It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Pain Management Message Board

  • Just wondering if anyone had some advice for me?

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 06-22-2003, 03:35 PM   #31
    HockeyCrystal
    Veteran
     
    HockeyCrystal's Avatar
     
    Join Date: May 2003
    Location: Wichita, Kansas USA
    Posts: 469
    HockeyCrystal HB User
    Post

    I know what you mean about those doctors and not wanting to treat anything...Luckily my doctor isn't like most in the sense that he is in and out in less than 5 minutes.. He DOES sit and listen to me, and talk to me to explain things and whatnot, it just seems like he doesn't want to give me pain meds for the severe pain that I have...If I can get him to treat my pain, I'll have a wonderful doc. I'm glad you have straightened out your docs. I hope you're having a good day despite our hot weather http://www.healthboards.com/ubb/blob_fire.gif

    ------------------
    - * HockeyCrystal * -
    __________________
    22 year old chronic pain patient and college student in Wichita, Kansas.

     
    Sponsors Lightbulb
       
    Old 06-22-2003, 04:03 PM   #32
    HikingFan
    Senior Member
     
    HikingFan's Avatar
     
    Join Date: Jun 2003
    Location: San Diego, CA
    Posts: 162
    HikingFan HB User
    Post

    HockeyCrystal-
    I feel for you with the whole age-discrimination stuff. I am 25, and have been dealing with some serious spine and back issues since I was 23.

    I finally am seeing a Doctor who instead of having the disbelieving attitude of "You are too young to be in this much pain," he has a very empathetic attitude of, "You are too young to be forced to suffer through something like this without appropriate care." IT is imperative that you find a Doctor with this attitude. IT took me almost a year to figure this out, and I hope that you will be able to do it sooner....I want to pass along a couple of pieces of advice which helped me get the approriate care I needed.

    I forgot the username of the person eariler in the post who told you that you need to ask your DR. to either treat your pain, or refer you to someone who can, and I completely agree!!!! Primary care doctors are not specialists in pain management (I'm not sure if you are still seeing a PCP??) so I recommend getting to a physical medicine or pain management doctor. They are specialists in pain, and know a lot more about these issues than PCP's. If you are in an HMO, this is going to take a good deal of insistence..,they will try not to send you to specialists unless its a last resort (because of the cost.)

    Before you go into your appt., sit down at a computer, and type out the following info (see below). Do it when you feel the most pain-free so you are clear-headed and can compile a comprehensive list. when you try to verbally tell a Dr. all this in a rushed appt., you end up forgetting things.
    List: 1) all the meds you've tried, 2) what other treatments or specialists you've been through, 3) The major symptoms, and descriptions of the affected areas 4) HOW YOUR QUALITY OF LIFE IS AFFECTED...like, "I used to hike 4 times a week, but this week I was bedridden 75% of the time because of pain" 5) any pertinent questions/concerns on your mind. Don't leave until he/she has answered and addressed each question and concern. Write down each answer so they will be forced to address each one succiently (and you'll have on record what you've been advised.)

    Ask them to keep this printed list in your chart!!!! It is so important to have all of this documentation with your record so if you have to file a formal complaint (or request a transfer to another doctor), you'll come out on top. Also, if you have to see another Doctor in the future, you can refer him to this list to get a breif history before you come in for your appt. Keep this list on your desktop and add to it after each appt/new prescription so you have your own personal history on record....every so often, print it out and bring it in to your doc to attach to your record.

    Also, I know that I sometimes would have a hard time expressing my pain and suffering (I would be so upset, my voice would shake, and I would forget all the things I planned to say) to the Doctor. If this happens with you, say something like this "I must not be expressing my pain and discomfort appropriately, because the meds you are prescribing are just not working. Maybe if you take a look at this pain diary, it will help outline better the severity of the issue, and how I feel before and after the meds." Then,
    present a daily journal which tracks how the pain flucuates; rate it every couple hours on a scale of 1-10 (I posted the pain scale on another thread you could print out), note what the current pain medicine does to bring to pain down (or not). Note when the pain is at its worst (in the AM, late at night?) ASK THEM TO KEEP IT WITH YOUR CHART!! If you have this on record, and your Doctor is letting you stay at a 7-8 without offering you further treatment (if not stronger meds, a referral to a PM doc, or similar) your doctor is negligent, and you can bring this to the attention of the Department Head. This is illegal to not help you, and if you have it tracked in a journal of sorts, you Doctor is more likely to take you serious and treat you accordingly. It shows you are doing everything possible to help yourself. Start the journal today!

