve.

    Has anyone ever had any of these done and if so how did things go?

    Thanks in advance for your response.
    >>>>>>>>Hello Andy, and welcome to the forum. I can sympathize with you because I've had the same problem! With that kind of inflammation, I am wondering if there is something more going on....facet joint problems for example? My doctor did a nerve block for me and it helped quite a bit. The steroids should quiet down the inflammation, but if it persists and you fail to get relief, I think your doctor needs to do a lot more investigation to find out just exactly what needs to be treated.

    I have had a nerve ablation, if that is what you are talking about....my pain management doctor "burned" them and it was quite successful. Do you have a pain managment specialist? They are really good at ferreting out problems and treating them.

    I want to wish you the best of luck and hope you get relief soon. Please keep posting and let us know how you are doing.

    Carol

     
    Old 09-29-2010, 01:20 PM   #5
    andyjanicki
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    Re: Nerve blocks for buttock pain

    Thanks much Carol. Yes, I think that freezing or burning, as you have had done, is what my research led me to. I am seeing a pain specialist and have an appointment next week to discuss what my next plan of action will be. I'll be sure to keep you posted.

    Thanks again!

     
    Old 09-30-2010, 08:30 AM   #6
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    Re: Nerve blocks for buttock pain

    hi andy, just wondering how extensicve you SCI actually is and at what level is it at? are you a complete or incomplete? i do know some incompletes still have to use wheelchairs only becasue of very particular types of SCI related issues(and the many lovely 'syndromes' that can come along with SCI too?), so thats why i am asking? also, what created your SCI in the first place?

    just what actually 'showed up' on that CT that led them to that actiual Dx? if this simply from having to be seated at all times of was this something generated at the spinal level that is creating radiating types of pain for you? what meds are you currently on or have tried that have worked or are simply having a 'good' impact on your pain? sorry for all the questions here but i too have an SCI/incomplete up at the c 7 T 1 level that has created insane crappy things just becasue of 'partially damaged" areas and the pain syndromes and other syndromes that just can be a big part of our overall symptomology or create insaen levels and types of pain crap that most narcotics will not even begin to actually touch as well.

    do you have enough fat or are you on the lower weight end like i am? just having that good level of fatty areas,esp within the buttock are when you have enforced sitting can really make a huge impact upon how our butts feel when sitting for longer periods of time? during the surgery i had to have to actually resect out of my cord, a cavernous hemangioma(a glob of blood vessels i was born with in there but never knew about that was also bleeding) they also managed to hit my sympathetic nervous systen too which sent it into the "defense mode" of fight or flight then 'stuck there"(this can also very often be Dxed in SCI patients as some level of autonomic dysfunction too), has created a total inability to even retain just basic 'safety fat' i any areas that protect bone and organs. and also along with ramping up my overall metabolism to the point where no matter how many calories of fat in put into my body, it simply uses this for fuel, and also has been 'canabolizing" any and all fat stores anywhere and just wont 'allow' ANY fat to even stay in me, which is MY biggest issue with MY buttocks pain right now since there is nothing there to give me an a$$ or protect the area from direct impact of sitting, like even ON pillows? its a really 'sick' fat loss that makes me look almost anorexic despite trying to like always be eating and nothing helps? i simply cannot possibly keep up enough calories from this constant burning to even begin to show ANY real fat storage? i would not wish this level of fat loss or inability to retain it on anyone. i am just wondering if this is also something that you too are dealing with or if this is something else entirely?

    the one huge thing i found post SCI, is how truely over the top all encompassing just even having any level of real SCI just IS on our bodies and the "perceptionary" crap we can feel at times(ten times more insane than any paresthesias that i heve ever felt) and the other levels of systems that just can also be very heavily impacted as well? the spinal tracts and any "damage" to those too will actually also dictate 'us' as well, some in very big ways. i was somehow just during the first year following my SCI, based upon insane off the wall symptoms, actually Dxed with five seperate crazy 'syndromes", which two of them are pain syndromes untouchable by any levels of narcotics.

    if you could actually fully describe the very exact types of pain(is this always there or comes and goes?) you are feeling there, it would help alot. does anything you do actually appear to make this better or worse? sorry for all the many questions, but the more real solid info you can give seriously helps us to better help you andy. actually tracking back your pain and symptoms to that actual generator(s) is really the best way to find the very best ways to try and even begin to treat ANY real pain process. are you currently trying any good anti inflammatories at all just to see if this just IS a more profound pain from simple inflammation of that area and the weight upon the buttocks/bones(upon soft tissue) without regular movement to releive it? how does this pain actually feel once you are out of that chair and lying down in bed? marcia
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