    I hope some of this advice helps. I've just run the gammet with a million doctors, and this is my best advice of what is effective. I think doctor's are impressed if you really take the time to write stuff down and think through this stuff before coming into an appt. It makes their job a little easier.

    If you need to talk, pull up my profile and drop me an email. I know how annoying it is to be looked at like you are crazy for possibly being in pain just because you are not 100 years old and falling over.

    Thanks for listening...hope this helps.

     
    Old 06-22-2003, 05:33 PM   #33
    HockeyCrystal
    Veteran
     
    HockeyCrystal's Avatar
     
    Join Date: May 2003
    Location: Wichita, Kansas USA
    Posts: 469
    HockeyCrystal HB User
    Post

    HikingFan, You brought up some very VERY impressive ideas. Thanks for all of your insight. I will start my journal right now...I have this little notebook I bought for a class last semester thats just wasting away. I'll put it to good use. Thank you so much. You've brought some things to my attention that I was not aware of. I give you Kudos, and express my utmost gratitude. Thanks a lot! You're my hahaha... Thanks again!!

    ------------------
    - * HockeyCrystal * -
    __________________
    22 year old chronic pain patient and college student in Wichita, Kansas.

     
    Old 06-22-2003, 10:34 PM   #34
    HockeyCrystal
    Veteran
     
    HockeyCrystal's Avatar
     
    Join Date: May 2003
    Location: Wichita, Kansas USA
    Posts: 469
    HockeyCrystal HB User
    Post

    I have an appointment with my Doc tomorrow (He's a D.O. but he's also my PCP...I haven't been even advised to see anyone else... Tomorrow I plan on asking if I should be seeing my Orthopedic surgeon or anyone else instead) and I started my pain journal tonight. I plan on presenting him with this tomorrow and show him that I am serious about my pain. And I plan on keeping it updated! I want to thank you again for your suggestions...I also started my list of the meds I've tried, and all of that. Thanks again HikingFan!


    ------------------
    - * HockeyCrystal * -
    __________________
    22 year old chronic pain patient and college student in Wichita, Kansas.

     
    Old 06-23-2003, 12:32 AM   #35
    HikingFan
    Senior Member
     
    HikingFan's Avatar
     
    Join Date: Jun 2003
    Location: San Diego, CA
    Posts: 162
    HikingFan HB User
    Post

    You made me smile BIG-TIME to know that I could be of some help. I so wish I had discovered this board in the first year of my problems. Everyone here has such a wealth of knowledge and ideas, its really a fantastic thing.

    PLEASE let us know how things go at this next appointment. You had so many people read and respond to your post...I hope this lets you know that we all care, are concerned, and wish you the best Hang in there!!!!

    Lots of love and best wishes,
    HikingFan

     
    Old 06-23-2003, 04:16 PM   #36
    HockeyCrystal
    Veteran
     
    HockeyCrystal's Avatar
     
    Join Date: May 2003
    Location: Wichita, Kansas USA
    Posts: 469
    HockeyCrystal HB User
    Post

    HikingFan,
    Maybe my doctor just doesn't really believe me at all. I did everything you said. I showed him everything. I did the pain journal, and showed it to him. He read it, and he realized I wasn't getting much sleep because of the pain. He gave me some kind of anti-depressant, which I don't see how it will work, but oh well.. I told him the lortabs were only bringing my 8.5 pain down to about a 7, and he told me that's all I could expect, FROM ANY PAIN MEDICATION, even if he gave me something stronger, I "Won't get any more relief than a 7 when the pain is that strong" Which I think is B.S. cuz lortabs are barely a strong pain killer... Does anyone know why he is so stuck on making me suffer? I came home in tears because all I could think of was another week in this pain. If I was given stronger pain relievers, I wouldn't have the problem sleeping....Right? Who's heard of this anti depressant, tofranil??? Is there a chance this is going to help my pain or help me sleep? I'm pretty upset with my doctor...I got home and just about lost my mind. I'm about to just say **** it and go to a different doctor. i'm sick of this ****. Sorry for b******* a lot, I need to go get this stupid prescription filled (I don't want ****ing antidepressants.) Talk to you guys later



    ------------------
    - * HockeyCrystal * -
    __________________
    22 year old chronic pain patient and college student in Wichita, Kansas.

     
    Old 06-23-2003, 04:52 PM   #37
    HikingFan
    Senior Member
     
    HikingFan's Avatar
     
    Join Date: Jun 2003
    Location: San Diego, CA
    Posts: 162
    HikingFan HB User
    Post

    Sorry your appt. went so crappy. The best I can advise you now is this:

    Try to do what he said, take the meds he wants you to try, and KEEP your pain journal through it all. After you've given the meds a chance to work (YOu have to at least try it, even if you are sure it won't work, which means probably at least 5-6 days) either go back to him and INSIST he treat your pain with something stronger, and if he won't, go home, call the department head, and demand to see another doctor. He has to let you, its a law. But you are going to have to try and do what he tells you first with these new meds, or else the Department head has no obligation to allow you to see another doc. I think doctors are forced to follow a protocol that tries the most conservative approach first (meaning, he won't put you on morphine until you've tried everything else under it, because of the addiction danger with narcotics). I'm certainly not defending the doc, but he/she has to answer to the State Medical Board, and the doc might be scared of having to explain why he/she jumped you up from Lortabs to something very strong. This is just a guess on my part.?????

    My docs have given me anti-depressants before too, because they sometimes have similar effects to skeletal muscle relaxers, and they bring on drowsiness. They did help me sleep, although I remember one in particular caused bad nightmares (Topamax, I think).

    Are you still getting the Lortabs? I am not sure that your Doctor will prescribe anything stronger without referring you to pain management or physical medicine doctor. At least with my insurance company, if you are in need of anything stronger than vicodin or percocet, a PCP cannot write that script. Have you had an MRI done? None of my problems were recognized until an MRI was done. My problems wouldn't show up on x-ray, so I suffered needlessly for 7 months. If you haven't had an MRI, insist on it.

    One more thing...do you have a pushy mom or dad (or aunt, uncle, sister, whatever..) that might be able to come with you to appts.? This always seemed to work for me when I was younger to get the quality of care I needed. I would be upset, and unable to speak up, and then my mom would take over, and MAN! did she ever scare the crap out of the doc into getting me whatever I needed.

    But give the new meds a chance...they might make a difference, you never know. I'm overly optimistic, but I know you are probably not feeling that way right now. Sorry for such a crappy day.

    Good Luck.

    [This message has been edited by HikingFan (edited 06-23-2003).]

     
    Old 06-23-2003, 05:19 PM   #38
    catgirl
    Senior Veteran
     
    catgirl's Avatar
     
    Join Date: Apr 2002
    Location: Wichita, KS
    Posts: 595
    catgirl HB User
    Post

    Hockey Crystal,

    Hiking Fan is absolutely right on all the above. Listen to her she knows what she's talking about. On the anti-depressant (AD) I'm not sure what that is unless it's a form of Trazone. That's a common AD that is given to help depressed people sleep (I think anyway, I was given this when I was in the throes of my depression & anxiety). At the top of this board is a section entitled drugs. Do a search on the drug he gave you & it should give you lots of information. I'll do the same & if you have any questions I'll be on periodically throughout the evening & tomorrow. Hang in there girl, I know it's tough, but we've got to be strong. Cat

     
    Old 06-23-2003, 05:36 PM   #39
    catgirl
    Senior Veteran
     
    catgirl's Avatar
     
    Join Date: Apr 2002
    Location: Wichita, KS
    Posts: 595
    catgirl HB User
    Post

    Hey girl,

    I just did a search on the AD he wants you to take & it belongs to the trialycic family of A/D's. I also did a search of a A/D that I have been taking to help me sleep & I discovered that your AD & the 1 I have begun taking recently have similar drug families even though mine is a benzaphine.

    Basically, & I'm no doctor, but I think this will help with your muscle spasms, which in turn will help with your pain level, & help you sleep as well.

    Print off a list of both your drug & mine (I'm taking clonazepam for sleep) & see if there are drugs listed on both lists that are quite similar. Then I would call your doc tomorrow & ask if the Tofranil has muscle relaxant properties in it.

    I'm thinking of you girl. Cat

     
    Old 06-26-2003, 01:39 AM   #40
    HockeyCrystal
    Veteran
     
    HockeyCrystal's Avatar
     
    Join Date: May 2003
    Location: Wichita, Kansas USA
    Posts: 469
    HockeyCrystal HB User
    Post

    I've been trying the anti-depressants as you guys have suggested. I'm not giving up on them yet, but this is the third night I've taken them, Monday night I was up until about 5 or 6am until I could finally get some sleep, and last night I couldn't fall asleep until almost 8am...And didn't sleep very long...and now it's 3:30am, and still no sleep... But I know those things can take up to a few days to get into your system...

    Anyway, I have been at 8-9 the past 3 days without any relief from anything I've tried still. I'm just hoping I don't go crazy before next appointment on Monday. I'm still keeping my pain journal as well as you guys also advised me.. Which I was going to keep anyways. My doctor told me to keep it, and I wanted to keep it anyways. I just wanted to let you guys know what all was going on. I'm pretty stressed over all of this, and it sucks that I'm not getting any relief from my lortabs, but I hope to God that he'll finally up me if even to percocets next appointment, or send me to pain mgmt. or whatever, AS LONG AS I GET SOME RELIEF FROM THIS AWFUL PAIN.

    Well, I'll keep you guys updated. Thanks for caring so much and helping me out when I need to vent or talk or whatever. You don't know how much you do actually help even if you don't really give much info, just the fact that you're there means an awful lot. Thanks again.

    Write more tomorrow...

    ------------------
    - * HockeyCrystal * -
    __________________
    22 year old chronic pain patient and college student in Wichita, Kansas.

     
    Old 06-26-2003, 06:33 AM   #41
    catgirl
    Senior Veteran
     
    catgirl's Avatar
     
    Join Date: Apr 2002
    Location: Wichita, KS
    Posts: 595
    catgirl HB User
    Post

    Hey Girly Girl,

    Those AD's can take up to 2 weeks to a month before they kick in & begin working.

    Another suggestion..............Stress intensify's pain. Try to relax, soak in a hot tub, read a good book, get your mind off your pain & you may experience some slight relief.

    Glad your keeping us posted & Girl, please try to relax. I think it will help you in the long run. Cat

     
    Old 06-26-2003, 07:10 PM   #42
    HockeyCrystal
    Veteran
     
    HockeyCrystal's Avatar
     
    Join Date: May 2003
    Location: Wichita, Kansas USA
    Posts: 469
    HockeyCrystal HB User
    Post

    I really have been trying to relax, although it's hard with all the bull*hit i've been dealing with the past few months. Everyday I try to do something relaxing, but nothing really helps. I try not to think about the crap I have to deal with, but I have everyday reminders. I've been fighting for unemployment for 4 1/2 almost 5 months, and I've ALMOST got it, but I have to go through another appeal process which will take ANOTHER 4 weeks. I lost my job back in Feb and I got really screwed by my old employers. Luckily I've been getting it back on track slowly but surely. I thought I had it, but then I found out I'm going to have to fight one last issue again. I'm really sick of it. In fact I need to go write my letter of appeal tonight to get the process started...

    Today my leg has been hurting (from the transitional S1 thing that presses on nerves and shoots down my left leg...) But anyways....

    I know stress makes things worse, but no matter how hard I try, I can't just forget about the numerous bills i have that I can't pay...or the fact that my little brother might get pushed off onto me (he's my half brother, and his mom and step-dad are ridiculously idiotic parents)....My brother got in trouble, and the courts won't put him in the home with his parents now, so they asked him where he wanted to live, and he said with his older sister...So I'll get to take on the care of a teenager. Which isn't my responsibility at all, but what can I do? I'm the only one that seems to give a ******...so oh well. Plus I think the pain makes me even more stressed and the stress makes it worse.

    I really DO try to relax... But one can only relax so much under such tense conditions. Thanks for being here for me.

    I don't believe that my pain would be extremely better if I were to calm down though either. Because this pain started BEFORE most of this other crap started... (not the entire unemployment process, but this last part of it)... In fact before I lost my job I was having a lot of back pain problems...And I had no stress really...

    Well, I need to go write that letter real quick, so I'll update later. Have a good night everyone.



    ------------------
    - * HockeyCrystal * -
    __________________
    22 year old chronic pain patient and college student in Wichita, Kansas.

     
    Old 06-28-2003, 07:03 AM   #43
    catgirl
    Senior Veteran
     
    catgirl's Avatar
     
    Join Date: Apr 2002
    Location: Wichita, KS
    Posts: 595
    catgirl HB User
    Post

    Hi again, sorry I didn't reply yesterday. I had one of those days & I didn't want to be rushed when I responded to you.

    Anyway, it's no wonder it's difficult for you to relax, what with everything your dealing with. But, if it's any consolation, I know what your going through. I went through a whole load of problems all at once several years ago, including an extremely high pain level...........thus that is why I am now on AD's. You might consider that. They really have been a lifesaver for me & have allowed me to get through the rough times as well as learn & apply principals of relaxation. Beside's the AD's will help you relax to begin with.

    One of the biggest helper's for me (& I had to say it frequently before I was able to apply it) was.........what are you going to do about the things your worrying about? A lot of it is beyond your control, so why worry about it, it's not going to change anything, so take 1 day at a time, do what you can & throw the rest of those worries away. Your doing everything you possibly can.......so what is worrying going to accomplish.

    Another thing that might help is something HikingFan suggested to me. Write all your worries down on a piece of paper. Once they are down on paper then they are out of your head & stuff that piece of paper in a drawer & not worrying about it.

    Another suggestion is to make a "To Do List" of everything you want to accomplish that day & not worry about the rest, remember 1 day at a time, & if you don't accomplish everything on your list, remember tomorrow is another day.

    Hope this helps. Cat

     
    Old 06-28-2003, 03:32 PM   #44
    HikingFan
    Senior Member
     
    HikingFan's Avatar
     
    Join Date: Jun 2003
    Location: San Diego, CA
    Posts: 162
    HikingFan HB User
    Post

    Nice advice Cat!! http://www.healthboards.com/ubb/t_up.gif

    Once more thing I'd like to add that helps...

    When I was going through some rough times a few years back, my therapist suggested that each night, (after writing down all my worries and putting them away for the night) I should make a list of all the things I am grateful for that particular day. I found that this really helps you go to sleep with positive thoughts on your mind. Its really simple, but effective.

    Hope you are having a good day!


     
    Old 06-30-2003, 07:30 AM   #45
    mokita
    Inactive
     
    Join Date: Apr 2003
    Location: Ohio
    Posts: 747
    mokita HB User
    Post

    Hi all!

    I was just reading what cat & hiking fan said about lists.

    I did the Grateful list for awhile when my Dad was so bad w/ alcholism and my husband & I were going through very, very tuff financial bs (cuz of his ex)- anyway.... I would write 5 things I was grateful for each day. It sometimes was as simple as "pretty blue sky" or "saw cardinal - red was magnificent". That really DID make me appreciate the little things in life. Sometimes just getting a good parking spot or hitting all the green lights are simple pleasures, but NOW can bring a smile to my face.

    Positivity begets positivity- and vice-versa, negativity.... Wish I could impress this on my (extremely) negative Mother .

    Good luck w/ everything....

    Karen

    ------------------
    9/22/00 24 hour labor, baby posterior, left tailbone killing me
    12/00 MRI - PCP said nothing amiss - but, had to begin taking vicodin
    2/8/02 - 2nd baby born after long, painful pregnance as weight gain
    2000-11/02 various PT + pain meds
    11/02 Referred to Neuro
    3/03 NEW MRI - shows slight bulge L3-L4,slight DDD Neuro Refers to PM for ESI
    3/03 PM Doc orders ESI
    3/21,4/1,4/8 - ESI's no help
    5/9 - Discogram - shows Tear L4 w/ significant leak onto nerves, DDD
    Doc sched NEW discogram 'cuz performing doc oversedated, False Negative
    New Consult w/ Dept Head Cleveland Clinic 7/8

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Am I just stupid? meganlynn Relationship Health 3 06-30-2007 04:30 AM
    Just looking for some reassurance RIGHT NOW Wowwwweeee Inner Ear Disorders 20 02-25-2005 07:56 PM
    How do you know whether your ex still likes you as a girlfriend or just a friend? accu Relationship Health 13 12-17-2003 04:51 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 11:07 AM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!